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2 days ago · @sallystrong123 · Neuropathy in hands and feet

Hi. I'm hoping someone will have some advice for me on how to lessen the pain from neuropathy on my hands and feet and now calves. My doctor is going to omit one of my chemo drugs which can cause neuropathy but in the mean time, this is no fun. [...]

19 hours ago · @charles · Coronavirus Coping During Treatment

I thought i would start a thread on the virus we are all facing so we can discuss any questions people might have? The current situation certainly illustrates the increasing importance of "virtual support" groups and "Telemedicine" Has anyone experienced clinic cancellations or other hardships?  https://news.cancerconnect.com/treatment-care/the-coronavirus-and-cancer-IyhiEaXh90ebCLhyvjC9nw

Best C

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Posted by cquin, 1 day ago

You are so right. My father’s prostrate cancer prognosis gave him little chance of surviving 1 year. He was “elderly and lived a long life” was the conventional doctor’s wisdom. However, no one expected that a WWII Normandy Invasion veteran would outlast the grim prognosis. My father survived for 10 [...]

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Posted by judeye, 19 hours ago

Yes and hopefully cancer will go into remission and you will have some time no chemo, only time and energy to enjoy your grand babies

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Liked by knitforzen

Fri, Mar 6 1:48pm · @charles · Its Colon Cancer Awareness Month - You might find this articles useful

https://news.cancerconnect.com/colon-cancer/march-is-national-colorectal-cancer-awareness-month-Y-BLDWBgSkqDNRkvQw_OVg [...]

Thu, Mar 5 12:11pm · @luisa · From Dana-Farber: Lactose Intolerance -- Colorectal Cancer Risk?

Studies suggest that people who consume a lot of milk and other dairy products have a somewhat lower risk of developing colon cancer than those who don’t. But some people are “lactose intolerant” due to a deficiency of the enzyme lactase. As a result, they avoid consuming dairy. Where [...]

Thu, Mar 5 11:59am · @luisa · From Dana-Farber: Lactose Intolerance/Colorectal Cancer--Connection?

A number of research studies suggest that people who consume a lot of milk and other dairy products have a somewhat lower risk of developing colon cancer than those who don’t. But many people avoid or minimize dairy consumption because they are “lactose intolerant,” meaning they have difficulty digesting lactose [...]

Wed, Mar 11 6:02am · @sally123 · Neuropathy-What are Others doing to manage it?

Neuropathy issues - Does it get better after treatment is over?

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Posted by danag, Tue, Mar 10 12:06pm

Notice the meds offered to help only help with neuropathic pain. There is no known effective treatment for numbness

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Liked by Sandra

Posted by ling, Wed, Mar 11 6:01am

Yes Dana, so true. I tried Gabapentin (sp) But it was only for pain, which was minimal. I’ll keep searching for answers. Meantime I’ve got my trusty cane.

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Liked by Sandra

Sat, Feb 29 7:40am · @sally123 · Naturopathic Doctors - Neuropathy

Has anyone pursued a naturepathic oncologist doctor in addition to their treatment for neuropathy, etc. Can they really help. I am still doing the filfurinox treatment and have 2 more to go. My insurance does not have naturepathic coverage.

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Tue, Jan 28 7:34am · @sallystrong123 · diet advice

Hi. I'm new to this group. I was diagnosed in late September with colon cancer which metastasis to my liver. I'm receiving chemo treatments every other week and doing better than I thought I would. I'm looking to find a diet plan that gives daily menus, recipes, and shopping lists. [...]

Posted by sallystrong123, Mon, Jan 27 9:03am

Thank you.

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Posted by bluebird81x, Tue, Jan 28 7:33am

I follow the Beachbody program. I’ve been on a lot of diets over the years and this has been the easiest and best one for me. You can check out their website Beachbody and the 21 day fix program. My doctor told me about it. They have recipes and tools [...]

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Mon, Feb 17 4:44am · @charles · What is a VAD or Porta Cath?

I see lots of questions about VADs and Porta Caths- share your experience here: https://news.cancerconnect.com/treatment-care/what-is-a-venous-access-device-and-what-types-are-used-for-cancer-patients-dujU_hZCSEOBQb4_F18JBw

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Posted by gemini613, Tue, Feb 11 4:59pm

No, the scans do not hurt. I have great veins they access for the dye and the scans are done at a different hospital than where I get my chemo.

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Posted by icrazyhorse, Mon, Feb 17 4:43am

My wife (72) got her Smart Port surgically implanted in November 2011 - she gets it flushed monthly - it's been through 6 FL treatments - no problems.

