Welcome to the CancerConnect Online Support Group for Colorectal Cancer Patients and Caregivers. Your story matters! Click Join Now to register for the community and join the conversation.

Dec 3, 2017 · @bethbourg · Rising CEA

My husband’s scans don’t show any new growth or increase in size in liver lesions. Colon tumor was removed in 11/2016 yet his CEA keeps creeping up. It was 78 a year ago and now over 200. Has anyone else experienced this? Thank you. [...]

Posted by @charles, Dec 2, 2017

Here is a link to the key biomarkers used for treatment decision making in colon cancer; http://news.cancerconnect.com/types-of-cancer/colon-cancer/diagnosis-tests/ FDA just approved the foundation one biomarker test this past week. Did insurance cover the test ?
C […]

Please login or register to post a reply.

Nov 17, 2017 · @katie5963 · Keytruda and colon cancer

Has anyone taken keytruda for colon cancer? [...]

Posted by @jaymacgirls, Nov 16, 2017

Yes, I have been on it for 2 years this coming March. Stage 3B. Scans currently clear. Little to no side effects for me. […]

Please login or register to post a reply.

Nov 28, 2017 · @kirby · Colon cancer type 3

I'm 61 and my mother died of a stroke at 70 and grandma at 60 Can chemo cause strokes.? [...]

Posted by @esther2k5, Nov 24, 2017

Chris Wark of chrisbeatscancer.com had advanced colon cancer in his late 20’s and had surgery but refused radiation & chemo and has been cancer free for 14 years. He made radical dietary changes and maintains a largely, though not exclusively, plant based diet and takes helpful nutritional supplements. Check out […]

Please login or register to post a reply.

Oct 17, 2017 · @cancerconnect · Research News: Targeting BRAF and EGFR

Results from a recent study imply that inhibiting BRAF along with EGFR in patients with advanced colon caner may be more potent than inhibiting either of these targets alone. Read more here: http://news.cancerconnect.com/targeting-braf-egfr-doubles-progression-free-survival-metastatic-colorectal-cancer/ [...]

Please login or register to post a reply.

Oct 12, 2017 · @pickthis · Low temperature with a cough and nasal congestion

Well it's already that time of the season. I thought I would have to start worrying bout the flu and colds closer to November but my dad has caught something. He of course says it's nothing and that he will get over it. But he is all stuffed up and [...]

Posted by @pickthis, Oct 11, 2017

Thank you! I will definitely ask the doctor about probiotics tomorrow. […]

Please login or register to post a reply.

Nov 16, 2017 · @tschneider · Stage IIA Colon cancer

I just had surgery to remove ascending and 1/2 of transverse colon. A stage IIA with 0/20 lymph nodes effected pathology report. I go to see the Oncologist today to talk about risk factors. I am a 49 year old, ex-world class athlete that is still in great shape. From [...]

Posted by @tschneider, Nov 6, 2017

I start my chemo session on Wednesday. I saw a few oncologists. Since my tumor went through the colon wall, they all recommended chemo, although there were differing treatment protocols. The treatment I am going with is a 3 month course. Oxiliplatin IV every 3 weeks, and Xeloda 2x/day for […]

Please login or register to post a reply.

Sep 26, 2017 · @katie5963 · SIRT, Y-90, radioembolization on liver

Has anyone recently had radioembolization, SIRT, Y-90 for liver mets from colon cancer? If so, would you share your experience? My husband is stage 4 and has been on chemo for 2+ yrs. [...]

Please login or register to post a reply.

Sep 21, 2017 · @sarag · bowel cancer

my husband had major surgery feb 2016 total colectomy n has ilioestomy now.had stage 3a1 bowel cancer.Was unable for xyledo due to poor health after surgery.So far scans n blood work fine but gets very tired after a few hours exercise n gets anxious about small things.Wondering if anybody had [...]

Posted by @sarag, Sep 21, 2017

our oncologist said the prognosis is very good and stage 3a1 has an 87% survival rate and he works in centre of excellence.After checking lots of sites on computer I’m getting the same figures. […]

Please login or register to post a reply.

