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Sat, Sep 28 10:41am · @jamie18 · 31 with colon cancer

Hi All, My name is Jamie and I had surgery last week to remove a colon tumor the size of my fist. I just found out a few days ago that the tumor tested positive for adenocarcinoma, which they also found in 3/40 lymph nodes they took. I'm recovering [...]

Posted by n2xs, Fri, Sep 27 6:55pm

Hi Jamie, my husband was diagnosed sept 2017 with almost stage 4 colorectal cancer and today he is cancer free! He did radiation to shrink the tumor and had it removed along with 12 lymph nodes and chemo but did not take chemo well so he stopped, it was just [...]

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Liked by jamie18

Posted by maclaurie, Sat, Sep 28 10:40am

Hi Jamie,
While I can't address some of your questions I can relate to your concerns. As a 13 year survivor of pancreatic cancer, I was overwhelmed with the dire predictions and the negative dialogue that seemed to surround me. A cancer diagnosis can sometimes propel us into a land [...]

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Liked by jamie18

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Tue, Sep 24 7:46pm · @charles · Physician expert answered questions about advanced CRC

Nice answers to many common questions about treating advanced CRC; how to approach neuropathy, options when treatment fails, next generation testing and clinical trials. https://news.cancerconnect.com/colon-cancer/ C [...]

Posted by michael93, Tue, Sep 24 7:45pm

great info - many thanks

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Fri, Sep 6 8:27am · @411769p · Recurrent colon cancer

I was diagnosed with stage 4 colon cancer 5/2017 and all chemo drugs have failed. I have 1 last option for Stivarga and it does'nt sound to hopeful. Does anyone know of any new chemo drugs available. I was also told that I do not qualify for any clinical trials.

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Posted by 411769p, Thu, Sep 5 12:17pm

Thanks for your response Charles. I've had genomic biomarker testing and unfortunately it did not qualify me for any clinical trials.

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Posted by charles, Fri, Sep 6 8:26am

Were all the mutations checked for; TRK, Her2, MSI-H? Although these are uncommon they are very treatable with currently available therapies and not all companies test for them. https://news.cancerconnect.com/colon-cancer/precision-cancer-medicines-for-colon-cancer-k9pfxLhWk0WaJ-JtYC4QfQ/ Best C

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Fri, Aug 30 6:34am · @charles · Ask The Expert - Dr Saab of Mayo Clinic about Colon Cancer

Cancer Connect and The Personalized Medicine Foundation are pleased to provide patients and caregivers the opportunity to ask questions about the management of advanced colo-rectal cancer with Dr Tanios Bekaii-Saab, MD FACP Head-Mayo Clinic Gastrointestinal Cancer Program & Director of Cancer Clinical Research will answer all submitted questions which will [...]

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Wed, Aug 28 10:46am · @charles · New Diagnosis of CRC

Posted by ly2 @ly2, 7 hours ago Hello everyone my husband been diagnose with colon cancer. Lots of polyps been removed and one cannot be remove due to its massive in size and its on the bottom of the intistine. He had sigmoidoscopy, CT scan and this week he will have [...]

Posted by ann403, Wed, Aug 28 9:34am

In my experience at Roswell the results are available on the same day or the next, depending on the time of day the scan is done. These are follow up scans and it may take a day or two longer for diagnostic results. I think I had to wait four [...]

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Posted by 360sparky1998, Wed, Aug 28 10:45am

With my experience, I am a part of a large HMO and it took about a week to get my results. So I has to wait for a Radiologist for the Imaging results(CT Scan, etc.) and then a Lab for the Pathology results. Yes, the waiting is very difficult. What [...]

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Wed, Sep 11 10:28am · @charles · Survivorship Issues

As more and more patients survive with cancer the concerns created by cancer and its treatment have expanded and include fear of recurrence, cognitive function, financial issues, sexuality , the impact of long term maintenace and hormonal therapy and the role of diet and exercise going forward. There is a

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Posted by 5201940, Sun, Sep 1 12:39pm

Carol Dragon fly. Have you been checked for Addison's Disease? Chemo often includes lots of prednisones that can affect adrenal glands.. Routine blood work does not show low cortisol levels. Do you have darkening of skin or weight loss.? Tiredness (Extreme) and these are symptoms. Just a suggestion.

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Liked by Marilyn S,

Posted by wildturkey, Sun, Sep 1 11:58am

Hi Brenda, thank you for your message. I'm familiar with Addison's disease, which affects the adrenal glands, but have not been checked for it --I did have a lot of prednisone (a hi-dose 4 months taper + vancomycin and Bactrim to avoid )the possible negative side effects of the prednisone) [...]

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Liked by Marilyn S,

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Thu, Aug 1 7:19am · @jpetroccitto · Alternative therapies

My 61 year old Dad has been diagnosed 2 weeks ago with stage 4 small cell neuroendocrine cancer which apparently is in his liver , bowels , ribs and colon Has anyone seemed any alternative therapies that have success stories? He has already had one round of chemo [...]

