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Fri, Mar 16 11:36am · @luisa · Facebook Live: What’s New in Colorectal Cancer Treatment and Research?

Facebook Live: What’s New in Colorectal Cancer Treatment and Research? Thursday, March 29, 12:30 p.m. ET Join us on Facebook Live for a Q&A discussion with Nadine J. McCleary, MD, MPH, of the Gastrointestinal Cancer Treatment Center at Dana-Farber. Dr. McCleary will take questions live while discussing the latest [...]

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Tue, Mar 6 6:12am · @julikay1981 · Colon cancer stage 2

Hi all! I was diagnosed with 2 no lymph and no metastasis. I had 3polys removed by hand assist laparoscopy on Jan 16,2018. Tests on polyps showed 2 benign and one cancer. Further tests revealed MMR positive. Therefore they recommend chemo by pill. I am 54 and did not have [...]

Posted by @carolcowan, Sat, Mar 3 6:57pm

Julikay,
I'm Carol, one of the moderators here. I think you should get a second opinion. If chemo was only effective in 5% of cases most patients would refuse it. Also, ask about clinical trials.
Carol […]

Liked by Terry

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Tue, May 15 1:21pm · @smccormack · Stage IV metastasis to distal lymph nodes.

Looking for stories from others with similar diagnosis and treatments used. I just started folfox. Started journey with stage 3B resection and clean up chemo, no mutations found. Reoccurance diagnosed in Feb. [...]

Posted by @kzinzer, Tue, May 15 11:50am

somehow my edit did not translate….so just to clarify:
nearbtye ileac arteries= near the ileac arteries
after they airgeon removed= after the surgeon removed […]

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Fri, Feb 23 7:13am · @maltman · Colon Cancer tumor marker testing

My doc says testing for tumor markers is key but how do you do this if your colon cancer was already removed somewhere else? [...]

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Mon, Feb 12 5:39pm · @pickthis · Bye bye Stage 3 Colon Cancer! Never to be seen again!

Hi Group. Again, I can’t thank you all enough for all of your replies and help. Jan and Carol you have been invaluable especially when panic set in. Which unfortunately happened a couple of times. I took my dad to his ct scan which finally happened January 18th. His oncologist [...]

Posted by @Jan, Mon, Feb 12 11:54am

That is excellent news!!! yayayay
Keep up positive thoughts!!! […]

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Sat, Feb 3 9:23pm · @carolcowan · SAD NEWS

I don't know how many people here remember Kimber. She was a member of the colon cancer group because her husband, a firefighter/paramedic, had colon cancer. Kimber was diagnosed with a rare kind of cancer called chordoma in her spine and had surgery. She stopped participating here except for a [...]

Posted by @curecancernow, Sat, Feb 3 8:09pm

God Bless Kim and her husband, and children. Kick Kancer. x Sandra […]

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Mon, Jan 22 11:09am · @lakeland3261 · Stage 4 colon cancer liver transplant

Does anyone know if a liver transplant can be done on a person with stage 4 colon cancer spread to her liver, but where the section of the colon that had the cancer has been sectioned off? Here in USA they won't do it citing the anti-suppressants for the new [...]

Posted by @charles, Mon, Jan 22 10:05am

This is a difficult decision- make sure you ask and get good answers to all your questions so you feel confident in whatever decision you make.
Yes it is true that liver transplant cases are done oversees and a liver is actually transplanted. The question is how are they defining […]

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Sun, Jan 21 8:17am · @charles · Advances in Treatment of Colon Cancer

2017 saw many advances in the treatment of colon cancer. Use of precision cancer medicines is increasing due to genomic testing; Here is link to latest targets and medications; http://news.cancerconnect.com/types-of-cancer/colon-cancer/precision-cancer-medicine/ Keep up to date with daily cancer news on treatment advances as well; http://news.cancerconnect.com/category/colon-cancer/ Wishing you the best in 2018 [...]

