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Mar 6, 2017 · @cancerconnect · Tips on How to Get The Most From Your Doctor

Diagnosed with Colon Cancer: 10 Tips on How to Get The Most From Your Doctor, read here: http://news.cancerconnect.com/diagnosed-colon-cancer-10-tips-get-doctor/ Share your tips! [...]

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Mar 10, 2017 · @Elliem · MATCH trial, Next step: Biopsy was yesterday

Hi everyone.. I had my biopsy yesterday. I was there for 5 hours. They wanted to make sure my lung didn't collapse after the biopsy. A little sore, but not bad. Had it done in a small hospital. They are sending my tumor material off to MDAnderson! There they will

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Mar 12, 2017 · @peregrine · Experience with Vectibix

Hello, I just joined CancerConnect. My mother was diagnosed January 2016 with stage 3c colon cancer. The tumor was in her lower ascending colon, where the cecum is located. Tumors here tend to be diagnosed at a later stage, as they can go undetected for a long time. She had

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Feb 25, 2017 · @Elliem · Precision Medicine: MATCH Trial

I'm going in for a biopsy on my lung mets after 3 1/2 years of stage 4 colorectal cancer. The biopsy is on the 27th of Feb. please keep me in your prayers. Then they send the sample off to a major cancer hospital (I hope they fly it first

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Posted by @nellasfightingthebigc, Feb 21, 2017

You will get good results I’m speaking it into existence for you!!! […]

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Mar 31, 2017 · @Elliem · Lung mets growing: frustrated and scared

My last Ct scan showed that my lung mets were growing. It did not even mention my colorectal tumor. When I asked my oncologist about that, he said "maybe it's gone." Something is wrong with this statement. I've been seeing this oncologist for 3 1/2 years. I feel like I'm

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Posted by @carolcowan, Feb 14, 2017

Ellie,
I truly do not like your doctor. That’s the kind and nice version of what I want to say. Tell him to try to have a bit of a positive outlook and apply for the darn compassionate use waiver. You don’t have to pay for that. In fact, I’ll […]

Liked by jamsann

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Mar 10, 2017 · @junderhill · New DX - Help Please

My wife (32 yrs old) was just diagnosed with stage 4 colon cancer last week (1 invasive adenocarcinoma in sigmoid colon, left side, 2.5 cm, T4bN0M1a G2) Docs either didn't want to confirm how many mets or aren't quite sure but they confirmed she has 10+ mets in her liver, [...]

Posted by @junderhill, Feb 9, 2017

Thank you Carol. They’ve not brought up trials or immunotherapy yet, but alluded to trials down the road. We sent the tissue sample from the colonoscopy off for genomic testing and they’re running additional blood work to better understand the cancer’s profile and to then assess other potential therapies. In […]

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Feb 16, 2017 · @Elliem · Tumor biopsy to look for treatments specific to genetics of my tumor

Hi everyone. My Lonsurf pills have stopped working. I have colorectal cancer with lung mets. My oncologist suggested a MATCH trial. They take a tumor biopsy and send it off to see if there are any treatments available to treat the genetic abnormalities in my tumor. It is scary to

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Posted by @linnythepoo, Feb 10, 2017

Hi Ellie,

I don’t know much about it but you might want to ask your doctor about the possibility of a Liquid biopsy.

Good luck!

Linda […]

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Feb 1, 2017 · @luisa · Exercise Shows Benefits for Metastatic Colorectal Cancer Patients

"Exercise Shows Benefits for Metastatic Colorectal Cancer Patients" New Dana-Farber Blog Post

This new post begins,

"Patients with metastatic colorectal cancer may be able to lower the risk of the disease worsening, and improve their chances of survival, if they engage in moderate daily exercise, according to new research by Dana-Farber investigators.

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Jan 16, 2017 · @Elliem · Experience with Lonsurf

I went through an episode of my Lonsurf making me really sick. Couldn't keep anything down, not even water. When you get dehydrated and don't know it, you begin to despair and lose hope. Luckily I called my infusion center and they had me come in for IV fluids containing

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Jan 17, 2017 · @veryconfused6 · Confused- what's next

Hello everyone. I was wondering if anyone could offer me some advice. I was taken into hospital after a ct scan picked up a perforated colon. I had been unwell for around 6weeks prior to this. I was operated on 3 days later. They removed a large tumour and 28

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Posted by @megm, Jan 13, 2017

Can you get a second opinion? […]

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Jan 10, 2017 · @stage4 · Considering supplements

Does anyone have any information about using supplements such as Tumeric Extract and Ginger Extract while receiving oral tablet chemotherapy treatments? Though these supplements are supposed to be beneficial, we've also read that they can prevent the chemo drug from working properly. Any feedback on this? Treatment is for stage

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Jan 7, 2017 · @fmmarcus · Share experience with Stivarga

I will be going on strivarga soon. I have questions. When is the best time to take it. Some take it at night before bed, others in the morning with a low fat meal. Also I would like to know what side effects experienced by people on strivarga. Thanks

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Posted by @carolcowan, Jan 5, 2017

Fran,
The best time to take Stivarga is after a lowfat meal, the same time every day. If you eat breakfast at roughly the same time each day and can make it a lowfat breakfast, it’s probably going to be easier to stay in those guidelines every day. Common side […]

Liked by daisy62, jamsann

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Jan 6, 2017 · @Jan · My story: there is hope!

Happy New Year! I was on xeloda for 6 months 8 rounds for stage 3A colon cancer..... it knock me down but was bearable, my biggest side effect at first was nausea diarrhea(doc gave me pills for both and it helped) and exhaustion, then after about 5 rounds neuropathy in

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Posted by @stevew, Jan 5, 2017

Thank you for your kind words,. As you know, I believe there a better blogs and sources of information than this particular blog. However, there are patients everywhere on every block and every website and all of them deserve the best information I can find. I do not claim to […]

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Feb 16, 2017 · @doralovelife54 · Experience with Xeloda & ileostomy blockage

First time here. Husband with colorectal cancer, ileostomy blockage has him hospitalized. He's finishing up his 2nd cycle of xeloda. He had to have nasal gastric suction--cramping was absolutely painful where he needed morphine every 2 hours; has anyone else undergone anything like this and does it happen often with

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Posted by @doralovelife54, Jan 11, 2017

we are finally going in to see his oncologist tomorrow—before his next treatment;  the oncologist seem to feel that it's not the chemo and his GI surgeon seems to feel it's not his food intake.   neither one of them seem to understand what is causing the problem.My thoughts?  As […]

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Dec 30, 2016 · @njsr · Trying to learn more about stage IV CRC treatment

Hello, we're new in all of this, my mom's 83 yesterday, healthy woman, looks younger for her age, did all her medicals work ups, like last march 2016 she did her colonoscopy, abdominal sonogram, labs, everything good. Now, November, 29,2016 went to ER with a heavy back pain, resulting in

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Posted by @njsr, Dec 29, 2016

You asked the same question we’re asking each day since the diagnostic!!! We live in Orlando let me check where it’s our near Whole Food!!! Thanks!! I just read my mom your and all the good excellent recommendations everybody give us!!! Blessings […]

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