1 hour ago · @skadad · Lung Surgery for Stage IV CRC

Hi All -- My wife and I are meeting with a thoracic surgeon today to discuss removing my remaining CR spots that moved into my lungs several years ago. I've had radiation as much as possible; spots will respond well for awhile to first line treatments (5FU) but as [...]

Posted by willnotgiveup, 18 hours ago

Hi there,
I've had stage 4 colon cancer since 2009. I've a lung resection in both lungs - the first in 2009 and the second in 2017. In between I had 170 chemos, liver surgery and colon surgery. I have not had chemo since the 2017 lung surgery. I have small

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Posted by Jan, 1 hour ago

I am going through the same thing doing chemo treatment right now. How big are your spots? Mine are very small 3 of them all under 10 mm my doctor hasn’t brought up surgery yet!

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21 hours ago · @charles · Does Ginger Prevent Nausea?

Several posts have recently suggested Ginger can reduce chemotherapy associated nausea. Anyone have any experience with this? https://news.cancerconnect.com/treatment-care/ginger-supplements-reduce-chemotherapy-induced-nausea-3B6rHRbu9keWrwgbJujyTQ/ [...]

Posted by Jan, 1 day ago

Yes it does anything ginger!

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Posted by lindal, 21 hours ago

I have ginger around, keep some with teas and I get some small cubes that I can put into hot water or chew on. Seems to help some if intense nausea check with Dr. for some meds, they helped when I was going through chemo and radiation together.

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Dec 20, 2018 · @HesterBIDMCModerator · Chemobrain

Did your brain change after cancer? It is an odd relief that chemobrain is now recognized as an authentic problem for some people during and after cancer treatment. Researchers have demonstrated that there are measurable changes in the brain post-chemo.Until recently, the medical establishment seemed to be avoiding owning [...]

Dec 6, 2018 · @HesterBIDMCModerator · Who are your helpers?

We all know we need friends. We especially need them as we go through cancer. Please read my thoughts about building your cancer village and share your story and ideas with us https://www.bidmc.org/about-bidmc/blogs/blog-landing/living-with-cancer/2018/12/building-your-cancer-villag [...]

Dec 9, 2018 · @pmizzle7 · Recurrent Colong Cancer - I Need Someone To Talk To

Hello everyone, I'm a Stage II Colon Cancer survivor, had surgery followed by oral chemo in 2017 & thought everything was OK. Unbeknownst to myself and my Oncologist, some of it spread to my liver.. I'm now back on chemo, but intravenous this time. The tumors were shrinking but due [...]

Posted by pmizzle7, Thu, Dec 6, 2018 7:35pm

Thank you so much, that has given me more hope! My mom has been with me every step of the way, my family has been great through all of this & our faith is very strong as well. I know that attitude plays a HUGE part in all of this

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Liked by carol cowan harris

Posted by pmizzle7, Sun, Dec 9, 2018 12:21pm

Thank you so much for the warm welcome! I've been researching, do you know anything about the drug CL-4? I've been reading amazing things about it being able to shrink tumors

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Nov 28, 2018 · @HesterBIDMCModerator · When a friend has cancer

When a friend has cancer, the usual rules and responsibilities of a close relationship change. This is not a 50/50 or even a 70/30 connection. Instead, for the duration of your friend’s treatment, you need to carry at least 90% of the friendship. This means that your needs come a [...]

Dec 8, 2018 · @charles · Tissue Agnostic Genomic Based Treatment--Share Your Thoughts

I wanted to share a recent blog about the FDA approval of a 2nd "tissue agnostic" cancer drug. All patients should understand this emerging shift in how cancer can be treated. Its happening quickly, will create confusion, take awhile to be incorporated into how doctors evaluate and manage a cancer, [...]

Posted by pvaritimidis, Fri, Dec 7, 2018 8:00pm

Maclaurie I agree with you 100%!! Thank you Charles.l
Paula

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Posted by mrtaylor, Sat, Dec 8, 2018 3:44am

There are many clinical trails testing againsts specific mutations. I saw this one for alk, https://clinicaltrials.gov/ct2/show/NCT03310541

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Liked by esther2k5

Nov 9, 2018 · @rosao · Non stop

My son was diagnosed with colo/rectal cancer 5/17. Since them he has done chemo. N radiation, a complete colectomy, a 2nd round of chemo then in match of this year he had a tumor in the lower left lobe. June of this year je had a lobectomy of the lower [...]

