Thank you Charles. I always appreciate your insight and input with regards to my question/topic and all the others that I read as well.
THANK YOU so much for all you do ...it is so helpful!

Glad you find it useful - I sure enjoy being part to the community. C

Good you reached out - i do believe the Dr has to be involved and order the test. Do you have a link to the trial? I have a meeting with Natera on monday and perhaps i can help

C

https://www.natera.com/oncology/signatera-advanced-cancer-detection/patients/crc-early-stage-cancer/

Tempus does have a very generous financial aid program and will quickly tell you how much you will be required to pay. My income for 2021 is pretty high yet $100 was the amount I would need to pay for testing, assuming insurance refused to cover anything. Checking with Blue [...]

So NGS testing is a moving target based on the results of ongoing clinical trials. It should be standard of care for anyone with stage IV disease at this point. Insurance probably wont cover stage III testing in most cases but an important thing to remember and communicate to your [...]

I would think not

Good to know- thank you!

I got a chuckle from your reply. 😊

Thank you for your post. I'm trying to find the right balance with nutrition. I like to keep it simple and uncomplicated. My biggest downfall is my sweet tooth. I'm trying to find a healthy substitute for my after dinner sweet craving. Question - I have a bowl of Total [...]

Hi radiation has a cumulative effect so for me the week after I finished my 28 days was the worst. Area was red, irritated, and very sore to touch. I took the week off work. Since I'm a girl especially hurt with urination. I had Biafine cream to use was [...]

Thank you Beth for the information. Blessings to you

His CEA went down 110 points on just one round with LONSURF. Can we take this as a good sign that the drug is being effective? I know it is still early in this treatment.

Yes Lonsurf appears to be working. C

I had robotic surgery to remove a 6.8 cm tumor in my sigmoid colon and 10 inches of my colon in November 2016. Everything went very well and I didn't have any problems.

My first opinion is from Loyola Hospital in the Chicago area, while the second is from Rush Hospital in the same area. Loyola's Dr. Eberhart says open is the best plan while Dr. Saclarides says he would start with Lap and go to open if necessary. He said don't get [...]

Hi. So I have 9 lesions on my liver that are spread out. I have no other cancer anywhere else. I've been on chemo for 1 1/2 years. I'm am receiving care at Dana Farber in Massachusetts. My oncologist has said that interventional radiology may be the bridge to a [...]

I would get the consult now. Are they considering the microspheres? https://news.cancerconnect.com/rectal-cancer/nccn-guidelines-recommend-sir-spheres-y-90-resin-microspheres-apbI0xa1vU6kgvDL1K6HQQ Best C

I am in the same boat. If u say I had rectal cancer people just don't get It! So I also say colorectal cancer. This is similar but not same. I still am lucky enough to have my colon.

Nope. Never felt embarrassed about it at all. In fact, I have a colostomy and joke about my two a$$holes.

That’s completely understandable- it’s very overwhelming. I had to constantly remind myself to stay in the moment and not get ahead of myself. I know it’s easier said than done but try to take it one step at a time. Focus only on the next appt, test, etc then you’ll [...]

I have an awesome support system

Thank you Charles. Yes, I have abdominal/pelvic MRI’s and chest CT every 6 months and annual colonoscopy. I noticed some people are followed by oncologist ( my cousin is stage one breast cancer, no chemo/radiation and she has been followed by medical oncologist, not surgeon) It makes sense why oncologist [...]

Frankly it can be either or - as long as you have a defined follow up and surveillance plan in place.

One of my sisters died in Hospice of cancer. The nurses were very compassionate and caring. They provided her care that we could not have provided. The family was allowed to be with her 24/7. It may have been not as personal, but she received the best of care and [...]

Everyone says stay in the present but when you miss someone the present is hard to keep running. I wonder what prompts us to look backwards and say what if all the time? We might look to those who have been able to overcome their past actions as guides to [...]

I'm so sorry for your loss. Be patient with yourself and grieve at your own pace. My mom has been gone for 15 years and I still miss her. I use nature as my calm, when I see something in nature that makes me smile I know she is standing [...]

Very sorry to hear of the passing of your Mom. You should be proud that you and she fought hard and worked at to seek a solution. It does and will take time. You are doing the right thing by seeking grief support. We lost our Mom 5-years ago and [...]

Thee doctor performing your colonoscopies should be able to provide you with a reason for the denial. If you have been cancer free for 5 years is suspect Medicare no longer believes you need annual colonoscopies. Anyone getting a colonoscopy or other "elective" procedure should always get "pre-approval" from their [...]

Thanks Charles for your response. I am filing an appeal with Medicare as they only allow every 24 mos. With my situation I need to get annually. So without having special circumstances it is only covered every 24 mos