Sep 25, 2017 · @angb · Newly diagnosed with colorectal cancer. Chemo ordered

Newly diagnosed with colorectal cancer. Had a baseball size tumor removed a month ago. There were some enlarged lymph nodes removed as well, six of seventeen were cancer. I was ordered twelve rounds of chemo. FOLFOX is my regimen Had first treatment already and did ok Kept up om nausea [...]

Posted by @pajamas35, Aug 26, 2017

Very good question. I did not realize at the time- I was at a point in which I was not throwing up any longer as a side effect. But after the 5th treatment(of 12) I didn’t make it home without throwing up. It was all dry heaves unlike before. It […]

Please login or register to post a reply.

Aug 11, 2017 · @skadad · Lung Surgery? Mistletoe?

Hi all - have been gratefully just reading and occasionally responding since original Stage 4 rectal cancer diagnosis in 2011. Went through the radiation, chemo, surgery, chemo routine then. Mets to lungs showed up in 2012 and did more chemo w/targeted radiation. Have been off chemo last two years as [...]

Posted by @shakti123, Aug 10, 2017

My husband has been diagnosed with stage 4 colon cancer. He had surgery done and tumor removed. Mets to the lungs. Had 2 chemo therapy to date.
No serious side effects except tingling in the fingers for a few days. His white blood count is very low at the moment. […]

Please login or register to post a reply.

Aug 7, 2017 · @mlofthus · lost

Hi my sister is 28 and was diagnosed with stage 4 colon cancer on 06/22/2017 and has had surgery a stint put in to help relive some pressure in her stomach. her legs stay pretty swollen at all times. she just got done with her second round of chemo and [...]

Posted by @carolcowan, Aug 7, 2017

I’m Carol, a moderator here. People;e with a family history of colon cancer and who get colon cancer when they’re under 50 yrs of age frequently do have it because of the genetic mutation. Switching to an organic diet is not going to make a difference in your sister’s […]

Please login or register to post a reply.

Wed, Jan 24 2:15pm · @411769p · Stage IV colon cancer

Diagnosed with stage 2b colon cancer in 2014, recurrent colon cancer 2015 and now stage IV 5/2017 with mets to pelvis, spleen, possibly pancreas with 2 spots in colon. My oncologist does not recommend surgery at this time. I'm currently doing chemo for 5fu, avastin & iriotecan IV every 2 [...]

Posted by @411769p, Wed, Jan 24 9:47am

I’ve been on avastin, irinotecan & xeloda for months. My most recent PET scan show that spleen & pancreas have been resolved & colon & uterus areas are improving. I am told by my oncologist that I would have to remain on chemo the rest of my life even if […]

Please login or register to post a reply.

Jul 24, 2017 · @cghow · Day 10 Nadir

I am on day 9 of my first round of xloda. I read about Days 10-14 are when your white blood count starts to drop and you can become more prone to infections. How do most of you handle this? Do you stay home and avoid going to public places? [...]

Posted by @pickthis, Jul 24, 2017

My dad is on his second week of his second cycle of Xeloda and has stage 3a colon cancer (I actually don’t know if it should be had or has as he had the surgery and they removed that area of his colon with the tumour but since the cancer […]

Please login or register to post a reply.

Jul 17, 2017 · @jennavere · 36 and recently diagnosed

I went in for a colonoscopy on Monday, July 10 because of a change in bowel habits, and was told I have colon cancer, which was confirmed with the pathology. Just had my CT scan this morning, and though I'm trying to remain positive, I've been on an emotional roller [...]

Posted by @mdichter, Jul 17, 2017

Hi Jenna,
My husband was diagnosed with stage 4 colon cancer in October. Needless to say it was terrifying (he is also fairly young- 43) . He had surgery and 12 rounds of chemo which he tolerated fairly well. He now is 2 months post chemo had his first round […]

Liked by Debbie, Terry

Please login or register to post a reply.

Jul 17, 2017 · @kayw · Colon Cancer

I am 3 years in remission from colon cancer and my white and red blood cell counts are low and continue to drop. Does anyone know what I can take or do to make them go back up? I also suffer with fatigue from this and wonder if there is [...]

Please login or register to post a reply.

Please login with your account or, if you aren't a member, join now.



Join Now