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5 days ago · @skadad · Cryoablation (freezing/thawing) of Color-Rectal Tumors in the Lungs

Hi all -- Just finished up a couple procedures at the Mayo clinic here in Phoenix to freeze my metastasized color-rectal tumors in the lungs. Based on trial results was hoping to buy a year or two off chemo with this; my interventionist who performed the cryoablation is much more [...]

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Tue, Jul 9 7:34am · @sillymom · EpiColon - Septin9 blood test

I recently had the new septin9 blood test done for colon cancer to detect any cancer cells,has anyone else had this done?

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Posted by sillymom, Tue, Jul 9 6:55am

We paid 180.00

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Posted by liberty, Tue, Jul 9 7:32am

seems reasonable - thank you

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Tue, Jul 2 11:56am · @charles · Genomic Testing is Changing the Treatment of CRC

Genomic - biomarker testing is changing the way doctors treat CRC ensuring individuals that can benefit from precision can medicines receive them and that chemo is more appropriately used. How many group members had the CRC tested for genomic abnormalities using Foundation One, Caris, Guardant or other labs. Current research

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3 days ago · @denisesongs · Sugar...

https://www.theatlantic.com/health/archive/2019/05/food-cancer/589714/

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Posted by Jan, Fri, Jul 5 7:20am

Prayers to you Carol!🙏🏻🙏🏻

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Posted by cherylwitherell, 3 days ago

Hello Carol,
I am new here. I am just blown away by your post. I will add all of your family to my prayers,. Thank you for sharing
Cheryl Witherell

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Liked by amf3, Andrée

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Sat, May 18 5:01pm · @jenblevins · Radiation treatment too soon now scar tissue complications

My husband has stage 4 colorectal cancer spread to his liver. 16 days after diagnosis (that was July 2018) the oncologist had him start Radiation for rectal tumor. No surgery scheduled or planned until chemo reduces tumors rectal & liver. We just met with a surgeon and were told he [...]

Posted by onamission, Sat, May 18 6:12am

Research serrapeptase enzymes effect on tumors and scarring. A recent bone marrow biopsy shows the serrapeptase my wife takes for her PMF. has not allowed the fibrosis and scarring in her marrow to progress in three years. She is using one AST 80,000 SPU.capsule three times a day. Also research [...]

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Posted by jenblevins, Sat, May 18 5:00pm

Thank you, I definitely will research your suggestions. I’m very impressed with this chat room, everyone is So knowledgeable & helpful! I wish I had found this a year ago! I know that we must be our own advocates but I’m shocked such a screw up occurred with my husbands [...]

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Thu, May 16 7:47pm · @jenblevins · Side effects from radiation done too soon

This is my first post. My husband has Stage 4 Colon Cancer. He has a tumor in his rectum and 16 days after being diagnosed he was getting radiation treatment. That was June last year, we just had a surgical appt this past week and were told that he shouldn’t [...]

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Tue, Jun 25 6:33pm · @charles · Does anyone else have fatigue?

I noticed several post this week about Fatigue and didnt see a single "thread" for a discussion so i am creating one. Fatigue is incredibly common post cancer treatment and may persist for quite some time. Very important to understand there are several causes and to correct fatigue you often

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Posted by heyjude2838, Mon, Jun 24 10:17pm

I was hit with the fatigue also..and was told to expect it and live with it. That’s not me! I take a supplement called Mitocore. I started off with two a day, and was down to one a day after a month. I find if I forget to take it, [...]

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Posted by wildturkey, Tue, Jun 25 6:32pm

Hi heyjude, Thanks for your reply--I'm glad Mitacore is working for you--I'd asked my oncologist about it when you posted the first time, and replied at length why it wouldn't be safe for me,. She recommended the L-carnitine tartrate, which I posted about--am taking now 500 mg (one tablet) at [...]

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Fri, May 17 11:21am · @360sparky1998 · Recent Diagnosis: Looking for Direction

Hello all: Not sure where to start or if I'm even in the right group. So why not my background and if I should move a Moderator could let me know. I'm a 64 year old Male. After almost 10 years of Negative FIT Tests, I had a Positive Test this past [...]

Posted by 360sparky1998, Fri, May 17 10:22am

Thank you Charles. I'm actually communicating with Seattle CCA right now. Somewhat hung-up in the referral process regarding Kaiser(mine is different Kaiser than in Seattle) and them right now. Once we can hopefully cut the "Gordian Knot" of administrative stuff, I hope to work with them. I was also told [...]

