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10 hours ago · @sally123 · Neuropathy Issues

Neuropathy issues - Does it get better after treatment is over?

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Posted by breg, 11 hours ago

Thanks for sharing your experience. It is so good to know that it may disappear almost completely.

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Posted by csmorgan, 10 hours ago

I ice both hands and feet with every treatment. I still have significant neuropathy in feet up to shins which create weakness and a bit of instability. Hands are also affects but not as bad. Dexterity is somewhat less and finger tips can be pretty uncomfortable. I continue to ice [...]

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Tue, Jan 28 7:34am · @sallystrong123 · diet advice

Hi. I'm new to this group. I was diagnosed in late September with colon cancer which metastasis to my liver. I'm receiving chemo treatments every other week and doing better than I thought I would. I'm looking to find a diet plan that gives daily menus, recipes, and shopping lists. [...]

Posted by sallystrong123, Mon, Jan 27 9:03am

Thank you.

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Posted by bluebird81x, Tue, Jan 28 7:33am

I follow the Beachbody program. I’ve been on a lot of diets over the years and this has been the easiest and best one for me. You can check out their website Beachbody and the 21 day fix program. My doctor told me about it. They have recipes and tools [...]

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Mon, Feb 17 4:44am · @charles · What is a VAD or Porta Cath?

I see lots of questions about VADs and Porta Caths- share your experience here: https://news.cancerconnect.com/treatment-care/what-is-a-venous-access-device-and-what-types-are-used-for-cancer-patients-dujU_hZCSEOBQb4_F18JBw

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Posted by gemini613, Tue, Feb 11 4:59pm

No, the scans do not hurt. I have great veins they access for the dye and the scans are done at a different hospital than where I get my chemo.

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Posted by icrazyhorse, Mon, Feb 17 4:43am

My wife (72) got her Smart Port surgically implanted in November 2011 - she gets it flushed monthly - it's been through 6 FL treatments - no problems.

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Liked by Sandra

Dec 19, 2019 · @charles · Animal or PET Therapy

Would love to hear individuals experiences with PET or Animal therapy as part or an overall treatment and recovery strategy for cancer. https://news.cancerconnect.com/treatment-care/healthcare-is-going-to-the-dogs-and-other-pets-BNlhT_rIfUWki7MHpj8iyA/ C

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Posted by stageivsurvivor, Dec 19, 2019

I've incorporated various forms of exercise (cycling, biking, walking, hiking, jogging) in my recovery from Stage IV Pancreatic Cancer. A few elderly residents who live nearby and have physical challenges were looking for someone to exercise their pets. I figured their dogs would make good jogging companions and now we [...]

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Posted by bonniea, Dec 19, 2019

Outstanding idea, everybody wins!

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Wed, Feb 5 6:32pm · @jamie18 · hair loss with FOLFOX

Hi All, I've just completed round 3 and started losing some hair in the comb. Actually finding strands of hair everywhere. I thought it wouldn't bother me, but it's a bit of a mess and I keep wondering how much I will lose. It seems complete hair loss isn't [...]

Posted by georgebeker, Wed, Feb 5 7:51am

My experience (6 months of FOLFOX at UVA Cancer Center following removal of two CRC mets (one in each lung removed in early 2014) was very little, if any, hair loss. Was 69 atthetime and male. Didn't have a lot to lose but no loss was seen.

Delighted to [...]

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Posted by charles, Wed, Feb 5 6:31pm

Its quite variable for reasons i dont understand but IT WILL GROW BACK? A few tips here:
https://news.cancerconnect.com/treatment-care/side-effect-of-treatment-hair-loss-R5YNQTtJbUiXXai58JT0rg
https://news.cancerconnect.com/treatment-care/cancer-chemotherapy-and-hair-loss-cOILlC2OU06DoA4xKwBsJg
Best C

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Dec 12, 2019 · @jamie18 · positive experiences with dexamethasone

Hi All, I'm looking to hear your positive experiences with dexamethasone. I'm gearing up for my third round of chemo on Thursday, and I haven't had dexa yet. Last time I opted out because of the side effects. But I'm so over the nausea, and also the zombie state [...]

Posted by charles, Dec 5, 2019

Dex can certainly help with nausea in my experience. The issue like so many is how you react; some people experience insomnia, gi side effects etc, others experience no side effects at all. There are lots of ways to control nausea - i found green tea and ginger works pretty [...]

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Posted by jamie18, Dec 12, 2019

I responded well to dexa, well enough that I decided to opt out of the clinical trial control group I was participating in so that I can take the standard amount of dexa rather than less which was what the trial required. Thanks for your reply--it helped trying it out [...]

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Nov 2, 2019 · @overcomer2019 · Leg, bum and muscle pain

Does anyone experience back legs, bum and muscle pain during chemo/radiation treatment? It feels like sciatica nerve. [...]

Posted by charles, Nov 2, 2019

Does it happen in both legs or just one? The most common reason for this is neuropathy caused by the eloxatin chemo - are you getting eloxatin? Other things can cause this and you should of course bring this to the attention of your doctors. Best C

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Oct 27, 2019 · @charles · Anyone had TACE?

