1 day ago · @charles · Survivorship Issues

As more and more patients survive with cancer the concerns created by cancer and its treatment have expanded and include fear of recurrence, cognitive function, financial issues, sexuality , the impact of long term maintenace and hormonal therapy and the role of diet and exercise going forward. There is a

Posted by beglad28, 1 day ago

Great idea! I am following.

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Liked by Marilyn S,

 

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Thu, Aug 1 7:19am · @jpetroccitto · Alternative therapies

My 61 year old Dad has been diagnosed 2 weeks ago with stage 4 small cell neuroendocrine cancer which apparently is in his liver , bowels , ribs and colon Has anyone seemed any alternative therapies that have success stories? He has already had one round of chemo [...]

Posted by charles, Thu, Aug 1 7:18am

I have not found any alternative therapies to be effective but PRRT developed in Holland is quite promising. https://news.cancerconnect.com/neuroendocrine-tumors/lutathera-pepetide-receptor-radionuclide-therapy-for-nets-CL9gJlm18U6J-DIEwl_uNg/
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Thu, Jul 11 2:11am · @skadad · Cryoablation (freezing/thawing) of Color-Rectal Tumors in the Lungs

Hi all -- Just finished up a couple procedures at the Mayo clinic here in Phoenix to freeze my metastasized color-rectal tumors in the lungs. Based on trial results was hoping to buy a year or two off chemo with this; my interventionist who performed the cryoablation is much more [...]

Tue, Jul 9 7:34am · @sillymom · EpiColon - Septin9 blood test

I recently had the new septin9 blood test done for colon cancer to detect any cancer cells,has anyone else had this done?

Posted by sillymom, Tue, Jul 9 6:55am

We paid 180.00

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Posted by liberty, Tue, Jul 9 7:32am

seems reasonable - thank you

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Tue, Jul 2 11:56am · @charles · Genomic Testing is Changing the Treatment of CRC

Genomic - biomarker testing is changing the way doctors treat CRC ensuring individuals that can benefit from precision can medicines receive them and that chemo is more appropriately used. How many group members had the CRC tested for genomic abnormalities using Foundation One, Caris, Guardant or other labs. Current research

Tue, Aug 13 8:14am · @majorette1962 · Nanoknife procedure

Has anyone had IRE the nanoknife procedure. If you have please state by whom and where. I'm checking it out at Moffitt. Thank you

Posted by charles, Sun, Jul 21 5:33pm

Here is a good review on nanoknife and a "site finder" https://nanoknife.com/
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Posted by silvet, Mon, Aug 12 11:41am

Hi there - may I ask if your wife was stage 4? Is it an option for stage 4? My mom has local mets to liver.

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Sat, May 18 5:01pm · @jenblevins · Radiation treatment too soon now scar tissue complications

My husband has stage 4 colorectal cancer spread to his liver. 16 days after diagnosis (that was July 2018) the oncologist had him start Radiation for rectal tumor. No surgery scheduled or planned until chemo reduces tumors rectal & liver. We just met with a surgeon and were told he [...]

Posted by onamission, Sat, May 18 6:12am

Research serrapeptase enzymes effect on tumors and scarring. A recent bone marrow biopsy shows the serrapeptase my wife takes for her PMF. has not allowed the fibrosis and scarring in her marrow to progress in three years. She is using one AST 80,000 SPU.capsule three times a day. Also research [...]

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Posted by jenblevins, Sat, May 18 5:00pm

Thank you, I definitely will research your suggestions. I’m very impressed with this chat room, everyone is So knowledgeable & helpful! I wish I had found this a year ago! I know that we must be our own advocates but I’m shocked such a screw up occurred with my husbands [...]

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Thu, May 16 7:47pm · @jenblevins · Side effects from radiation done too soon

This is my first post. My husband has Stage 4 Colon Cancer. He has a tumor in his rectum and 16 days after being diagnosed he was getting radiation treatment. That was June last year, we just had a surgical appt this past week and were told that he shouldn’t [...]

Sun, Jul 28 8:36am · @charles · Does anyone else have fatigue?

