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Aug 7, 2017 · @mlofthus · lost

Hi my sister is 28 and was diagnosed with stage 4 colon cancer on 06/22/2017 and has had surgery a stint put in to help relive some pressure in her stomach. her legs stay pretty swollen at all times. she just got done with her second round of chemo and [...]

Posted by carolcowan, Mon, Aug 7, 2017 7:50am

mlofthus,
I'm Carol, a moderator here. People;e with a family history of colon cancer and who get colon cancer when they're under 50 yrs of age frequently do have it because of the genetic mutation. Switching to an organic diet is not going to make a difference in your sister's

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Posted by mlofthus, Mon, Aug 7, 2017 8:16pm

Thank you for the reply . It was helpful . I go on the 14th to get tested .

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Wed, Jan 24 2:15pm · @411769p · Stage IV colon cancer

Diagnosed with stage 2b colon cancer in 2014, recurrent colon cancer 2015 and now stage IV 5/2017 with mets to pelvis, spleen, possibly pancreas with 2 spots in colon. My oncologist does not recommend surgery at this time. I'm currently doing chemo for 5fu, avastin & iriotecan IV every 2 [...]

Posted by 411769p, Wed, Jan 24, 2018 9:47am

I've been on avastin, irinotecan & xeloda for months. My most recent PET scan show that spleen & pancreas have been resolved & colon & uterus areas are improving. I am told by my oncologist that I would have to remain on chemo the rest of my life even if

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Posted by carolcowan, Wed, Jan 24, 2018 2:15pm

I'm Carol, one of the moderators here. Yes, I've heard a lot of colorectal cancer patients say that. Some ovarian cancer patients are told that. Chemo would be at a maintenance dose, lower than with active cancer treatment. Right now, don't dwell on it. No one knows what the future

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Jul 24, 2017 · @cghow · Day 10 Nadir

I am on day 9 of my first round of xloda. I read about Days 10-14 are when your white blood count starts to drop and you can become more prone to infections. How do most of you handle this? Do you stay home and avoid going to public places? [...]

Posted by pickthis, Mon, Jul 24, 2017 7:38am

My dad is on his second week of his second cycle of Xeloda and has stage 3a colon cancer (I actually don't know if it should be had or has as he had the surgery and they removed that area of his colon with the tumour but since the cancer

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Posted by carolcowan, Mon, Jul 24, 2017 10:45am

Debbie,
Your father should look into applying for disability. If his employer provides it, he can find out how much he would be paid for out. It can be about 60% of a normal paycheck, sometimes a little higher. He can apply for Social Security disability (SSDI). There's a list

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Jul 17, 2017 · @jennavere · 36 and recently diagnosed

I went in for a colonoscopy on Monday, July 10 because of a change in bowel habits, and was told I have colon cancer, which was confirmed with the pathology. Just had my CT scan this morning, and though I'm trying to remain positive, I've been on an emotional roller [...]

Posted by mdichter, Mon, Jul 17, 2017 4:34am

Hi Jenna,
My husband was diagnosed with stage 4 colon cancer in October. Needless to say it was terrifying (he is also fairly young- 43) . He had surgery and 12 rounds of chemo which he tolerated fairly well. He now is 2 months post chemo had his first round

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Posted by megm, Mon, Jul 17, 2017 1:47pm

Hi @jennavere, I can understand how terribly stressful the waiting can be! Keep us posted and I'll be thinking about you!

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Jul 17, 2017 · @kayw · Colon Cancer

I am 3 years in remission from colon cancer and my white and red blood cell counts are low and continue to drop. Does anyone know what I can take or do to make them go back up? I also suffer with fatigue from this and wonder if there is [...]

Posted by charles, Mon, Jul 17, 2017 9:31am

Following chemo some individuals blood counts recover better than others. There is nothing that i know of that is used to generally make both go back up. A low number however is typically only a problem once it decreases beyond a certain threshold. For example a low WBC increase your

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Jul 13, 2017 · @jamesmacq · 1 Month post Lower Anterior Resection surgery

I am 1 month out from having lower anterior resection surgery to remove stage 3 rectal cancer. Immediately after surgery I felt great. I was home from the hospital 5 days after surgery and was walking all over my neighborhood. I had difficulty urinating and some shooting pain in my [...]

Posted by carolcowan, Thu, Jul 6, 2017 5:16pm

Pyridium decreases the urge to urinate and may be affecting you that way. I'd ask the doctor if you can stop taking it to see if it helps. You're also taking Flomax which relaxes the bladder. The two medications together may be causing or contribute to the problem. If you

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Posted by megm, Thu, Jul 13, 2017 2:23pm

Hi @jamesmacq, just checking in to see how you are doing.

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Aug 22, 2017 · @lisac61 · Sister has Stage 4 colon cancer

My sister was diagnosed with Stage 4 colon cancer in January of 2015. She had a colon resection and a total hysterectomy as it had spread to her ovaries. She was initially on FOLFOX and Avastin. After several negative PET scans her doctor started her on Xeloda. It was a [...]

Posted by lisac61, Tue, Aug 22, 2017 2:13pm

The Lonsurf is supposed to help with the colon cancer, etc. She is going to be getting radiation beads injected into the lesions on her liver (Y-90).