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Tue, Jan 23 5:17am · @mbr66 · Started Xeloda today

Hello everyone, I have started my first round of Xeloda this morning, after almost 3 months post surgery. I feel perfectly fine aside from a light headache. I was wondering if you guys have any suggestions or advice for me based on your own experiences with the medication. Thank you [...]

Posted by @Jan, Tue, Jan 16 4:28pm

Stay positive I know it’s hard!! I had trouble staying positive but it does help!!!
Reach out anytime!
Janet […]

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Fri, Jan 12 4:36pm · @bethbourg · Lonsurf

Has anyone been on Lonsurf? My husband is due to start soon after all of the insurance paperwork is done and we pay the overwhelming copay. Did you have good results? Any side effects? I just don’t understand how drugs are priced. It seems cruel to make people feel so [...]

Posted by @carolcowan, Fri, Jan 12 4:29pm

I had to take a drug called Sovaldi for chronic hepatitis C a few years ago. One tablet a day for 3 months. Each pill was $1,000. I was fortunate that our prescription plan paid all but about $43.00/mo. Gilead, the manufacturer, gave coupons to patients that paid part of […]

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Dec 12, 2017 · @jas_mine · Possible Colon Cancer

Hi I'm 19 years old. I found out that I have polyps in my colon to the point they will not be able to remove them so I will have to get my whole colon removed. I will have to wear a colostomy bag or a j pouch. I just [...]

Posted by @carolcowan, Dec 12, 2017

jsales99,
Jasmine has an inherited gene mutation that has nothing to do with “regular” colon cancer. There are too many polyps to remove and that’s why removing the entire colon provides the best chance of extending survival.
Carol […]

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Tue, Feb 6 6:29am · @barajasd72 · Colon Cancer mastastised to the liver

Hi, my name is David. My Sister was diagnosed with colon cancer last year. She finished chemo in April 2017. When she was re-checked in August 2017 (CT SCAN) radiology doctor located abnormalities to her liver. PET SCAN was done and went to follow up with the doctor and he [...]

Posted by @carolcowan, Tue, Feb 6 3:29am

@01171965,
Liver metastasis is cancer from another part of the body. It's NOT liver cancer. You're correct about liver metastasis indicating the patient has stage 4 cancer. Colon cancer that metastasizes to the liver is colon cancer in the liver.
Carol […]

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Fri, Jan 5 10:44am · @pickthis · Possible Sepsis

Hello group. Was hoping someone could help me. My father was supposed to start his lay cycle of Xeloda but instead caught an infection of sorts or so his family physician said. He started on a week of antibiotics then went back in and they hit him with another dose [...]

Posted by @pickthis, Fri, Jan 5 8:49am

Hi Carol. Sorry it took me so long to respond and I’m sorry for not keeping up with posting on here but it has been a very hard month. He was so up and down – feeling half decent one day then completely awful the next with this respiratory thing […]

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Sat, Feb 3 9:29pm · @yllekeduj · Stage 4 Metastatic Rectal Cancer also moved to liver & pelvis

Like recent information on survival rate of people who have Stage 4 Metastatic Rectal Cancer that has moved into the lymph nods in the pelvis & also multiple tumors in the liver. No cancer in bones, lungs or brain. 57 years old with no prior health conditions. Always been active [...]

Posted by @yllekeduj, Dec 13, 2017

I really appreciate your response & you have given me some more avenues to explore!!!
Many thanks for taking the time to reply, so much appreciated!!! […]

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Nov 18, 2017 · @charles · Liquid Biopsy to Direct Treatment

I think liquid biopsies will change the way we think about and treat cancer with new precision cancer medicines. Colon cancer has several biomarkers that can be used to direct treatment. http://news.cancerconnect.com/what-is-a-liquid-biopsy/ I am curious if anybodies physician has offered to do a liquid biopsy? C [...]

Posted by @carolcowan, Nov 18, 2017

Charles,
We have a member of the colon and rectal cancer group named EllieM. She posted frequently but I haven’t seen her posts for maybe a year now. She had what she called a “blood biopsy”. It was to see if there were genetic mutations and to see if there’s […]

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