Welcome to the CancerConnect Online Support Group for Colorectal Cancer Patients and Caregivers. Your story matters! Click Join Now to register for the community and join the conversation.

8 hours ago · @cghow · Day 10 Nadir

I am on day 9 of my first round of xloda. I read about Days 10-14 are when your white blood count starts to drop and you can become more prone to infections. How do most of you handle this? Do you stay home and avoid going to public places? [...]

Posted by @carolcowan, 8 hours ago

Debbie,
Your father should look into applying for disability. If his employer provides it, he can find out how much he would be paid for out. It can be about 60% of a normal paycheck, sometimes a little higher. He can apply for Social Security disability (SSDI). There’s a list

Please login or register to post a reply.

Mon, Jul 17 1:47pm · @jennavere · 36 and recently diagnosed

I went in for a colonoscopy on Monday, July 10 because of a change in bowel habits, and was told I have colon cancer, which was confirmed with the pathology. Just had my CT scan this morning, and though I'm trying to remain positive, I've been on an emotional roller [...]

Posted by @megm, Mon, Jul 17 1:47pm

Hi @jennavere, I can understand how terribly stressful the waiting can be! Keep us posted and I’ll be thinking about you!

Please login or register to post a reply.

Mon, Jul 17 9:31am · @kayw · Colon Cancer

I am 3 years in remission from colon cancer and my white and red blood cell counts are low and continue to drop. Does anyone know what I can take or do to make them go back up? I also suffer with fatigue from this and wonder if there is [...]

Posted by @charles, Mon, Jul 17 9:31am

Following chemo some individuals blood counts recover better than others. There is nothing that i know of that is used to generally make both go back up. A low number however is typically only a problem once it decreases beyond a certain threshold. For example a low WBC increase your

Please login or register to post a reply.

Thu, Jul 13 2:23pm · @jamesmacq · 1 Month post Lower Anterior Resection surgery

I am 1 month out from having lower anterior resection surgery to remove stage 3 rectal cancer. Immediately after surgery I felt great. I was home from the hospital 5 days after surgery and was walking all over my neighborhood. I had difficulty urinating and some shooting pain in my [...]

Posted by @megm, Thu, Jul 13 2:23pm

Hi @jamesmacq, just checking in to see how you are doing.

Please login or register to post a reply.

12 hours ago · @lisac61 · Sister has Stage 4 colon cancer

My sister was diagnosed with Stage 4 colon cancer in January of 2015. She had a colon resection and a total hysterectomy as it had spread to her ovaries. She was initially on FOLFOX and Avastin. After several negative PET scans her doctor started her on Xeloda. It was a [...]

Posted by @bblackpearl, 12 hours ago

Thank you so much for your reply! We will try and get the doctor to give us Marinol. She has lost so much weight. Again, thanks for the tip’

Please login or register to post a reply.

Thu, Jun 29 7:08pm · @cancerconnect · Research News: Test Could Improve Treatment for Early Colon Cancer

According to a new study in the Journal of Gastrointestinal Surgery, a simple widely available blood test could improve treatment for more than 1 in 6 stage 2 colon cancer patients. The researchers also discovered that many patients who could benefit from the test likely aren’t receiving it. Learn more [...]

Posted by @cghow, Thu, Jun 29 7:08pm

I had this CEA test and mine was low. I had stage 2B colon cancer surgery and doctors still recommend adjuvant chemotherapy. Any other thoughts out there about this?
Connie

Please login or register to post a reply.

Sun, Jun 18 8:21am · @fmmarcus · Clinical trials

I need help looking for a clinical trial (colon cancer). Is their an agency that can help locate appropriate trials. I can't do it alone. Thank u [...]

Please login or register to post a reply.

6 days ago · @pickthis · Stage 3 colon cancer to donchemo or not to do it

Hello, my dad who is 68 years of age had the colon cancer tumor removed may 1st and has just met with the oncologist. The oncologist has said he would like him to take the Xeloda pill for six months as chemo since the cancer was found in 3 lymph [...]

