Thanks for sharing your experience. It is so good to know that it may disappear almost completely.

I ice both hands and feet with every treatment. I still have significant neuropathy in feet up to shins which create weakness and a bit of instability. Hands are also affects but not as bad. Dexterity is somewhat less and finger tips can be pretty uncomfortable. I continue to ice [...]

Thank you.

I follow the Beachbody program. I’ve been on a lot of diets over the years and this has been the easiest and best one for me. You can check out their website Beachbody and the 21 day fix program. My doctor told me about it. They have recipes and tools [...]

No, the scans do not hurt. I have great veins they access for the dye and the scans are done at a different hospital than where I get my chemo.

My wife (72) got her Smart Port surgically implanted in November 2011 - she gets it flushed monthly - it's been through 6 FL treatments - no problems.

I've incorporated various forms of exercise (cycling, biking, walking, hiking, jogging) in my recovery from Stage IV Pancreatic Cancer. A few elderly residents who live nearby and have physical challenges were looking for someone to exercise their pets. I figured their dogs would make good jogging companions and now we [...]

Outstanding idea, everybody wins!

My experience (6 months of FOLFOX at UVA Cancer Center following removal of two CRC mets (one in each lung removed in early 2014) was very little, if any, hair loss. Was 69 atthetime and male. Didn't have a lot to lose but no loss was seen.

Delighted to [...]

Its quite variable for reasons i dont understand but IT WILL GROW BACK? A few tips here:
https://news.cancerconnect.com/treatment-care/side-effect-of-treatment-hair-loss-R5YNQTtJbUiXXai58JT0rg
https://news.cancerconnect.com/treatment-care/cancer-chemotherapy-and-hair-loss-cOILlC2OU06DoA4xKwBsJg
Best C

Dex can certainly help with nausea in my experience. The issue like so many is how you react; some people experience insomnia, gi side effects etc, others experience no side effects at all. There are lots of ways to control nausea - i found green tea and ginger works pretty [...]

I responded well to dexa, well enough that I decided to opt out of the clinical trial control group I was participating in so that I can take the standard amount of dexa rather than less which was what the trial required. Thanks for your reply--it helped trying it out [...]

Does it happen in both legs or just one? The most common reason for this is neuropathy caused by the eloxatin chemo - are you getting eloxatin? Other things can cause this and you should of course bring this to the attention of your doctors. Best C

I have not.

My treatment was 8 chemotherapy treatments and then surgery. Nothing else.

Hi Charles. Yes, my diagnosis is Stage IIIb. Yes, I qualified for the clinical trial (here it is: http://bulletin.facs.org/2019/03/atezolizumab-in-the-adjuvant-treatment-of-stage-iii-colon-cancer-can-pd-l1-inhibition-improve-survival/) because I have Lynch Syndrome. But I am in the control group, so I am not receiving the immunotherapy drug Atezolizumab. I'm actually totally fine with that because I have enough [...]

Understood; FOLFOX is the standard of care and produces a good outcome. I think its great you chose to participate in the trial - so important for us to engage and move new treatments forward. I wish you the best with the side effects and the coming holiday season. C

great info - many thanks

Correct. I'm currently taking Sivarga now but it's not working.

CEA dropped from 109.1 to 87 but CT scans show tumors have gotten bigger.

With my experience, I am a part of a large HMO and it took about a week to get my results. So I has to wait for a Radiologist for the Imaging results(CT Scan, etc.) and then a Lab for the Pathology results. Yes, the waiting is very difficult. What [...]

@ly2 any updates on your situation? Hope an effective treatment plan is coming into focus . Best C

Carol Dragon fly. Have you been checked for Addison's Disease? Chemo often includes lots of prednisones that can affect adrenal glands.. Routine blood work does not show low cortisol levels. Do you have darkening of skin or weight loss.? Tiredness (Extreme) and these are symptoms. Just a suggestion.

Hi Brenda, thank you for your message. I'm familiar with Addison's disease, which affects the adrenal glands, but have not been checked for it --I did have a lot of prednisone (a hi-dose 4 months taper + vancomycin and Bactrim to avoid )the possible negative side effects of the prednisone) [...]

I have not found any alternative therapies to be effective but PRRT developed in Holland is quite promising. https://news.cancerconnect.com/neuroendocrine-tumors/lutathera-pepetide-receptor-radionuclide-therapy-for-nets-CL9gJlm18U6J-DIEwl_uNg/
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