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Mon, Jun 25 2:54pm · @HesterBIDMCModerator · Emotional Bank Account

As a very longtime oncology social worker at BIDMC in Boston, I have worked with many people who had colon or rectal cancesr. They, and others, have taught me so much, and one lesson has been about emotional bank accounts. I have long held a theory about emotional and [...]

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Wed, Jun 27 7:56am · @kimber · Firefighters with cancer

Hi, my husband died this past January of colon cancer. He was only 51 and was diagnosed at 47. He was a career firefighter. If you know anyone who is a firefighter and he or she has died from cancer or is battling it now, please reply. There’s strength in [...]

Posted by betula, Wed, Jun 27, 2018 7:56am

My husband was diagnosed in Dec 2016 with rectal cancer and he was 47 at the time. He has been a firefighter for 22 yrs. He has had chemo, radiation, surgery which resulted in a permanent colostomy. Recent ct and pet scans showed lung nodules and an area where is

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Mon, Jun 18 11:03am · @mich · Travelers insurance

I have stage 4 colon cancer can I travel from the us to Canada and pay for travelers insurance ?? Any one with experience or a company recommendation? Thank you. [...]

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Tue, Oct 2 7:13am · @spingirl1 · Appendiceal Colon Cancer

Hi Everyone! My husband was newly diagnosed with stage 4 Colon cancer that originated from his appendix. Apparently this is a super rare form so we were shocked when he got the diagnosis. Started with abdominal pain, so got a blood test. Hemoglobin levels super low, so CT scans later, [...]

Posted by charles, Mon, Oct 1, 2018 5:33pm

Curoius did the doctors treat the colon cancer located in the appendix the same as colon cancer in general or did they recommend something different? I hope you are doing well and we would love to learn what treatment was selected and why?
C

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Posted by Jan, Tue, Oct 2, 2018 7:13am

@spingirl1 keeping you in my prayers!

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Fri, Jun 22 6:36pm · @bethbourg · Running out of options?

Has anyone reached the end of chemo options? My husband has been on five or six combinations. His oncologist is looking into oral medications that might be appropriate if this most recent (Wednesday) change does not show any results. The copays are really prohibitive, but how do you put a [...]

Posted by lisac61, Fri, Jun 22, 2018 2:57am

Check to see if the drug manufacturer has a savings card. My sister was on Lonsurf and she paid a minimal amount for it.

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Posted by bethbourg, Fri, Jun 22, 2018 6:36pm

Thanks Lisa. Manufacturer turned us down. Exploring still.

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Sun, Jul 15 7:02am · @ranij · Symptoms after Colonic Carcinoma surgery radiation n chemo tsbs

I had radiation fir 1 1/2 mths and sugerory for the removal of the colonic carcinoma T3N2 plus appendix and ovaries in Jan 2018. Also i hv completed 5 courses of chemotherapy (Xeloda tsbs 1150mg) and on my 6th course for 2 wks. Why am I passing 7/8 small stools [...]

Posted by ranij, Fri, Jun 8, 2018 11:22am

Thank you so much and God bless you.

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Posted by ranij, Sun, Jul 8, 2018 5:14am

Dear Carol. Pursuant to my posting of 7th June 2018 above, I would like your advice as I have now completed my six courses of Xeloda tablets on 25th June 2018, and the oncology Dr has asked me to see him only on 5th November, 2018 prior to which I

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Thu, May 17 8:43am · @willnotgiveup · Trying to Give Hope to Stage 4 Colon Cancer Patients

Hi all, I have posted many times over the last number of years, so thought I would give an update. I was diagnosed with Stage 4 colon cancer in 2009 with metastisis to both lungs and liver. 170 chemos later and 8 surgeries including my last surgery in August [...]

Posted by willnotgiveup, Thu, May 17, 2018 8:36am

@bethbourg, yes I somewhat I understand - I was on that treatment and had the constant rashes, etc. but I never had to deal with a colostomy. Everyone has their individual path and yes, making constant adjustments. It is a constant battle. The researchers have added new treatments since I

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Posted by willnotgiveup, Thu, May 17, 2018 8:43am

@jazjjmado4, you certainly have a lot to deal with - having the tube changes every 7 weeks. Are you on chemo and do you have existing tumors? Where has your cancer spread and what was the treatment you have received since 2009? You are doing amazing! I think it is

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Wed, May 9 7:08pm · @angellinda · Had Chemo & Radiation for my low Rectal Cancer. I don't want surgery.

I survived Triple Negative Breast Cancer, Disabling Chemo, Radiation & surgeries. I'm a BRCA1 + Positive gene carrier. I lost quality of life, my job, income, savings & means in 2010. ALL of 2018 I've Fought Low Rectal Cancer. (Stage IIA). I did all I could to avoid losing my [...]

Posted by Jan, Wed, May 9, 2018 12:07pm

I feel for you! I had colon cancer but was lucky my surgery was successful, and I had chemo which wasn't fun as you all know, I am not living with the fear of it returning, but I am alive and that is worth everything...
I wish you all the

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Posted by Jan, Wed, May 9, 2018 7:08pm

I apologize I meant I live with the fear of it returning!!