Doctors have reccomeded TACE for a member and they are looking to learn from others about the procedure. How long does it take, is it painful, how long to recovery?C

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Posted by abbylady, Oct 27, 2019

I have not.

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Posted by abbylady, Oct 27, 2019

My treatment was 8 chemotherapy treatments and then surgery. Nothing else.

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Liked by charles

Dec 4, 2019 · @jamie18 · 31 with stage III colon cancer

Hi All,

My name is Jamie and I had surgery last week to remove a colon tumor the size of my fist. I just found out a few days ago that the tumor tested positive for adenocarcinoma, which they also found in 3/40 lymph nodes they took. I'm recovering SUPER well

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Posted by jamie18, Dec 4, 2019

Hi Charles. Yes, my diagnosis is Stage IIIb. Yes, I qualified for the clinical trial (here it is: http://bulletin.facs.org/2019/03/atezolizumab-in-the-adjuvant-treatment-of-stage-iii-colon-cancer-can-pd-l1-inhibition-improve-survival/) because I have Lynch Syndrome. But I am in the control group, so I am not receiving the immunotherapy drug Atezolizumab. I'm actually totally fine with that because I have enough [...]

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Posted by charles, Dec 4, 2019

Understood; FOLFOX is the standard of care and produces a good outcome. I think its great you chose to participate in the trial - so important for us to engage and move new treatments forward. I wish you the best with the side effects and the coming holiday season. C

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Sep 24, 2019 · @charles · Physician expert answered questions about advanced CRC

Nice answers to many common questions about treating advanced CRC; how to approach neuropathy, options when treatment fails, next generation testing and clinical trials. https://news.cancerconnect.com/colon-cancer/ C [...]

Posted by michael93, Sep 24, 2019

great info - many thanks

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Nov 23, 2019 · @411769p · Recurrent colon cancer

I was diagnosed with stage 4 colon cancer 5/2017 and all chemo drugs have failed. I have 1 last option for Stivarga and it does'nt sound to hopeful. Does anyone know of any new chemo drugs available. I was also told that I do not qualify for any clinical trials.

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Posted by 411769p, Nov 6, 2019

Correct. I'm currently taking Sivarga now but it's not working.

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Posted by 411769p, Nov 23, 2019

CEA dropped from 109.1 to 87 but CT scans show tumors have gotten bigger.

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Nov 2, 2019 · @charles · New Diagnosis of CRC

Posted by ly2 @ly2, 7 hours ago Hello everyone my husband been diagnose with colon cancer. Lots of polyps been removed and one cannot be remove due to its massive in size and its on the bottom of the intistine. He had sigmoidoscopy, CT scan and this week he will have [...]

Posted by 360sparky1998, Aug 28, 2019

With my experience, I am a part of a large HMO and it took about a week to get my results. So I has to wait for a Radiologist for the Imaging results(CT Scan, etc.) and then a Lab for the Pathology results. Yes, the waiting is very difficult. What [...]

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Posted by charles, Nov 2, 2019

@ly2 any updates on your situation? Hope an effective treatment plan is coming into focus . Best C

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Sep 11, 2019 · @charles · Survivorship Issues

As more and more patients survive with cancer the concerns created by cancer and its treatment have expanded and include fear of recurrence, cognitive function, financial issues, sexuality , the impact of long term maintenace and hormonal therapy and the role of diet and exercise going forward. There is a

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Posted by 5201940, Sep 1, 2019

Carol Dragon fly. Have you been checked for Addison's Disease? Chemo often includes lots of prednisones that can affect adrenal glands.. Routine blood work does not show low cortisol levels. Do you have darkening of skin or weight loss.? Tiredness (Extreme) and these are symptoms. Just a suggestion.

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Liked by Marilyn S,

Posted by wildturkey, Sep 1, 2019

Hi Brenda, thank you for your message. I'm familiar with Addison's disease, which affects the adrenal glands, but have not been checked for it --I did have a lot of prednisone (a hi-dose 4 months taper + vancomycin and Bactrim to avoid )the possible negative side effects of the prednisone) [...]

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Liked by Marilyn S,

Aug 1, 2019 · @jpetroccitto · Alternative therapies

My 61 year old Dad has been diagnosed 2 weeks ago with stage 4 small cell neuroendocrine cancer which apparently is in his liver , bowels , ribs and colon Has anyone seemed any alternative therapies that have success stories? He has already had one round of chemo [...]

Posted by charles, Aug 1, 2019

I have not found any alternative therapies to be effective but PRRT developed in Holland is quite promising. https://news.cancerconnect.com/neuroendocrine-tumors/lutathera-pepetide-receptor-radionuclide-therapy-for-nets-CL9gJlm18U6J-DIEwl_uNg/
C

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Jul 11, 2019 · @skadad · Cryoablation (freezing/thawing) of Color-Rectal Tumors in the Lungs

Hi all -- Just finished up a couple procedures at the Mayo clinic here in Phoenix to freeze my metastasized color-rectal tumors in the lungs. Based on trial results was hoping to buy a year or two off chemo with this; my interventionist who performed the cryoablation is much more [...]

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