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Jun 11, 2017 · @pickthis · Stage 3a Colon Cancer 68 yr old male

My dad fell from his dump truck and fractured his pelvis (left acetabulum) on april 20th, 2017. While in the hospital he also caught pneumonia and his lungs filled up causing an aspiration and going code blue. They said he wouldn't make it through the night. He did .. and [...]

Posted by pickthis, Sat, Jun 3, 2017 12:05pm

Thank you so much. There was no fight this morning. I was ready to just say we are going to the doctors this morning but he was feeling so brutal he just said okay. You were right Carol!!! He has a prostate infection which will take two-three weeks to heal

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Posted by pickthis, Sun, Jun 11, 2017 5:55pm

Hello again ... my dad is still on meds for his infection but his right shoulder is now paining him even more than before and also has the same pain on the side of his right ribs and it looks swollen. The pain on his shoulder is at the top

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May 18, 2017 · @hollyd · Questions for my surgeon

I have my last appt. today with my surgeon, before being turned over to oncology. I usually have a long list of questions (which he answers about 80% before I ask questions). This time my list is very short & mostly consists of activity levels & progression of what I [...]

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Jun 7, 2017 · @hollyd · Newly diagnosed

I was diagnosed with colon cancer on April 25th, had surgery on May 4th, and subsequently diagnosed with stage 3 colon cancer on May 9th. I am completely & totally overwhelmed. Physically I'm healing up well, but my emotions have completely tanked. I will start chemo 6 weeks post-op, but [...]

Posted by katie5963, Sun, Jun 4, 2017 10:59am

@elliem good to hear from you again...and really glad you have a new oncologist to consult with. Keep fighting girl! Prayers being sent your way!

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Posted by pajamas35, Wed, Jun 7, 2017 6:27am

Holly,
I am like you, diagnosed on my 51st birthday, stage 3 with one bad lymph. Usual chemo. Best advice, though very cliche- take it moment by moment. Also, make sure you are confident in your doctors.

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May 11, 2017 · @seachange · 85 year old father diagnosed with stage 4 terminal colorectal cancer.

His tummy area is full of tumors. His colonoscopy photos are horrifying with great black holes everywhere. His liver has mets and a tumor has grown through the back of his bladder into the bladder lumen. His lower lung lobes are bilaterially filling sith fluid, which the docs are calling [...]

Posted by carolcowan, Thu, May 11, 2017 1:25am

seachange,
I'm Carol, one of the moderators here. I'm also an RN and I spent most of my career in home hospice nursing. I'm really sorry that your father has all of those serious problems. I see what you said about dementia, does he understand what's going on at all.

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Posted by carolcowan, Thu, May 11, 2017 8:33am

There's something else I need to mention for anyone who is making a decision about whether to use TPN (IV nutrition) at the end of someone's life. Because it's an infusion, it's sometimes viewed as a treatment. It can also be viewed as a "life support" measure by family, friends,

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May 19, 2017 · @worellmtaylor · Clinical Trials

Everyone reacts differently but I'm just wondering if anyone of you has gone through or is going through the Irinotecan + Cetuximab combined with Avastin (only some rounds). My mom is going to start this treatment Wednesday. I've tried to research the best I could to prepare.. TGIF :) [...]

Posted by Elliem, Fri, May 12, 2017 12:26pm

Thank you for your kind words. We are put on this earth to give support to one another.

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Posted by katie5963, Fri, May 19, 2017 7:43am

@elliem thinking of you this morning...how are things going? Beautiful day where I am, hope where you are too.
Katie

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May 4, 2017 · @worellmtaylor · fear of the unknown, reaching for a hand

Hello, I am a 24 year old daughter to an awesome 48 year old mother. October 25th 2015 (a rainy cold sunday) she was told she had advanced stage 4 colorectal cancer that had spread to her liver, lungs and lymph nodes. If it hadn't been found then she would've [...]

Posted by janny, Thu, May 4, 2017 12:51pm

@worellmtaylor I am heartbroken for your news I will keep you all in my prayers, when I was diagnosed with Colon Cancer my fear was not being able to meet my grandson (my daughter in law was pregnant) or seeing my daughter walk down the isle... what helped me though

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Posted by worellmtaylor, Thu, May 4, 2017 3:19pm

@Janny Thank you. I am defiantly hopeful!! I know for me there are certain scan visits and sudden sick spells for her that just kind of slap me in the face and reality sets in again.

God bless, I wish you and your family the best
xo

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May 2, 2017 · @Elliem · Hi, my name is Ellie. I have begun a new chapter in [...]

Hi, my name is Ellie. I have begun a new chapter in my cancer journey. I would like to hear from others who have stopped chemo and are still going strong. After 3 1/2 years of treatment for stage 4 colorectal cancer with lung mets, I have chosen quality over [...]

Posted by Jan, Fri, Apr 28, 2017 5:28pm

Best of luck keep positive!!! ❤️❤️

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Posted by jayman, Tue, May 2, 2017 9:47am

Ellie, I am not on chemo.  I am in remission.  I have not reached the point where my tumors have come back.  It has been about two years since my surgery, and ongoing CT scans show no return of detectable cancer.  I have no illusions, however, that I am cured.  It

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Apr 20, 2017 · @jillw · My partner was diagnosed with stage3 colon cancer march 7 through emergency [...]

