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Mar 22, 2017 · @fjs06378 · LONG TERM SIDE EFFECTS AND TREATMENT?

I am a 23 yr survivor who was first diagnosed at age 43 with Stage 3.5. I had surgery, radiation, and chemo, but it still recurred in the lung 3 years later, so 1/3 of the lung was removed and I did another year of a different chemo combination. Nonetheless, [...]

Posted by @fjs06378, Mar 21, 2017

Thanks for sharing your story…I am going to find out more about this gabapentin–you didn’t say if it works, but you are the only one on here who seems to be taking it on a regular basis. I read some of the description, so I was hesitant to even suggest […]

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Mar 13, 2017 · @gray28562 · Starting Folfox

I am stage 3 with 2 lymph nodes affected , found two tiny spots on the liver , been to Lineberger Cancer center in Chapel Hill and they did Ostomy and looked at liver physically said there was nothing there (shew) I am bit nervous starting Folfox Monday . Any [...]

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Mar 11, 2017 · @terry1 · 5 year anniversary in April

Hi everyone..my name is Terry and I was diagnosed with colon cancer in March 2012 in my sigmoid colon..I had laparoscopic surgery on April 10 2012 so as u can see it will be 5 years..30 lymph nodes were tested and clear of cancer..with clear margins..I was advised to see [...]

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Mar 6, 2017 · @cancerconnect · Tips on How to Get The Most From Your Doctor

Diagnosed with Colon Cancer: 10 Tips on How to Get The Most From Your Doctor, read here: http://news.cancerconnect.com/diagnosed-colon-cancer-10-tips-get-doctor/ Share your tips! [...]

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Mar 10, 2017 · @Elliem · MATCH trial, Next step: Biopsy was yesterday

Hi everyone.. I had my biopsy yesterday. I was there for 5 hours. They wanted to make sure my lung didn't collapse after the biopsy. A little sore, but not bad. Had it done in a small hospital. They are sending my tumor material off to MDAnderson! There they will

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Mar 12, 2017 · @peregrine · Experience with Vectibix

Hello, I just joined CancerConnect. My mother was diagnosed January 2016 with stage 3c colon cancer. The tumor was in her lower ascending colon, where the cecum is located. Tumors here tend to be diagnosed at a later stage, as they can go undetected for a long time. She had

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Feb 25, 2017 · @Elliem · Precision Medicine: MATCH Trial

I'm going in for a biopsy on my lung mets after 3 1/2 years of stage 4 colorectal cancer. The biopsy is on the 27th of Feb. please keep me in your prayers. Then they send the sample off to a major cancer hospital (I hope they fly it first

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Posted by @megm, Feb 21, 2017

Thinking about you!! […]

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Mar 31, 2017 · @Elliem · Lung mets growing: frustrated and scared

My last Ct scan showed that my lung mets were growing. It did not even mention my colorectal tumor. When I asked my oncologist about that, he said "maybe it's gone." Something is wrong with this statement. I've been seeing this oncologist for 3 1/2 years. I feel like I'm

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Posted by @Jan, Feb 14, 2017

God Bless you and your husband!! […]

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Mar 10, 2017 · @junderhill · New DX - Help Please

My wife (32 yrs old) was just diagnosed with stage 4 colon cancer last week (1 invasive adenocarcinoma in sigmoid colon, left side, 2.5 cm, T4bN0M1a G2) Docs either didn't want to confirm how many mets or aren't quite sure but they confirmed she has 10+ mets in her liver, [...]

Posted by @carolcowan, Feb 9, 2017

Jeremy,
I’m Carol, one of the moderators here. I’m a retired RN with experience in pediatric oncology and home hospice care. The negative vibes you’re sensing are related to the liver metastases. They don’t respond well to standard chemotherapy. You don’t need a number of them when it’s “more than […]

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Feb 16, 2017 · @Elliem · Tumor biopsy to look for treatments specific to genetics of my tumor

Hi everyone. My Lonsurf pills have stopped working. I have colorectal cancer with lung mets. My oncologist suggested a MATCH trial. They take a tumor biopsy and send it off to see if there are any treatments available to treat the genetic abnormalities in my tumor. It is scary to

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Posted by @Elliem, Feb 10, 2017

Thank you, that sounds encouraging. Next week I am going for the EKG and the blood draw. I’m not looking forward to the biopsy because they have to go in through my back to get a lung sample. Yuk!
Prayers and blessings,
Ellie […]

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Feb 1, 2017 · @luisa · Exercise Shows Benefits for Metastatic Colorectal Cancer Patients

"Exercise Shows Benefits for Metastatic Colorectal Cancer Patients" New Dana-Farber Blog Post

This new post begins,

"Patients with metastatic colorectal cancer may be able to lower the risk of the disease worsening, and improve their chances of survival, if they engage in moderate daily exercise, according to new research by Dana-Farber investigators.

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Jan 16, 2017 · @Elliem · Experience with Lonsurf

I went through an episode of my Lonsurf making me really sick. Couldn't keep anything down, not even water. When you get dehydrated and don't know it, you begin to despair and lose hope. Luckily I called my infusion center and they had me come in for IV fluids containing

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Jan 17, 2017 · @veryconfused6 · Confused- what's next

Hello everyone. I was wondering if anyone could offer me some advice. I was taken into hospital after a ct scan picked up a perforated colon. I had been unwell for around 6weeks prior to this. I was operated on 3 days later. They removed a large tumour and 28

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Jan 10, 2017 · @stage4 · Considering supplements

Does anyone have any information about using supplements such as Tumeric Extract and Ginger Extract while receiving oral tablet chemotherapy treatments? Though these supplements are supposed to be beneficial, we've also read that they can prevent the chemo drug from working properly. Any feedback on this? Treatment is for stage

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Jan 7, 2017 · @fmmarcus · Share experience with Stivarga

I will be going on strivarga soon. I have questions. When is the best time to take it. Some take it at night before bed, others in the morning with a low fat meal. Also I would like to know what side effects experienced by people on strivarga. Thanks

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Posted by @megm, Jan 5, 2017

Hi @fmmarcus, I am one of the moderators here and will message the other members of the group to see if they can share their experience with you. What do your doctors or pharmacist suggest? […]

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