Skip to Content

Welcome to the CancerConnect Online Support Group for Colorectal Cancer Patients and Caregivers. Your story matters! Click Join Now to register for the community and join the conversation.

Oct 3 8:11am · @pkartmann · Declining the adjuvant chemo in Colon & Rectal Cancer

Anyone that can share their story after declining the chemo? [...]

Posted by charles, Oct 3 6:38am

George - what a great outcome. Your situation highlights the importance of surgically removing "oligometastatic" disease. Not all cancer centers offer surgery for mets and this can and does lead to cure. I am curious, did you ever have NGS testing on your cancer? Any biomarkers? Best C

Posted by georgebeker, Oct 3 8:10am

Thanks for your kind words. As to your questions, no, I did not have any such testing. Recall that my bout with the original tumor and the lung mets was some 6-1/2 and 8 years ago and (if it was available) the decision was to not do testing since myl [...]


Sep 15 6:22pm · @klwilliamson · stage 4 colorectal cancer in Colon & Rectal Cancer

I am 61 years old. I was diagnosed with Stage 4 Colorectal Cancer in May of 2018. I had to have a colostomy but had it reversed within 8 months of being diagnosed. My cancer numbers (CEA) started to climb a little by little after about a year and half [...] [...]

Sep 15 3:05pm · @pkartmann · Adjuvant chemo for Stage 2B in Colon & Rectal Cancer

Who has experienced this? How difficult was the chemo? 


Posted by pcedarman, Sep 15 2:43pm

This a very scary and humbling experience that none of wanted or expected. Not a single person in my family has or had colon cancer. We fight, share our knowledge and experiences help each other and future patients. Good luck. We all need the prayers! Thank you for yours.

Posted by bills, Sep 15 3:04pm

PK, I was stage 3b with 3 involved lymph nodes. I had surgery and then folfox 6 , 12 treatments. It's been 9 years and all is well. Be aware that Oxyllaplatin causes neuropathy so keep this at top of mind and in the conversation with your Oncologist. They are [...]


Sep 7 12:06pm · @rasubida · Colorectal cancer stage 2 and 2 in Colon & Rectal Cancer

I'm stage 2 T3NOMO colorectal cancer since 2018 got surgery followed by oral chemotheraphy for 6 months. My concerned is my CEA levels are increasing from 1.5 to 7! Any advice how to lowered or improved my cea levels? Can turmeric increase your cea levels? [...]

Aug 27 2:42pm · @pcedarman · DOTA SCAN in Colon & Rectal Cancer

Can anyone provide background and/or links to information on these type scans? What are they for? What information can they provide? [...]

Aug 21 9:04am · @franciscogueco · Is Adjuvant Chemotherapy Necessary? in Colon & Rectal Cancer

I am weighing the benefits of undergoing adjuvant chemotherapy versus risks of adversenside effects. Histopathology result after resectioning surgery for colorectal cancer is T2N0Mx. Is it beneficial to undergo CAPOX chemotherapy? Furthermore, if ever I decide to undergo CAPOX Chemotherapy, will the 3 month treatment do? I hope you could [...] [...]

Posted by charles, Aug 21 6:11am

Sounds like you have a stage I or IIA colon cancer - this means it was caught very early and there is unlikely to be spread outside the colon. Current clinical studies do not support the routine use of adjuvant chemotherapy for cancers of this stage. I of course [...]

Posted by georgebeker, Aug 21 9:03am

I had a stage 1 CRC. Resection and no involvement of any lymph nodes. No chemo recommended. The CRC should have stopped there. Found two mets (one in each lung) 18 months later.. Resections removed all the bad guys (via little VATS slits) and 6 months of chemo (FOLFOX). Now [...]


Liked by pkartmann

Sep 15 2:40pm · @marydixon · Advanced colon cancer stage 4 spread to distant lymph nodes in Colon & Rectal Cancer

Hi there, My dear friend has just been diagnosed with stage 4 bowel cancer. It is T4M1 and has spread to the local lymph nodes and also the distant lymph nodes in the neck and chest. She is a very healthy and fit 55 year old. She is starting [...] [...]

Posted by charles, Sep 10 7:22am

Glad to hear your sister is responding to treatment and it sounds like a good plan. Has the doctor explained the goal of therapy to you? Best C

Posted by bills, Sep 15 2:38pm

I was diagnosed with stage 3b colon cancer at 52. I had surgery followed by folfox6 chemo for 6 months. I'm 61 and all is well to this point. I realize T4M1 is different but I wish you and your good friend the best ! Positive thoughts and prayers going [...]


Liked by pkartmann

Aug 18 2:09pm · @marydixon · Advanced bowel cancer in neck and chest lymph nodes in Colon & Rectal Cancer

Hi there My dear friend has just been diagnosed with stage 4 bowel cancer. The problem is that the cancer has spread from her bowel to the local lymph nodes, and also to the distant lymph nodes in her neck and chest. She was told it is T4M1. She is [...] [...]