My partner was diagnosed with stage3 colon cancer march 7 through emergency perforated bowel surgery. He will start the FOLFOX chemo treatment next week after his upcoming PET scan this week. I don't like his oncologist because he is only interested in getting him into chemo. He has not talked [...]

Posted by jayman, Thu, Apr 20, 2017 8:13am

Jill, You and your partner are in this together.  Your partner, I hope, agrees.  It would be best to straighten out the relationship with the oncologist.  Clearly in one voice get the answers to your concerns.  What are the doctor’s main concerns?  If the relationship with the doctor improves, great.  If

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Posted by bandofsisters1, Thu, Apr 20, 2017 10:16am

Protein is important so muscle mass is not lost. However, I have found while on chemo that I am having trouble eating fresh fruits and vegetables. Twice now I have gotten sick from eating a salad. As I understand it, the immunity cancer patients has is low and may not

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Mar 31, 2017 · @conlyfamily · Cancer Treatment Centers of America

My husband was dx in April 2015, had resection of colon tumor in April 2015. Then he did 6 mos folfox chemotherapy from May-Oct 2015. Had spots in lung entire time, started to grow in 2016. Had lobectomy of right lung in Sept 2016 and received terminal diagnosis in Jan [...]

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Mar 30, 2017 · @hoardsmith · Colonoscopy screenings save lives.

I feel so lucky. Six months ago when I was age 57, my doctor thought I should get a colonoscopy just because I had never had one. I am glad I did. The screening revealed a huge polyp growing in my gut just waiting to become cancerous. Had I not [...]

Posted by carolcowan, Thu, Mar 30, 2017 8:16pm

Maybe someone will go ahead and get their colonoscopy after reading your post. Thanks!
Carol (a moderator here)

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Mar 31, 2017 · @Elliem · I Saw my oncologist today. I've been off chemo for 5 or [...]

I Saw my oncologist today. I've been off chemo for 5 or 6 weeks. He said I have finished all the standard chemo. I have also taken xeloda, Stivarga and Lonsurf pills. He said if my cancer cells contain enough of a certain protein, he can ask for Pembro on [...]

Posted by katie5963, Thu, Mar 30, 2017 1:50pm

@elliem Keep the faith. While he does protein check, time to look for a trial. This is from the NCI website, https://www.cancer.gov/about-cancer/treatment/clinical-trials

Looking for a Clinical Trial?
With our new basic search form, you can find a trial or contact the NCI for help via phone, email, or online

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Posted by Elliem, Fri, Mar 31, 2017 7:14am

Thank you so much. God has more power than any oncologist on this earth!
Prayers and blessings,
Ellie

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Oct 5, 2017 · @rn59pollyo · I am new to this group. My spouse newly diagnosed with Stage [...]

I am new to this group. My spouse newly diagnosed with Stage 3 colon cancer with mets 20 lymph nodes. Anyone out there with similar diagnosis? [...]

Posted by cghow, Thu, Oct 5, 2017 9:07am

What type of chemo were you on?

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Posted by bethbourg, Thu, Oct 5, 2017 10:28am

A positive outlook shines through in your post! Good wishes. Aveeno sent my husband a skin care kit when he was on Erbitux. I forget how I stumbled upon the link. I would imagine a little computer research would find it.

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Mar 28, 2017 · @Elliem · Is immunotherapy good for all types of cancer or do you have [...]

Is immunotherapy good for all types of cancer or do you have to have a specific type before they will try it? Are Stivarga and Lonsurf immunotherapies or are they chemo? My oncologist has kept me alive for 3 1/2years, (colorectal with lung mets)but he seems to be out of [...]

Posted by Elliem, Mon, Mar 27, 2017 5:52pm

I am amazed that you said this. I asked the very question at my husband's meeting today with his ablation doctor. He looked up my records and showed me that my lung tumor is too close to my aortic valve(I think he said "valve"). I have 4 cancer mets in

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Posted by fmmarcus, Tue, Mar 28, 2017 11:09am

I suggest you ask your dr to contact the drug company that administers keytuda to see if they will offer you keytruda since you were on it before

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Mar 22, 2017 · @Elliem · I got the news yesterday that there wasn't anything found for me [...]

I got the news yesterday that there wasn't anything found for me during the MATCH trial analysis. I cried for awhile and felt sorry for myself. But I am still here, I feel good and today is a new day full of life and hope. Who knows what wonderful cures [...]

Posted by katie5963, Wed, Mar 22, 2017 5:10pm

Ellie,
No matter how tough your day may be, you always find the light. I admire your inner strength! Like you, I always believe there is hope...each day a new beginning...and I hope you keep sharing with us...and that we will keep sharing anything we discover. Maybe even share some

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Posted by Jan, Wed, Mar 22, 2017 6:13pm

@Elliem praying for you!!! Love your positive attitude!!!

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Mar 20, 2017 · @slmenc1966 · Was it worth it?

Does anyone else feel like they fought so hard to beat cancer and did but it completely ruined their lives with all the long term side effects and additional problems caused by the treatments and surgeries????? Whats the point when life is harder now? [...]

Posted by slmenc1966, Mon, Mar 20, 2017 4:00pm

My last treatment was 11/2011 so quite a good while.

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Posted by slmenc1966, Mon, Mar 20, 2017 4:04pm

I live in fear not only of cancer returning but everything else that has gone wrong since with my health because of the treatment..I'm always waiting for the other shoe to drop!!

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