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Sat, Nov 2 5:10pm · @overcomer2019 · Leg, bum and muscle pain

Does anyone experience back legs, bum and muscle pain during chemo/radiation treatment? It feels like sciatica nerve. [...]

Posted by charles, Sat, Nov 2 5:09pm

Does it happen in both legs or just one? The most common reason for this is neuropathy caused by the eloxatin chemo - are you getting eloxatin? Other things can cause this and you should of course bring this to the attention of your doctors. Best C

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Sun, Oct 27 3:47pm · @charles · Anyone had TACE?

Doctors have reccomeded TACE for a member and they are looking to learn from others about the procedure. How long does it take, is it painful, how long to recovery?C

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Posted by abbylady, Sun, Oct 27 3:45pm

I have not.

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Posted by abbylady, Sun, Oct 27 3:46pm

My treatment was 8 chemotherapy treatments and then surgery. Nothing else.

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Sat, Nov 2 5:06pm · @jamie18 · 31 with stage III colon cancer

Hi All,

My name is Jamie and I had surgery last week to remove a colon tumor the size of my fist. I just found out a few days ago that the tumor tested positive for adenocarcinoma, which they also found in 3/40 lymph nodes they took. I'm recovering SUPER well

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Posted by jamie18, Sat, Nov 2 3:49am

Hi @charles,
Thanks so much for checking in! I start 12 rounds of 5FU next Friday, November 8. Waiting to hear back about a clinical trial for an immunotherapy drug for Stage 3 colon cancer patients with Lynch Syndrome. To be honest, I hope I make the control group because [...]

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Posted by charles, Sat, Nov 2 5:39am

Wishing you the best and glad to hear there is now some clarity. A few questions if you don't mind. So your final diagnosis is stage III? Is the clinical trial 5FU and Eloxatin vs immunotherapy alone or in combination with something else? Did you qualify for the trial because [...]

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Tue, Sep 24 7:46pm · @charles · Physician expert answered questions about advanced CRC

Nice answers to many common questions about treating advanced CRC; how to approach neuropathy, options when treatment fails, next generation testing and clinical trials. https://news.cancerconnect.com/colon-cancer/ C [...]

Posted by michael93, Tue, Sep 24 7:45pm

great info - many thanks

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Wed, Nov 6 9:16am · @411769p · Recurrent colon cancer

I was diagnosed with stage 4 colon cancer 5/2017 and all chemo drugs have failed. I have 1 last option for Stivarga and it does'nt sound to hopeful. Does anyone know of any new chemo drugs available. I was also told that I do not qualify for any clinical trials.

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Posted by charles, Wed, Nov 6 8:24am

So for the mean time you have no targetable mutations and will try Stivarga?
C

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Posted by 411769p, Wed, Nov 6 9:15am

Correct. I'm currently taking Sivarga now but it's not working.

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Sat, Nov 2 5:15pm · @charles · New Diagnosis of CRC

Posted by ly2 @ly2, 7 hours ago Hello everyone my husband been diagnose with colon cancer. Lots of polyps been removed and one cannot be remove due to its massive in size and its on the bottom of the intistine. He had sigmoidoscopy, CT scan and this week he will have [...]

Posted by 360sparky1998, Wed, Aug 28 10:45am

With my experience, I am a part of a large HMO and it took about a week to get my results. So I has to wait for a Radiologist for the Imaging results(CT Scan, etc.) and then a Lab for the Pathology results. Yes, the waiting is very difficult. What [...]

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Posted by charles, Sat, Nov 2 5:14pm

@ly2 any updates on your situation? Hope an effective treatment plan is coming into focus . Best C

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Wed, Sep 11 10:28am · @charles · Survivorship Issues

As more and more patients survive with cancer the concerns created by cancer and its treatment have expanded and include fear of recurrence, cognitive function, financial issues, sexuality , the impact of long term maintenace and hormonal therapy and the role of diet and exercise going forward. There is a

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Posted by 5201940, Sun, Sep 1 12:39pm

Carol Dragon fly. Have you been checked for Addison's Disease? Chemo often includes lots of prednisones that can affect adrenal glands.. Routine blood work does not show low cortisol levels. Do you have darkening of skin or weight loss.? Tiredness (Extreme) and these are symptoms. Just a suggestion.

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Liked by Marilyn S,

Posted by wildturkey, Sun, Sep 1 11:58am

Hi Brenda, thank you for your message. I'm familiar with Addison's disease, which affects the adrenal glands, but have not been checked for it --I did have a lot of prednisone (a hi-dose 4 months taper + vancomycin and Bactrim to avoid )the possible negative side effects of the prednisone) [...]