I noticed several post this week about Fatigue and didnt see a single "thread" for a discussion so i am creating one. Fatigue is incredibly common post cancer treatment and may persist for quite some time. Very important to understand there are several causes and to correct fatigue you often

Posted by pilot, Sat, Jul 27 3:55pm

Sorry for the delay in replying. I sleep reasonably well but wake and get up at least twice a night. I often still feel tired in the morning, but there is so much else going on in my life that I just carry on. Blood tests seem to be okay, [...]

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Posted by pilot, Sun, Jul 28 8:35am

Hi Carol. Like you I have a lot of fatigue, and my balance is bad too. (I had a hip replacement 2 months after finishing radiotherapy, so up till now I’ve blamed that for the balance problems.) Unlike you I only sleep for a few hours at a time though [...]

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Thu, Jul 18 2:31pm · @360sparky1998 · Recent Diagnosis: Looking for Direction

Hello all: Not sure where to start or if I'm even in the right group. So why not my background and if I should move a Moderator could let me know. I'm a 64 year old Male. After almost 10 years of Negative FIT Tests, I had a Positive Test this past [...]

Posted by 360sparky1998, Wed, Jul 17 5:55pm

Thanks Charles. I was told Stage One given the general assumption cancer cells are at least present in the inner Colon Wall. Pathology after surgery of the part of the Colon removed and the Lymph Nodes will determine the Stage and of course what happens next. I
An extra plus from [...]

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Posted by georgebeker, Thu, Jul 18 2:30pm

Assuming you're otherwise healthy and the doctors know where it is, I'd get the damn barbarian out as soon as possible. What good is waiting?

George

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Thu, May 16 12:37pm · @skadad · Dealing with Chemo Rash

Hi All -- Looking for suggestions on dealing with chemo rash. I am currently taking Vectibix which has dropped my CEA level quite a bit but also brought on chemo rash. Using an oatmeal-based organic shampoo and Aveeno baths which help the itching somewhat; Eucerin "calming" ointment for the face. [...]

Posted by susan1091, Mon, May 13 11:12pm

Thanks for your reply. I am in northeastern USA. I had minimal sun exposure prior to developing this rash because it was late winter here. I do use a high SPF sunscreen regularly. The rash is an expected side effect..the distribution was the bizarre part until the dermatologist's explaination. The [...]

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Posted by susan1091, Thu, May 16 12:36pm

Yes I know rashes are common and to be expected. The surprise was the unusual rash distribution during the winter, at a time of zero sun exposure to these parts of my body. This rash is all due to previous sun exposure, resulting in many undetectable skin cancers that have [...]

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Wed, May 1 10:39am · @luisa · New Research on Early-Onset Colorectal Cancer in Women

Increased Risk of Early-Onset Colorectal Cancer in Women, According to Dana-Farber Research Women who are obese have nearly double the risk of developing colorectal cancer at a young age than women with a normal body mass index, a recent study by investigators at Dana-Farber and other institutions has found. The complete story [...]

Sun, May 5 7:18am · @account · colon cancer

i have a friend who diagnosis is colon cancer with liver mutiple metases,if went to dana-farber what is the process and ask for second opinion [...]

Posted by redsher, Sun, May 5 7:14am

When I got a second opinion at Dana Farber they wanted copies of my CT scans and treatment/biopsy notes (I had already had surgical removal of my tumor - stage 3).

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Posted by charles, Sun, May 5 7:17am

Exactly; as a general rule of thumb the more info you have the better the second opinion can be. The most useful info is scans that show where the cancer is, previous treatment history and any lab test on the cancer or blood that measure biomarkers or info about the [...]

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Mon, Aug 5 5:26pm · @charles · Participating in Clinical Trials-Share Your Experience

Many individuals post questions about what its like to participate in a clinical trial? Did you get better care? Were costs covered? Was it more of an inconvenience? Would you recommend trial participation based on your experience? Please share your experiences...

Posted by yack, Mon, Aug 5 4:49pm

Tanks you.

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Posted by magnoliacolumbia, Mon, Aug 5 5:25pm

good luck to you, @yack

thanks for writing!!!

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Mon, Mar 25 10:59am · @charles · Avastin vs no Avastin for advanced colon cancer?

Father in law received two opinions for treatment of his advanced colon cancer. One dr advised for Avastin + chemo, the other just chemo. What have others been recommended? What has your experience been with Avstin? Henry [...]