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Wed, May 2 10:01am · @luisa · From Dana-Farber: What’s New in Colorectal Cancer Treatment & Research

From Dana-Farber: What’s New in Colorectal Cancer Treatment & Research? – Article and Video – Over 100,000 people are diagnosed with colon cancer, and 40,000 with rectal cancer, every year in the United States, according to the American Cancer Society. These cancers, which usually arise in the form of [...]

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Fri, May 4 10:27am · @sagar02 · What to do after Colon Cancer Treatment

Can any one give some valuable suggestions after post colon cancer.Thx. [...]

Posted by billswiger, Fri, May 4, 2018 8:21am

For me, colon cancer treatment was removal and bowel resection at Brigham and Women's.

Followup is get an opinion from a good Cancer Center.

For me, Dana Farber recommended adjunct therapy to kill possible stray cells. Therapy was 12 rounds of folfinox. For my circumstances, my oncologist said

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Posted by carolcowan, Fri, May 4, 2018 10:27am

Great post, Bill.
Carol

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Sat, Apr 21 10:28am · @luisa · From Dana-Farber: Nuts and Colon Cancer: What’s the Link?

Nuts and Colon Cancer: What’s the Link? – Research shows that consuming nuts reduces the risk of colon cancer recurrence and death, but scientists are still examining why — because at this time, there is no definite explanation for this correlation. The most recent study found a significant [...]

Posted by carolcowan, Sat, Apr 21, 2018 10:28am

Luisa,
I'm Carol, a moderator at CancerConnect. Thanks for posting this. I'm so busy doing my "moderating" I don't always have time to read the journal articles, studies, etc about cancer as I used to. Charles keeps me up on some things when he posts things for people.
I guess

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Sat, May 12 7:04am · @alisakg · Observations of my Stage IV colon cancer life.

I’ve been stage IV since the end of 2014 and stage III since 2013. I haven’t been working since I was diagnosed with stage IV. I rest most of the time and feel good because of it to the point where I think I can do more. I am constantly [...]

Posted by adjuster, Tue, May 8, 2018 12:54pm

Dear Carol,
My sincere apology to you and all. It was not my intent to hurt anyone I want to help like you do, but in a different direction! I do want to make clear that I am not advocating for any products nor have any intent for financial gain. I

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Posted by bheisler, Sat, May 12, 2018 7:04am

I have been stage 4 since oct 2013- day to day-

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Sat, Apr 14 5:49am · @cab1964 · Recurrence of colon cancer

Just got news that after 5 years my son’s colon cancer had spread to lung and lymph nodes. Doctor said can treat but not cure. Devastated! He is 48!years old. He is on pill. Don’t know the name yet. [...]

Posted by carolcowan, Fri, Apr 13, 2018 11:39pm

Cassie,
Most people who get Xeloda do well with it. Many continued or returned to work. One was a truck driver whose daughter was scared that he'd have horrible side effects. Fatigue is a common problem with Xeloda and most chemo. Part of the reason is cancer = fatigue with

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Posted by cab1964, Sat, Apr 14, 2018 5:49am

Thank you again carol. All that information was really helpful. I feel like I have better understanding of the treatment he is having. He is a tough guy and will fight his way through this treatment. He is working from home.

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Sat, Apr 14 7:14am · @magsmum · Colectomy or not?

Some 18 years ago I underwent a right hemi followed by 10 months of chemo for Stage 2+ colon cancer. My reward for undergoing the surgery, chemo and 18 years' worth of colonoscopies, etc.: my latest scope revealed an 8cm tumor and countless polyps, of which 50 were biopsied and [...]

Posted by carolcowan, Thu, Apr 5, 2018 6:12pm

Anne,
Home nursing visits are covered by health insurance companies with no charge to patients here in the US.
In case you do decide to get the colostomy, in Canada some ostomy supply manufacturers do have patient assistance programs to defray the cost of supplies or even provide supplies for

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Posted by magsmum, Sat, Apr 14, 2018 7:14am

Well, the squeaky wheel DOES get the grease! My gastro, after a few nudges, has gotten me set up with an excellent c-r surgeon, with whom I will meet on Tuesday. The CT scan of my liver was unsatisfactory so will have an ultrasound on Thursday. Three lymph nodes look

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Wed, Apr 4 11:55am · @cindyreeves · Nutrition Post Surgery

I am 6 months post stage 3 sigmoid colon cancer. I am still having a difficult time with nutrition. I cannot eat fresh fruits or vegetables due to diarrhea after eating them. I also cannot eat whole grain foods yet. I am often eating white rice, chicken and white bread. [...]

Posted by charles, Wed, Apr 4, 2018 9:21am

You really should be able to eat most foods without diarrhea at this point. Have your brought this to the attention of your doctor? I have found that protein milkshakes are a great and tasty way to push nutrition but i am not sure how these might impact the diarrhea.

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Posted by cat7847, Wed, Apr 4, 2018 11:55am

I had a bowel obstruction and had surgery where they removed a fifth of my intestine. I had terrible diarrhea when I came home from the hospital. I had to take 4 imodiums a day spaced out every 4 hours. I am now down to one per day but have

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