Posted by charles, Thu, Aug 1 7:18am

I have not found any alternative therapies to be effective but PRRT developed in Holland is quite promising. https://news.cancerconnect.com/neuroendocrine-tumors/lutathera-pepetide-receptor-radionuclide-therapy-for-nets-CL9gJlm18U6J-DIEwl_uNg/
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Thu, Jul 11 2:11am · @skadad · Cryoablation (freezing/thawing) of Color-Rectal Tumors in the Lungs

Hi all -- Just finished up a couple procedures at the Mayo clinic here in Phoenix to freeze my metastasized color-rectal tumors in the lungs. Based on trial results was hoping to buy a year or two off chemo with this; my interventionist who performed the cryoablation is much more [...]

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Tue, Jul 9 7:34am · @sillymom · EpiColon - Septin9 blood test

I recently had the new septin9 blood test done for colon cancer to detect any cancer cells,has anyone else had this done?

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Posted by sillymom, Tue, Jul 9 6:55am

We paid 180.00

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Posted by liberty, Tue, Jul 9 7:32am

seems reasonable - thank you

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Tue, Jul 2 11:56am · @charles · Genomic Testing is Changing the Treatment of CRC

Genomic - biomarker testing is changing the way doctors treat CRC ensuring individuals that can benefit from precision can medicines receive them and that chemo is more appropriately used. How many group members had the CRC tested for genomic abnormalities using Foundation One, Caris, Guardant or other labs. Current research

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Tue, Aug 13 8:14am · @majorette1962 · Nanoknife procedure

Has anyone had IRE the nanoknife procedure. If you have please state by whom and where. I'm checking it out at Moffitt. Thank you

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Posted by charles, Sun, Jul 21 5:33pm

Here is a good review on nanoknife and a "site finder" https://nanoknife.com/
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Posted by silvet, Mon, Aug 12 11:41am

Hi there - may I ask if your wife was stage 4? Is it an option for stage 4? My mom has local mets to liver.

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Sat, May 18 5:01pm · @jenblevins · Radiation treatment too soon now scar tissue complications

My husband has stage 4 colorectal cancer spread to his liver. 16 days after diagnosis (that was July 2018) the oncologist had him start Radiation for rectal tumor. No surgery scheduled or planned until chemo reduces tumors rectal & liver. We just met with a surgeon and were told he [...]

Posted by onamission, Sat, May 18 6:12am

Research serrapeptase enzymes effect on tumors and scarring. A recent bone marrow biopsy shows the serrapeptase my wife takes for her PMF. has not allowed the fibrosis and scarring in her marrow to progress in three years. She is using one AST 80,000 SPU.capsule three times a day. Also research [...]

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Posted by jenblevins, Sat, May 18 5:00pm

Thank you, I definitely will research your suggestions. I’m very impressed with this chat room, everyone is So knowledgeable & helpful! I wish I had found this a year ago! I know that we must be our own advocates but I’m shocked such a screw up occurred with my husbands [...]

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Thu, May 16 7:47pm · @jenblevins · Side effects from radiation done too soon

This is my first post. My husband has Stage 4 Colon Cancer. He has a tumor in his rectum and 16 days after being diagnosed he was getting radiation treatment. That was June last year, we just had a surgical appt this past week and were told that he shouldn’t [...]

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Wed, Sep 11 7:25am · @charles · Does anyone else have fatigue?

I noticed several post this week about Fatigue and didnt see a single "thread" for a discussion so i am creating one. Fatigue is incredibly common post cancer treatment and may persist for quite some time. Very important to understand there are several causes and to correct fatigue you often

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Posted by sylv2, Wed, Sep 11 7:22am

Lots of spelling mistakes in that lol its a cpap machine not clap and refered not referee lol

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Liked by Heyjude2838

Posted by charles, Wed, Sep 11 7:24am

Sometimes it seems like it never ends; getting a good night sleep however is key to improving overall well being. and CPAP can help attain this. Best C

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Tue, Sep 24 2:51pm · @360sparky1998 · Recent Diagnosis: Looking for Direction

Hello all: Not sure where to start or if I'm even in the right group. So why not my background and if I should move a Moderator could let me know. I'm a 64 year old Male. After almost 10 years of Negative FIT Tests, I had a Positive Test this past [...]

Posted by 360sparky1998, Mon, Sep 23 11:58am

Hi George:
I'm an engineer, so my nature is to research/educate myself if I don't know anything on the topic. Also I initially questioned the need for surgery as I never(and didn't right up to being rolled in the OR) feel sick or pain or anything. Add to that the [...]

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Liked by charles

Posted by charles, Tue, Sep 24 2:49pm

Sounds like you are on the right track - now the hard part - patience! OSHU should be just as good for getting the opinion.
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