Fri, Nov 9 8:29am · @rosao · Non stop

My son was diagnosed with colo/rectal cancer 5/17. Since them he has done chemo. N radiation, a complete colectomy, a 2nd round of chemo then in match of this year he had a tumor in the lower left lobe. June of this year je had a lobectomy of the lower [...]

Posted by georgebeker, Fri, Nov 9, 2018 7:05am

Angry I understand. Although I should know better, I keep looking for "fair" in all this - it's apparently not to be. My hope is that your met is in a place where they can get to it easily. My two re-sections (on in each lung) were done at UVA

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Liked by Jan

Posted by HesterBIDMCModerator, Fri, Nov 9, 2018 8:29am

Angry is a completely appropriate response!

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Liked by Jan

Fri, Nov 2 9:34am · @foltzjane · genetic coding with bile duct cancer

I started out with cancer in the bile duct and went through whipple radiation and chemo. I am now on second round of chemo (gemzar oxipalatin) do to a reoccurrence. What really has me stymied is that my cancer has a Jax2 genetic root. Jax2 is the genetic root of [...]

Posted by mike23, Thu, Nov 1, 2018 11:48pm

For like 6 months i started getting pain each day it got worse and so I went to emergency room and they said I have Leukocytosis and go see ur doctor asap we think you have some sort of blood cancer then everything hit me like a ton of bricks

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Posted by foltzjane, Fri, Nov 2, 2018 9:34am

Maybe the immunology drug called Jacifi (spelling probably wrong) may be meant for you. They usually do a genetic screening on the cancer to determine if there is a genetic source. Might be worth asking your doctor. Best of luck to you and never give up the fight. New breakthroughs

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Mon, Oct 29 10:10am · @HesterBIDMCModerator · Bell Ringing and other Public "Celebrations"

Some cancer centers encourage people to mark the end of their chemo treatment by ringing a bell. Personally, I hate this tradition–both because I am superstitious about some things and, primarily, because I think it is insensitive and unfair to people who will never finish cancer treatment. Please read my [...]

Sun, Oct 21 9:27pm · @katie5963 · Cetuximab

This maybe the next treatment for my husband’s stage 4 colon cancer. Anyone using it...have any comments...advise? [...]

Posted by bethbourg, Sun, Oct 21, 2018 12:06pm

My husband did well. Very similar side effects as Erbitux but I would say skin rashes not as bad.

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Posted by marunemom2082, Sun, Oct 21, 2018 9:27pm

My husband been given himself blood thinness injections.
But he been having cramps where he do it.
Does anyone know of a better way

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Fri, Nov 2 9:32am · @Jan · Recurrence: Rx with Oxialplatin and 5FU?

Well after 3 years my colon cancer is back in my lung, my doctor assured me there is a small trace of disease but still recurrence so I am scared stiff and so nervous about the side effects of these 2 drugs... I was on xeloda the first time and [...]

Posted by kzinzer, Thu, Nov 1, 2018 7:38am

Hi Jan- to extend your level of peer support, consider "Colontown" on Facebook. You will ask the administrator to be a member. I was on Folfox last year and the main issues were the immediate cold sensitivity and then fatigue while on the 5FU for the 46 hours. I had

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Liked by Jan

Posted by Jan, Fri, Nov 2, 2018 9:32am

Thank you so much!

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Wed, Oct 31 9:34am · @pworley · Oxiplatin & Xelox for CRC-Concerned About Side Effects-Neuropathy

Hands are tingly and iv injection is sore but praying this will be tolerable for me. Trying to do 3 months based on the new IDEA study. Oncotype was a 6 but t4nomo- 9mm tumor that was removed. [...]

Posted by charles, Wed, Oct 31, 2018 7:51am

Sorry to hear of your fathers recurrence - during the visit make sure you ask if they tested the cancer for the biomarkers. Many of the newer precision cancer medicines used to treat CRC can be treated with these drugs which dont have the same side effects as chemo. https://mavendoctors.io/cancerconnect/colon-cancer/precision-cancer-medicines-for-colon-cancer-k9pfxLhWk0WaJ-JtYC4QfQ/

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Posted by Jan, Wed, Oct 31, 2018 9:34am

@charles great article!

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Wed, Oct 3 10:42am · @luisa · From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer?

From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer? -- Colon cancer is the fourth most common cancer diagnosed in men and women in the United States. Colon and rectal cancers are often collectively referred to as colorectal cancer. Most colorectal cancers start as a growth on the [...]

Fri, Oct 19 4:54pm · @pworley · Chemo or not?

Just had t-4nomo tumor removed. No lymph node invasaion. Got a 6 on the recurrence score on oncotype test. Doctor wants to do chemo but I am getting another opinion to help decide? Anyone else had this situation? Any thoughts? [...]