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Liked by Marilyn S,

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Thu, Aug 1 7:19am · @jpetroccitto · Alternative therapies

My 61 year old Dad has been diagnosed 2 weeks ago with stage 4 small cell neuroendocrine cancer which apparently is in his liver , bowels , ribs and colon Has anyone seemed any alternative therapies that have success stories? He has already had one round of chemo [...]

Posted by charles, Thu, Aug 1 7:18am

I have not found any alternative therapies to be effective but PRRT developed in Holland is quite promising. https://news.cancerconnect.com/neuroendocrine-tumors/lutathera-pepetide-receptor-radionuclide-therapy-for-nets-CL9gJlm18U6J-DIEwl_uNg/
C

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Thu, Jul 11 2:11am · @skadad · Cryoablation (freezing/thawing) of Color-Rectal Tumors in the Lungs

Hi all -- Just finished up a couple procedures at the Mayo clinic here in Phoenix to freeze my metastasized color-rectal tumors in the lungs. Based on trial results was hoping to buy a year or two off chemo with this; my interventionist who performed the cryoablation is much more [...]

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Tue, Jul 9 7:34am · @sillymom · EpiColon - Septin9 blood test

I recently had the new septin9 blood test done for colon cancer to detect any cancer cells,has anyone else had this done?

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Posted by sillymom, Tue, Jul 9 6:55am

We paid 180.00

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Posted by liberty, Tue, Jul 9 7:32am

seems reasonable - thank you

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Fri, Nov 1 6:19am · @charles · Was Genomic Testing Performed on Your Colon Cancer?

Genomic - biomarker testing is changing the way doctors treat CRC ensuring individuals that can benefit from precision can medicines receive them and that chemo is more appropriately used. How many group members had the CRC tested for genomic abnormalities using Foundation One, Caris, Guardant or other labs. Current research

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Sat, Nov 2 6:00pm · @majorette1962 · Nanoknife procedure

Has anyone had IRE the nanoknife procedure. If you have please state by whom and where. I'm checking it out at Moffitt. Thank you

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Posted by majorette1962, Sat, Nov 2 5:50pm

Charles, my husband could not have the procedure done as a lot of scar tissue from pancreatic surgery and SBRT covered the tumor.
Surgeon said you have to see it in order to know where to place the probes and shock it. His tumor has not become metastatic. We were [...]

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Posted by charles, Sat, Nov 2 5:59pm

Genomic testing is key - new treatments being identified constantly. I wish you the best https://news.cancerconnect.com/pancreatic-cancer/inherited-pancreatic-cancer-risk-mutation-identified-C2CsUdtiwEuDGZznJEO7eA/

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Sat, May 18 5:01pm · @jenblevins · Radiation treatment too soon now scar tissue complications

My husband has stage 4 colorectal cancer spread to his liver. 16 days after diagnosis (that was July 2018) the oncologist had him start Radiation for rectal tumor. No surgery scheduled or planned until chemo reduces tumors rectal & liver. We just met with a surgeon and were told he [...]

Posted by onamission, Sat, May 18 6:12am

Research serrapeptase enzymes effect on tumors and scarring. A recent bone marrow biopsy shows the serrapeptase my wife takes for her PMF. has not allowed the fibrosis and scarring in her marrow to progress in three years. She is using one AST 80,000 SPU.capsule three times a day. Also research [...]

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Posted by jenblevins, Sat, May 18 5:00pm

Thank you, I definitely will research your suggestions. I’m very impressed with this chat room, everyone is So knowledgeable & helpful! I wish I had found this a year ago! I know that we must be our own advocates but I’m shocked such a screw up occurred with my husbands [...]

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Thu, May 16 7:47pm · @jenblevins · Side effects from radiation done too soon

This is my first post. My husband has Stage 4 Colon Cancer. He has a tumor in his rectum and 16 days after being diagnosed he was getting radiation treatment. That was June last year, we just had a surgical appt this past week and were told that he shouldn’t [...]

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Wed, Sep 11 7:25am · @charles · Does anyone else have fatigue?

I noticed several post this week about Fatigue and didnt see a single "thread" for a discussion so i am creating one. Fatigue is incredibly common post cancer treatment and may persist for quite some time. Very important to understand there are several causes and to correct fatigue you often

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Posted by sylv2, Wed, Sep 11 7:22am

Lots of spelling mistakes in that lol its a cpap machine not clap and refered not referee lol

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Liked by Heyjude2838

Posted by charles, Wed, Sep 11 7:24am

Sometimes it seems like it never ends; getting a good night sleep however is key to improving overall well being. and CPAP can help attain this. Best C

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