@carolcowan - WOW! Thanks for the updates Carol. Happy/glad that you are able to get some quiet time at the beach. Sending lots of love and hugs.
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Back from my checkup 🤗. My GYN oncologist had same comments as Charles about the sugar. His first words were, "no scientific evidence to prove any of this and cancer doesn't happen in the lab!" I say everything in moderation.

Research serrapeptase enzymes effect on tumors and scarring. A recent bone marrow biopsy shows the serrapeptase my wife takes for her PMF. has not allowed the fibrosis and scarring in her marrow to progress in three years. She is using one AST 80,000 SPU.capsule three times a day. Also research [...]

Thank you, I definitely will research your suggestions. I’m very impressed with this chat room, everyone is So knowledgeable & helpful! I wish I had found this a year ago! I know that we must be our own advocates but I’m shocked such a screw up occurred with my husbands [...]

Hi Charles, I've tried all that. I sleep 8-8.5 hr/night and don't have insomnia. I eat a largely organic and nutritious diet, maintain a health weight, and am exhausted mentally and physically all the time almost. It feels like every cell in my body and brain are exhausted. It's beyond [...]

Have you considered trying an anti-depressant? My father in law was very similar to the situation you described. His doctor suggested an anti-depressant. He was offended and said he wasnt depressed. After a few months we convinced him to try one and it made a world of difference in his [...]

Thank you Charles. I'm actually communicating with Seattle CCA right now. Somewhat hung-up in the referral process regarding Kaiser(mine is different Kaiser than in Seattle) and them right now. Once we can hopefully cut the "Gordian Knot" of administrative stuff, I hope to work with them. I was also told [...]

Wish you the best. For your situation either place is fine; they recommendation based on what i know (not everything) about your situation will be surgery.
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Thanks for your reply. I am in northeastern USA. I had minimal sun exposure prior to developing this rash because it was late winter here. I do use a high SPF sunscreen regularly. The rash is an expected side effect..the distribution was the bizarre part until the dermatologist's explaination. The [...]

Yes I know rashes are common and to be expected. The surprise was the unusual rash distribution during the winter, at a time of zero sun exposure to these parts of my body. This rash is all due to previous sun exposure, resulting in many undetectable skin cancers that have [...]

When I got a second opinion at Dana Farber they wanted copies of my CT scans and treatment/biopsy notes (I had already had surgical removal of my tumor - stage 3).

Exactly; as a general rule of thumb the more info you have the better the second opinion can be. The most useful info is scans that show where the cancer is, previous treatment history and any lab test on the cancer or blood that measure biomarkers or info about the [...]

I opted for a clinical trial so I would have access to the latest drugs. I am receiving the drugs, no placebo. The drug that is being tested is free but I have to pay for the revlimid. I started treatment in 2016 and went into remission in 2018. Initially [...]

A very rational approach i wish i could convince more people to consider. Access to potentially better treatment, at a world class cancer center, at lower costs, with interested dedicated physicians. You just summarized the rationale for clinical trial participation. Trails are not for everyone, but everyone should evaluate whether [...]

Sending you prayers of healing and hope!

Is it true that fistula formation is a side effect of avastin? Once the surgery was performed he was inundated with problem after problem. Obstruction, abcess, fistula formations we were never able to have him well enough to resume his treatments. His original diagnosis was stage IV of the rectal [...]

You are doing the right and being appropriately concerned. There are many causes of those symptoms, a stroke of course being one of them, although not perhaps the most common. Either way he needs to be evaluated by a doctor asap.
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