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Posted by lisac61, Tue, Aug 22, 2017 2:14pm

I'll be interested in any answers as my sister has wild type, too.

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Jun 29, 2017 · @cancerconnect · Research News: Test Could Improve Treatment for Early Colon Cancer

According to a new study in the Journal of Gastrointestinal Surgery, a simple widely available blood test could improve treatment for more than 1 in 6 stage 2 colon cancer patients. The researchers also discovered that many patients who could benefit from the test likely aren’t receiving it. Learn more [...]

Posted by cghow, Thu, Jun 29, 2017 7:08pm

I had this CEA test and mine was low. I had stage 2B colon cancer surgery and doctors still recommend adjuvant chemotherapy. Any other thoughts out there about this?
Connie

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Jun 18, 2017 · @fmmarcus · Clinical trials

I need help looking for a clinical trial (colon cancer). Is their an agency that can help locate appropriate trials. I can't do it alone. Thank u [...]

Posted by carolcowan, Sun, Jun 18, 2017 1:53am

Go to ClinicalTrials.gov and/or Cure Forward. They'll tell you how to look.
Carol

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Posted by katie5963, Sun, Jun 18, 2017 8:21am

https://www.cancer.gov/about-cancer/treatment/clinical-trials

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Tue, Apr 3 7:31pm · @pickthis · Stage 3 colon cancer chemo to do or not to do?

Hello, my dad who is 68 years of age had the colon cancer tumor removed may 1st and has just met with the oncologist. The oncologist has said he would like him to take the Xeloda pill for six months as chemo since the cancer was found in 3 lymph [...]

Posted by mykahla21, Tue, Apr 3, 2018 6:14pm

I congratulate you. You are a cancer survivor. That’s how I look at things. I always say I’m a survivor.

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Posted by 01171965, Tue, Apr 3, 2018 7:31pm

Thank you so much.yes we are
Survivors

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Jun 18, 2017 · @cab1964 · Son blood count 4 years after Stage 3 colon cancer.

So very concerned. Scan today. Don't know what to think. [...]

Posted by cab1964, Tue, Jun 13, 2017 9:37am

It is my son's scan. Won't know for 7-10 days.

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Posted by cab1964, Sun, Jun 18, 2017 5:56am

Good news. Scan clear

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May 30, 2017 · @kfarmer61 · Opdiva

Stage 4 rectal cancer that has metastasized to my lungs. Has been there since 2011. Recently one nodule has gotten bigger and several others have appeared; this is after I was on Lonsurf for 17 months. They have now put me on Opdiva and I am wondering if anyone has [...]

Posted by seaspray, Tue, May 30, 2017 10:08am

I have been on Opdivo since Sept., 2015. I have had around 45 infusions and almost all my tumors are gone! The only side effects I have is a zoomed up metabolism which effects my appetite but gives me endless energy. I have arthritis and am fairly certain Opdivo makes

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Posted by seaspray, Mon, Jun 26, 2017 8:25pm

How are you feeling on Opdivo?

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Jun 1, 2017 · @luisa · New Online Tool Guides Genetic Testing for Lynch Syndrome

A new online assessment tool developed at Dana-Farber can help rapidly identify people who should undergo genetic testing for Lynch syndrome, an inherited disorder that greatly increases the lifetime risk of colorectal, endometrial, ovarian, stomach, and other cancers. An estimated 1 in 279 individuals – nearly a million people in [...]

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Jun 13, 2017 · @mdichter · Chemo finished now what?

My husband was diagnosed with stage 4 (spread to distant lymph nodes but no other organs) colon cancer in October, he had surgery and just finished twelve rounds of chemo. He has a follow up appointment with the oncologist in a few weeks and then appointments for scans etc a [...]

Posted by carolcowan, Tue, Jun 13, 2017 11:28am

Megan,
I looked around a bit and there's not much written about your question. What I did see a few times was that some cancer patients said their ports were fine for traveling abroad, that they could be used here and overseas. I think the use of the word port (Portacath)

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Posted by pajamas35, Tue, Jun 13, 2017 3:19pm

When I got my port, they gave me a leaflet that accompanied it indicating the port manufacturer. Perhaps you have a leaflet or can ask the doctor about who the manufacturer is. Maybe that can lead you to the answer to your question

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Jun 11, 2017 · @pickthis · Stage 3a Colon Cancer 68 yr old male

My dad fell from his dump truck and fractured his pelvis (left acetabulum) on april 20th, 2017. While in the hospital he also caught pneumonia and his lungs filled up causing an aspiration and going code blue. They said he wouldn't make it through the night. He did .. and [...]

Posted by pickthis, Sat, Jun 3, 2017 12:05pm

Thank you so much. There was no fight this morning. I was ready to just say we are going to the doctors this morning but he was feeling so brutal he just said okay. You were right Carol!!! He has a prostate infection which will take two-three weeks to heal

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Posted by pickthis, Sun, Jun 11, 2017 5:55pm

Hello again ... my dad is still on meds for his infection but his right shoulder is now paining him even more than before and also has the same pain on the side of his right ribs and it looks swollen. The pain on his shoulder is at the top

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