Posted by @carolcowan, 6 days ago

Debbie,
Don’t worry about the radiation from CT scans. The benefits greatly outweigh the risks. MRI’s and ultrasound have no radiation involved. I read that
older people have less sensitivity to the effects of radiation.
Fatigue is the number one problem cancer patients who are getting treated have complained

Please login or register to post a reply.

Sun, Jun 18 5:56am · @cab1964 · Son blood count 4 years after Stage 3 colon cancer.

So very concerned. Scan today. Don't know what to think. [...]

Posted by @cab1964, Sun, Jun 18 5:56am

Good news. Scan clear

Please login or register to post a reply.

Tue, May 30 10:08am · @kfarmer61 · Opdiva

Stage 4 rectal cancer that has metastasized to my lungs. Has been there since 2011. Recently one nodule has gotten bigger and several others have appeared; this is after I was on Lonsurf for 17 months. They have now put me on Opdiva and I am wondering if anyone has [...]

Posted by @seaspray, Mon, Jun 26 8:25pm

How are you feeling on Opdivo?

Please login or register to post a reply.

Thu, Jun 1 10:11am · @luisa · New Online Tool Guides Genetic Testing for Lynch Syndrome

A new online assessment tool developed at Dana-Farber can help rapidly identify people who should undergo genetic testing for Lynch syndrome, an inherited disorder that greatly increases the lifetime risk of colorectal, endometrial, ovarian, stomach, and other cancers. An estimated 1 in 279 individuals – nearly a million people in [...]

Please login or register to post a reply.

Tue, Jun 13 3:19pm · @mdichter · Chemo finished now what?

My husband was diagnosed with stage 4 (spread to distant lymph nodes but no other organs) colon cancer in October, he had surgery and just finished twelve rounds of chemo. He has a follow up appointment with the oncologist in a few weeks and then appointments for scans etc a [...]

Posted by @pajamas35, Tue, Jun 13 3:19pm

When I got my port, they gave me a leaflet that accompanied it indicating the port manufacturer. Perhaps you have a leaflet or can ask the doctor about who the manufacturer is. Maybe that can lead you to the answer to your question

Please login or register to post a reply.

Sun, Jun 11 5:55pm · @pickthis · Stage 3a Colon Cancer 68 yr old male

My dad fell from his dump truck and fractured his pelvis (left acetabulum) on april 20th, 2017. While in the hospital he also caught pneumonia and his lungs filled up causing an aspiration and going code blue. They said he wouldn't make it through the night. He did .. and [...]

Posted by @pickthis, Sun, Jun 11 5:55pm

Hello again … my dad is still on meds for his infection but his right shoulder is now paining him even more than before and also has the same pain on the side of his right ribs and it looks swollen. The pain on his shoulder is at the top

Please login or register to post a reply.

Thu, May 18 4:15pm · @hollyd · Questions for my surgeon

I have my last appt. today with my surgeon, before being turned over to oncology. I usually have a long list of questions (which he answers about 80% before I ask questions). This time my list is very short & mostly consists of activity levels & progression of what I [...]

Please login or register to post a reply.

Wed, Jun 7 6:27am · @hollyd · Newly diagnosed

I was diagnosed with colon cancer on April 25th, had surgery on May 4th, and subsequently diagnosed with stage 3 colon cancer on May 9th. I am completely & totally overwhelmed. Physically I'm healing up well, but my emotions have completely tanked. I will start chemo 6 weeks post-op, but [...]

Posted by @pajamas35, Wed, Jun 7 6:27am

Holly,
I am like you, diagnosed on my 51st birthday, stage 3 with one bad lymph. Usual chemo. Best advice, though very cliche- take it moment by moment. Also, make sure you are confident in your doctors.

Liked by Jan

Please login or register to post a reply.

Please login with your account or, if you aren't a member, join now.

 

Login


Join Now