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Liked by Sandra

Dec 19, 2019 · @charles · Animal or PET Therapy

Would love to hear individuals experiences with PET or Animal therapy as part or an overall treatment and recovery strategy for cancer. https://news.cancerconnect.com/treatment-care/healthcare-is-going-to-the-dogs-and-other-pets-BNlhT_rIfUWki7MHpj8iyA/ C

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Posted by stageivsurvivor, Dec 19, 2019

I've incorporated various forms of exercise (cycling, biking, walking, hiking, jogging) in my recovery from Stage IV Pancreatic Cancer. A few elderly residents who live nearby and have physical challenges were looking for someone to exercise their pets. I figured their dogs would make good jogging companions and now we [...]

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Posted by bonniea, Dec 19, 2019

Outstanding idea, everybody wins!

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Wed, Feb 5 6:32pm · @jamie18 · hair loss with FOLFOX

Hi All, I've just completed round 3 and started losing some hair in the comb. Actually finding strands of hair everywhere. I thought it wouldn't bother me, but it's a bit of a mess and I keep wondering how much I will lose. It seems complete hair loss isn't [...]

Posted by georgebeker, Wed, Feb 5 7:51am

My experience (6 months of FOLFOX at UVA Cancer Center following removal of two CRC mets (one in each lung removed in early 2014) was very little, if any, hair loss. Was 69 atthetime and male. Didn't have a lot to lose but no loss was seen.

Delighted to [...]

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Posted by charles, Wed, Feb 5 6:31pm

Its quite variable for reasons i dont understand but IT WILL GROW BACK? A few tips here:
https://news.cancerconnect.com/treatment-care/side-effect-of-treatment-hair-loss-R5YNQTtJbUiXXai58JT0rg
https://news.cancerconnect.com/treatment-care/cancer-chemotherapy-and-hair-loss-cOILlC2OU06DoA4xKwBsJg
Best C

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Dec 12, 2019 · @jamie18 · positive experiences with dexamethasone

Hi All, I'm looking to hear your positive experiences with dexamethasone. I'm gearing up for my third round of chemo on Thursday, and I haven't had dexa yet. Last time I opted out because of the side effects. But I'm so over the nausea, and also the zombie state [...]

Posted by charles, Dec 5, 2019

Dex can certainly help with nausea in my experience. The issue like so many is how you react; some people experience insomnia, gi side effects etc, others experience no side effects at all. There are lots of ways to control nausea - i found green tea and ginger works pretty [...]

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Posted by jamie18, Dec 12, 2019

I responded well to dexa, well enough that I decided to opt out of the clinical trial control group I was participating in so that I can take the standard amount of dexa rather than less which was what the trial required. Thanks for your reply--it helped trying it out [...]

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Nov 2, 2019 · @overcomer2019 · Leg, bum and muscle pain

Does anyone experience back legs, bum and muscle pain during chemo/radiation treatment? It feels like sciatica nerve. [...]

Posted by charles, Nov 2, 2019

Does it happen in both legs or just one? The most common reason for this is neuropathy caused by the eloxatin chemo - are you getting eloxatin? Other things can cause this and you should of course bring this to the attention of your doctors. Best C

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Oct 27, 2019 · @charles · Anyone had TACE?

Doctors have reccomeded TACE for a member and they are looking to learn from others about the procedure. How long does it take, is it painful, how long to recovery?C

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Posted by abbylady, Oct 27, 2019

I have not.

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Posted by abbylady, Oct 27, 2019

My treatment was 8 chemotherapy treatments and then surgery. Nothing else.

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Liked by charles

Dec 4, 2019 · @jamie18 · 31 with stage III colon cancer

Hi All,

My name is Jamie and I had surgery last week to remove a colon tumor the size of my fist. I just found out a few days ago that the tumor tested positive for adenocarcinoma, which they also found in 3/40 lymph nodes they took. I'm recovering SUPER well

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Posted by jamie18, Dec 4, 2019

Hi Charles. Yes, my diagnosis is Stage IIIb. Yes, I qualified for the clinical trial (here it is: http://bulletin.facs.org/2019/03/atezolizumab-in-the-adjuvant-treatment-of-stage-iii-colon-cancer-can-pd-l1-inhibition-improve-survival/) because I have Lynch Syndrome. But I am in the control group, so I am not receiving the immunotherapy drug Atezolizumab. I'm actually totally fine with that because I have enough [...]

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Posted by charles, Dec 4, 2019

Understood; FOLFOX is the standard of care and produces a good outcome. I think its great you chose to participate in the trial - so important for us to engage and move new treatments forward. I wish you the best with the side effects and the coming holiday season. C

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