Aug 14 8:23am · @pcedarman · Cancerous Lymph Nodes in Colon & Rectal Cancer

Is there any significance to the number of removed colon area lymph nodes that are cancerous? [...]

Posted by charles, Aug 11 6:40am

Yes - in the absence of metastatic disease the number of nodes is very prognostic and helps determine therapy. Stage 1 to 3 cancer is determined by number and size of nodes. Best C

Posted by pcedarman, Aug 14 8:22am



Aug 2 9:15am · @pcedarman · Right Hemicolectomy (colon) / MWA (liver) in Colon & Rectal Cancer

Just had these procedures in open procedure. It took about 5 days for my colon to "wake-up" after surgery. And 9 days for digestive system to start working more smoothly and go home from the hospital. It will take more time for bowel function to return to normal. Everything went [...] [...]

Jul 9 10:55am · @pcedarman · Differences between MRI - quality and contrast in Colon & Rectal Cancer

Does anyone know about the differences between MRIs and the contrasts used? As lay people we can hear "MRI," and assume the process is generic and standard. So an MRI at one facility is the same, basically identical to one at another facility. I'm thinking this is an incorrect assumption. [...] [...]

Posted by slgja5, Jul 8 8:14pm

The contrast is a type of dye that they use for the test. It goes in the IV

Posted by pcedarman, Jul 9 10:54am

Thanks. Sorry my message wasn't clear. Has anyone found that MRIs are NOT always "apples-to-apples." The CONTRAST and MACHINE USED, and the TECHNICIANS, make a difference. I'm dealing with an MRI (in March 2020) and an MRI (in June 2020) from different facilities that used different CONTRASTS, MACHINES and TECHNICIANS. [...]


Jul 8 11:19am · @10christa · colon cancer after 6/29 colonoscopy in Colon & Rectal Cancer

Hello, June 29th I had colonoscopy which shows a obstructing mass at hepatic flexure. I am 52 yr old female and have been having lower crampy abdominal pain. I feel like I was just given a death sentence, it is 3cm x 12 mm in diameter in size. Going to [...] [...]

Posted by georgebeker, Jul 8 8:58am

A question - have they done an MRI (or CT)?

As an aside, I had a Stage 1 CRC 8 years ago. No lymph or other involvement and it was surgically completely removed (the gold standard). Should have stopped there. Unfortunately, 18 months later, we found the CRC had [...]

Posted by pcedarman, Jul 8 11:18am

Great advice and congrats on your success! Great encouragement for we who are on a similar journey. Thank you.


Jun 30 10:35am · @pcedarman · Right Hemicolectomy - Why such Large Section for Small Mass? in Colon & Rectal Cancer

A right hemicolectomy removes the entire ascending colon. I have a mass in the bend between the ascending and traverse colon. Does anyone know why they remove the entire right colon even if the colon mass is local? Might have something to do with blood flow to the colon, but [...] [...]

Posted by pcedarman, Jun 30 10:26am

thank. I will request that the medical team consider NGS testing.

Posted by charles, Jun 30 10:34am

Its best done on tissue and if positive for MSI-H will avoid chemo altogether. (other markers impact treatment as well) They may have done already if you had a biopsy. Its also is the basis for the next generation of treatments should you experience a recurrence.


Jul 19 12:26pm · @charles · CRC Clinical Trials in Colon & Rectal Cancer

Posted by nikip @nikip, 3 minutes agoIn reply to @charles "Jamie the site is to learn, share information and experiences and provide..." + (show)Hello. My name is Niki and I have stage 4 colon cancer and have exhausted all approved treatments and am now researching test trials. Is stem cell [...]


Posted by charles, Jul 19 12:03pm

They are mostly local and sometimes take the form of a "second opinion" where a leading doctor in a specific area will put a treatment plant together with a community oncologist and work to jointly manage the patients. This of course doesn't help with clinical trial or treatment selection that [...]

Posted by pcedarman, Jul 19 12:25pm

All the issues cited are because of the problems and do not seem to be scaleable, industry accepted standard solutions. For example, not one MD, i.e., GP, cancer surgeon, oncologist, interventional radiologist, general surgeon, etc, in the metro area that I live in suggested any accepted industry process or steps [...]


Jun 24 4:09pm · @HesterBIDMCModerator · Financial impact of cancer and COVID-19 in Colon & Rectal Cancer

Has has the pandemic made your financial concerns more pressing? There are resources that can help, and I write about them in today’s blog. Here is the start and a link: Financial burden is another pressing problem created by cancer and COVID-19. Going through cancer is always expensive and [...] [...]

Please login with your account or, if you aren't a member, join now.



Join Now