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Aug 25, 2018 · @HesterBIDMCModerator · Question about Be Well Programs

I have been asked to give a lecture at a training session for Be Well instructors. I know that many of you have taken this course at the Y, and I am hoping you will give me your suggestions. What do you wish the instructor had known? Were there topics [...]

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Aug 25, 2018 · @411769p · Stage IV colon cancer

I've been Xeloda, Irinotecan and Avastin for a year and I've become resistant to all of them. My oncologist is recommending Lonsurf. Anyone out there with any experiences with this drug. [...]

Posted by bethbourg, Sat, Aug 25, 2018 9:51am

I’m following your thread as my husband on the same path. Lonsurf is next on the list....

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Aug 23, 2018 · @lolymo2569 · After chemo

I have finished chemo in march for colon cancer. Since then I have been fatigued and exhausted, weak and not much of an appetite. Is it normal for the fatigue to last thing long after chemo ends? Does anybody know? Thank you in advance for any help that anyone [...]

Posted by charles, Thu, Aug 23, 2018 8:14am

Certainly can; there are however other common causes of fatigue post treatment. The most common of which are anemia and insomnia. Make sure you are not anemic and if you are having trouble sleeping talk to your doctor. its an easy fix!
C

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Posted by skadad, Thu, Aug 23, 2018 9:22pm

Might want to get your B12 levels checked too. Had the same issue for several months and discovered that was the cause.

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Oct 1, 2018 · @marunemom2082 · Skin rash and itching

Is there something that I can use [...]

Posted by bethbourg, Wed, Aug 22, 2018 8:13am

If you think it is a chemo reaction let your oncologist or nurse know. My husband ended up with several prescriptions from dermatology due to chemo side effects on skin.

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Posted by charles, Mon, Oct 1, 2018 5:26pm

Did you find anything to relieve the itching? Curious, were you taking and EFGR inhibitor medicine for you cancer?

C

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Jul 22, 2018 · @lisacan · Intra Abdominal abscess

Hi, I am new here, my husband was diagnosed with stage IV colon cancer that metastasized to his peritoneum and ometum. He had the colon resection on 2/1/18. Went through 6 rounds of chemo. then on 6/3/18 he was near death when I took him to ER, he was having [...]

Posted by carolcowan, Sun, Jul 22, 2018 8:24am

lisacan,
I'm Carol, a moderator here. I'm also a retired oncology and hospice RN. Welcome to the group. The nurse who told you she "would be after blood" and that she'd never seen that did you no favors. My role as a nurse is to help you deal with what's

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Aug 27, 2018 · @kzinzer · Free or Reduced Hair/Nails/Skin Services for OH Patients & Caregivers

"Healing Hands Power of Touch" in Columbus OH offers patients free wigs and a free handmade turban.... And haircuts (free for patients-survivors/$5 caregiver), manicures ($5/$10), pedicures ($10/$15), facials ($5/$15) and more. Services are provided with students and supervisors. There are a few locations. I visited "The Spa School" @ 5050 [...]

Posted by marunemom2082, Sun, Aug 26, 2018 8:03am

My husband has boils in his arm pit has anyone had this and what did u do

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Posted by carolcowan, Mon, Aug 27, 2018 1:18pm

That must be very painful. You definitely need to get a doctor's help with that.
Carol

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Jul 16, 2018 · @taylor1365 · CEA level

I was diagnosed with stage III colon last year, had an elevated CEA level that normalized after surgery. My last CEA level was 1.4 at the end of chemo and for my first 3month check yesterday its 9.8. Has anyone ever had a false CEA? I have scans in a [...]

Posted by georgebeker, Mon, Jul 16, 2018 6:49am

My wishes go your way. Based on my experience, CEA has not been a good predictor and level changes have brought much worry. A question, please - what was the CEA level before the chemo/surgery?

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Posted by taylor1365, Mon, Jul 16, 2018 7:55am

Thank you. 8.4 but then 0 postsurgery leveling out to 1.4-1.7 for the past year. The 9.8 was a big jump. I panicked and know that it just means look close and they are.