Posted by Jan, Thu, Oct 18, 2018 2:00pm

Thank you for answering me
Did you loose your hair? I am so nervous my daughter is getting married and I just want to be able to help plan her wedding. This all just sucks. But I will fight! Bless You!

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Posted by cindyreeves, Fri, Oct 19, 2018 4:54pm

I had Xeloda and Oxiloplatin for treatment along with radiation and I did not lose any hair. Have a good time at the wedding!

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Sat, Aug 25 9:53am · @HesterBIDMCModerator · Question about Be Well Programs

I have been asked to give a lecture at a training session for Be Well instructors. I know that many of you have taken this course at the Y, and I am hoping you will give me your suggestions. What do you wish the instructor had known? Were there topics [...]

Sat, Aug 25 9:51am · @411769p · Stage IV colon cancer

I've been Xeloda, Irinotecan and Avastin for a year and I've become resistant to all of them. My oncologist is recommending Lonsurf. Anyone out there with any experiences with this drug. [...]

Posted by bethbourg, Sat, Aug 25, 2018 9:51am

I’m following your thread as my husband on the same path. Lonsurf is next on the list....

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Thu, Aug 23 9:22pm · @lolymo2569 · After chemo

I have finished chemo in march for colon cancer. Since then I have been fatigued and exhausted, weak and not much of an appetite. Is it normal for the fatigue to last thing long after chemo ends? Does anybody know? Thank you in advance for any help that anyone [...]

Posted by charles, Thu, Aug 23, 2018 8:14am

Certainly can; there are however other common causes of fatigue post treatment. The most common of which are anemia and insomnia. Make sure you are not anemic and if you are having trouble sleeping talk to your doctor. its an easy fix!
C

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Posted by skadad, Thu, Aug 23, 2018 9:22pm

Might want to get your B12 levels checked too. Had the same issue for several months and discovered that was the cause.

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Mon, Oct 1 5:26pm · @marunemom2082 · Skin rash and itching

Is there something that I can use [...]

Posted by bethbourg, Wed, Aug 22, 2018 8:13am

If you think it is a chemo reaction let your oncologist or nurse know. My husband ended up with several prescriptions from dermatology due to chemo side effects on skin.

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Posted by charles, Mon, Oct 1, 2018 5:26pm

Did you find anything to relieve the itching? Curious, were you taking and EFGR inhibitor medicine for you cancer?

C

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Sun, Jul 22 8:24am · @lisacan · Intra Abdominal abscess

Hi, I am new here, my husband was diagnosed with stage IV colon cancer that metastasized to his peritoneum and ometum. He had the colon resection on 2/1/18. Went through 6 rounds of chemo. then on 6/3/18 he was near death when I took him to ER, he was having [...]

Posted by carolcowan, Sun, Jul 22, 2018 8:24am

lisacan,
I'm Carol, a moderator here. I'm also a retired oncology and hospice RN. Welcome to the group. The nurse who told you she "would be after blood" and that she'd never seen that did you no favors. My role as a nurse is to help you deal with what's

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Mon, Aug 27 1:18pm · @kzinzer · Free or Reduced Hair/Nails/Skin Services for OH Patients & Caregivers

"Healing Hands Power of Touch" in Columbus OH offers patients free wigs and a free handmade turban.... And haircuts (free for patients-survivors/$5 caregiver), manicures ($5/$10), pedicures ($10/$15), facials ($5/$15) and more. Services are provided with students and supervisors. There are a few locations. I visited "The Spa School" @ 5050 [...]

Posted by marunemom2082, Sun, Aug 26, 2018 8:03am

My husband has boils in his arm pit has anyone had this and what did u do

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Posted by carolcowan, Mon, Aug 27, 2018 1:18pm

That must be very painful. You definitely need to get a doctor's help with that.
Carol

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Mon, Jul 16 7:55am · @taylor1365 · CEA level

I was diagnosed with stage III colon last year, had an elevated CEA level that normalized after surgery. My last CEA level was 1.4 at the end of chemo and for my first 3month check yesterday its 9.8. Has anyone ever had a false CEA? I have scans in a [...]

Posted by georgebeker, Mon, Jul 16, 2018 6:49am

My wishes go your way. Based on my experience, CEA has not been a good predictor and level changes have brought much worry. A question, please - what was the CEA level before the chemo/surgery?

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Posted by taylor1365, Mon, Jul 16, 2018 7:55am

Thank you. 8.4 but then 0 postsurgery leveling out to 1.4-1.7 for the past year. The 9.8 was a big jump. I panicked and know that it just means look close and they are.

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