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Posted by charles, Fri, May 17 11:20am

Wish you the best. For your situation either place is fine; they recommendation based on what i know (not everything) about your situation will be surgery.
C

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Thu, May 16 12:37pm · @skadad · Dealing with Chemo Rash

Hi All -- Looking for suggestions on dealing with chemo rash. I am currently taking Vectibix which has dropped my CEA level quite a bit but also brought on chemo rash. Using an oatmeal-based organic shampoo and Aveeno baths which help the itching somewhat; Eucerin "calming" ointment for the face. [...]

Posted by susan1091, Mon, May 13 11:12pm

Thanks for your reply. I am in northeastern USA. I had minimal sun exposure prior to developing this rash because it was late winter here. I do use a high SPF sunscreen regularly. The rash is an expected side effect..the distribution was the bizarre part until the dermatologist's explaination. The [...]

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Posted by susan1091, Thu, May 16 12:36pm

Yes I know rashes are common and to be expected. The surprise was the unusual rash distribution during the winter, at a time of zero sun exposure to these parts of my body. This rash is all due to previous sun exposure, resulting in many undetectable skin cancers that have [...]

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Wed, May 1 10:39am · @luisa · New Research on Early-Onset Colorectal Cancer in Women

Increased Risk of Early-Onset Colorectal Cancer in Women, According to Dana-Farber Research Women who are obese have nearly double the risk of developing colorectal cancer at a young age than women with a normal body mass index, a recent study by investigators at Dana-Farber and other institutions has found. The complete story [...]

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Sun, May 5 7:18am · @account · colon cancer

i have a friend who diagnosis is colon cancer with liver mutiple metases,if went to dana-farber what is the process and ask for second opinion [...]

Posted by redsher, Sun, May 5 7:14am

When I got a second opinion at Dana Farber they wanted copies of my CT scans and treatment/biopsy notes (I had already had surgical removal of my tumor - stage 3).

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Posted by charles, Sun, May 5 7:17am

Exactly; as a general rule of thumb the more info you have the better the second opinion can be. The most useful info is scans that show where the cancer is, previous treatment history and any lab test on the cancer or blood that measure biomarkers or info about the [...]

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Fri, May 24 7:50am · @charles · Participating in Clinical Trials-Share Your Experience

Many individuals post questions about what its like to participate in a clinical trial? Did you get better care? Were costs covered? Was it more of an inconvenience? Would you recommend trial participation based on your experience? Please share your experiences...

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Posted by tcatherine, Fri, May 24 4:31am

I opted for a clinical trial so I would have access to the latest drugs. I am receiving the drugs, no placebo. The drug that is being tested is free but I have to pay for the revlimid. I started treatment in 2016 and went into remission in 2018. Initially [...]

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Liked by Elise

Posted by charles, Fri, May 24 7:49am

A very rational approach i wish i could convince more people to consider. Access to potentially better treatment, at a world class cancer center, at lower costs, with interested dedicated physicians. You just summarized the rationale for clinical trial participation. Trails are not for everyone, but everyone should evaluate whether [...]

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Liked by Elise, JulianaB

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Mon, Mar 25 10:59am · @charles · Avastin vs no Avastin for advanced colon cancer?

Father in law received two opinions for treatment of his advanced colon cancer. One dr advised for Avastin + chemo, the other just chemo. What have others been recommended? What has your experience been with Avstin? Henry [...]

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Tue, Feb 12 9:18am · @luisa · From Dana-Farber: What Are the Signs and Symptoms of Colon Cancer?

From Dana-Farber: What Are the Signs and Symptoms of Colon Cancer? Most patients diagnosed with colorectal cancer do not have symptoms, but there are some signs to be aware of. View this helpful short video with Dana-Farber gastrointestinal medical oncologist Jeffrey Meyerhardt, MD, MPH. View the video at https://www.facebook.com/danafarbercancerinstitute/videos/650337448715284/ . [...]

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Wed, May 8 12:08pm · @rosao · Worried mother...Recurrent Colon Cancer

I am frustrated, my 22 yr old w/ stage 4 CRC has another tumor in his left lung. He had a lower lobectomy on that lung last June. September '18 a tumor was found the lower rt lung, In Jan '19 it showed some progression. The Dr.s' keep telling him

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Posted by storyteller, Wed, May 8 10:02am

Sending you prayers of healing and hope!

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Posted by momfundy, Wed, May 8 12:07pm

Is it true that fistula formation is a side effect of avastin? Once the surgery was performed he was inundated with problem after problem. Obstruction, abcess, fistula formations we were never able to have him well enough to resume his treatments. His original diagnosis was stage IV of the rectal [...]

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