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Jul 12, 2018 · @ranij · Pain on the left side upper thigh

Pursuant to my posting of 7th June 2018 above, I would like your advice as I have now completed my six courses of Xeloda tablets on 25th June 2018, and the oncology Dr has asked me to see him only on 5th November, 2018 prior to which I have to [...]

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Jul 23, 2018 · @HesterBIDMCModerator · Insensitive Comments

We all get them: the comments about our cancers that leave us furious, in tears, or speechless. Here are my thoughts and some suggestions re how to manage them. Please read the blog and then come back here to share your experiences: How to Reply to the Ominous, the Invasive [...]

Posted by 10speedack, Mon, Jul 23, 2018 7:24am

Good Morning. I don't know how I got to this page when I opened the site up, but I read your posts and thought about it. With me, the best way to handle all the comments is with honesty. I just tell folks what I know and what i am

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Posted by HesterBIDMCModerator, Mon, Jul 23, 2018 9:24am

You clearly have a mature and very useful perspective. Thank you for sharing and, especially, for your humor.

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Liked by 10speedACK

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Jul 14, 2018 · @HesterBIDMCModerator · All I learned from my patients

Hester Hill Schnipper, LICSW, OSW-C, and author of our Living with Cancer blog, writes about her last day as a social worker at BIDMC. Read her thoughts and see what she's up to next (including continuing to write the blog!). http://bit.ly/2KUMNbk BIDMC.ORG Transitions and Remarks | BIDMC Translations on [...]

Posted by kzinzer, Sat, Jul 14, 2018 10:33am

Thanks for sharing- that was lovely.

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Jun 25, 2018 · @HesterBIDMCModerator · Emotional Bank Account

As a very longtime oncology social worker at BIDMC in Boston, I have worked with many people who had colon or rectal cancesr. They, and others, have taught me so much, and one lesson has been about emotional bank accounts. I have long held a theory about emotional and [...]

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Jun 27, 2018 · @kimber · Firefighters with cancer

Hi, my husband died this past January of colon cancer. He was only 51 and was diagnosed at 47. He was a career firefighter. If you know anyone who is a firefighter and he or she has died from cancer or is battling it now, please reply. There’s strength in [...]

Posted by betula, Wed, Jun 27, 2018 7:56am

My husband was diagnosed in Dec 2016 with rectal cancer and he was 47 at the time. He has been a firefighter for 22 yrs. He has had chemo, radiation, surgery which resulted in a permanent colostomy. Recent ct and pet scans showed lung nodules and an area where is

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Jun 18, 2018 · @mich · Travelers insurance

I have stage 4 colon cancer can I travel from the us to Canada and pay for travelers insurance ?? Any one with experience or a company recommendation? Thank you. [...]

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Oct 2, 2018 · @spingirl1 · Appendiceal Colon Cancer

Hi Everyone! My husband was newly diagnosed with stage 4 Colon cancer that originated from his appendix. Apparently this is a super rare form so we were shocked when he got the diagnosis. Started with abdominal pain, so got a blood test. Hemoglobin levels super low, so CT scans later, [...]

Posted by charles, Mon, Oct 1, 2018 5:33pm

Curoius did the doctors treat the colon cancer located in the appendix the same as colon cancer in general or did they recommend something different? I hope you are doing well and we would love to learn what treatment was selected and why?
C

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Posted by Jan, Tue, Oct 2, 2018 7:13am

@spingirl1 keeping you in my prayers!

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Jun 22, 2018 · @bethbourg · Running out of options?

Has anyone reached the end of chemo options? My husband has been on five or six combinations. His oncologist is looking into oral medications that might be appropriate if this most recent (Wednesday) change does not show any results. The copays are really prohibitive, but how do you put a [...]

Posted by lisac61, Fri, Jun 22, 2018 2:57am

Check to see if the drug manufacturer has a savings card. My sister was on Lonsurf and she paid a minimal amount for it.

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Posted by bethbourg, Fri, Jun 22, 2018 6:36pm

Thanks Lisa. Manufacturer turned us down. Exploring still.

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