Posted by georgebeker, Fri, Nov 9, 2018 7:05am

Angry I understand. Although I should know better, I keep looking for "fair" in all this - it's apparently not to be. My hope is that your met is in a place where they can get to it easily. My two re-sections (on in each lung) were done at UVA

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Liked by Jan

Posted by HesterBIDMCModerator, Fri, Nov 9, 2018 8:29am

Angry is a completely appropriate response!

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Liked by Jan

Nov 2, 2018 · @foltzjane · genetic coding with bile duct cancer

I started out with cancer in the bile duct and went through whipple radiation and chemo. I am now on second round of chemo (gemzar oxipalatin) do to a reoccurrence. What really has me stymied is that my cancer has a Jax2 genetic root. Jax2 is the genetic root of [...]

Posted by mike23, Thu, Nov 1, 2018 11:48pm

For like 6 months i started getting pain each day it got worse and so I went to emergency room and they said I have Leukocytosis and go see ur doctor asap we think you have some sort of blood cancer then everything hit me like a ton of bricks

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Posted by foltzjane, Fri, Nov 2, 2018 9:34am

Maybe the immunology drug called Jacifi (spelling probably wrong) may be meant for you. They usually do a genetic screening on the cancer to determine if there is a genetic source. Might be worth asking your doctor. Best of luck to you and never give up the fight. New breakthroughs

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Oct 29, 2018 · @HesterBIDMCModerator · Bell Ringing and other Public "Celebrations"

Some cancer centers encourage people to mark the end of their chemo treatment by ringing a bell. Personally, I hate this tradition–both because I am superstitious about some things and, primarily, because I think it is insensitive and unfair to people who will never finish cancer treatment. Please read my [...]

Oct 21, 2018 · @katie5963 · Cetuximab

This maybe the next treatment for my husband’s stage 4 colon cancer. Anyone using it...have any comments...advise? [...]

Posted by bethbourg, Sun, Oct 21, 2018 12:06pm

My husband did well. Very similar side effects as Erbitux but I would say skin rashes not as bad.

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Posted by marunemom2082, Sun, Oct 21, 2018 9:27pm

My husband been given himself blood thinness injections.
But he been having cramps where he do it.
Does anyone know of a better way

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Dec 6, 2018 · @Jan · Recurrence: Rx with Oxialplatin and 5FU?

Well after 3 years my colon cancer is back in my lung, my doctor assured me there is a small trace of disease but still recurrence so I am scared stiff and so nervous about the side effects of these 2 drugs... I was on xeloda the first time and [...]

Posted by pmizzle7, Wed, Dec 5, 2018 7:16pm

I had colon cancer too, had surgery and oral chemo and thought that I was OK. Little did we know. but some of it spread to my liver & now I'm back on chemo, but not oral but intravenous 5FU. So far, I've tolerated it pretty well, but the oxy

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Posted by charles, Thu, Dec 6, 2018 10:06am

It would be great if the genomic testing identified some potential treatable targets; there are several newer precision cancer medicines with fewer side effects now available: https://mavendoctors.io/cancerconnect/colon-cancer/precision-cancer-medicines-for-colon-cancer-k9pfxLhWk0WaJ-JtYC4QfQ/

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2 days ago · @pworley · Oxiplatin & Xelox for CRC-Concerned About Side Effects-Neuropathy

Hands are tingly and iv injection is sore but praying this will be tolerable for me. Trying to do 3 months based on the new IDEA study. Oncotype was a 6 but t4nomo- 9mm tumor that was removed. [...]

Posted by Jan, Wed, Oct 31, 2018 9:34am

@charles great article!

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Posted by charles, 2 days ago

I just read a research report that there is now a "shortened" treatment regimen for oxaliplatin that reduces the risk of neuropathy. It can be used in low risk stage 2 and 3 colon cancer. Has anyone's doctor offered them this?

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Oct 3, 2018 · @luisa · From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer?

From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer? -- Colon cancer is the fourth most common cancer diagnosed in men and women in the United States. Colon and rectal cancers are often collectively referred to as colorectal cancer. Most colorectal cancers start as a growth on the [...]

Oct 19, 2018 · @pworley · Chemo or not?

Just had t-4nomo tumor removed. No lymph node invasaion. Got a 6 on the recurrence score on oncotype test. Doctor wants to do chemo but I am getting another opinion to help decide? Anyone else had this situation? Any thoughts? [...]

Posted by Jan, Thu, Oct 18, 2018 2:00pm

Thank you for answering me
Did you loose your hair? I am so nervous my daughter is getting married and I just want to be able to help plan her wedding. This all just sucks. But I will fight! Bless You!

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Posted by cindyreeves, Fri, Oct 19, 2018 4:54pm

I had Xeloda and Oxiloplatin for treatment along with radiation and I did not lose any hair. Have a good time at the wedding!

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