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Tue, Feb 5 4:13am · @smr2be · Cancer and signs of a stroke/blood clot

My father in law wil not go to the hospital though I begged him to. I dont know what to do. I feel the symptoms happening to him right now are life threatening and time is of the essence. Maybe I am wrong, but my gut says otherwise. He [...]

Posted by charles, Tue, Feb 5 4:13am

You are doing the right and being appropriately concerned. There are many causes of those symptoms, a stroke of course being one of them, although not perhaps the most common. Either way he needs to be evaluated by a doctor asap.
C

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Sun, Feb 3 8:22am · @411769p · Stage IV colon cancer

Praise God! When you haven't met your $1100 deductible or $3300 out of pocket for 2019 and the phamacy tells you your copay is $0 for Lonsurf. [...]

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Tue, Jan 29 11:46am · @mbr66 · Another scare - Check your appendix!!

Hi everyone, I just had my first colonoscopy after colon cancer surgery in October 2017 and 6 months of oral chemo Xeloda which ended in July 2018. Boy was I surprised! not only did they find 3 small new polyps that were taken out during the exam, but they saw something [...]

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Thu, Jan 31 6:46am · @411769p · Stage IV colon cancer: Rising CEA with Improved CT/PET

Has anyone had CEA level increase with CT and PET scans showing decrease in tumor size. [...]

Posted by 411769p, Wed, Jan 30 7:19am

Currently my CEA is 13.2

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Posted by Jan, Thu, Jan 31 6:46am

My oncologist said if the tumors are shrinking that is what concerns them! Mine went up a bit but very low 🙏🏻

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Thu, Feb 7 10:10am · @charles · Exercise during chemotherapy treatment?

A member is starting chemo this week and goes to pilates and runs on a regular basis. She wants to continue exercising but is afraid that chemo will prevent her from continuing her routine. Have others been able to stay active during chemo, what have you done? C [...]

Posted by hankconnects, Wed, Feb 6 11:04am

We I was getting chemo I stayed in for the next 3 day. I was told that I could to what I was going and keep active,

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Liked by Sandra

Posted by maclaurie, Thu, Feb 7 10:10am

I had chemo for over 3 years. I would book the first morning treatment, make sure I was busy for the hours it took to infuse (reading, writing, etc). Learning about how I would react to treatments, I would be the most active immediately after (travel/fly, attend meetings, exercise) and [...]

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Sun, Jan 20 3:58pm · @skadad · Lung Surgery for Stage IV CRC

Hi All -- My wife and I are meeting with a thoracic surgeon today to discuss removing my remaining CR spots that moved into my lungs several years ago. I've had radiation as much as possible; spots will respond well for awhile to first line treatments (5FU) but as [...]

Posted by charles, Sun, Jan 20 3:47pm

Did you receive additional treatment for the lung mets or just the surgery?
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Posted by georgebeker, Sun, Jan 20 3:58pm

The mets were removed in two operations, about three weeks apart. The operations were done at UVA via VATS (small incisions, essentially no recovery).

And, as I mentioned in my earlier post, I then had 6 months of every-other-week FOLFOX chemo. Each bi-weekly session started with an infusion at [...]

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Fri, Jan 25 1:14pm · @charles · Does Ginger Prevent Nausea?

Several posts have recently suggested Ginger can reduce chemotherapy associated nausea. Anyone have any experience with this? https://news.cancerconnect.com/treatment-care/ginger-supplements-reduce-chemotherapy-induced-nausea-3B6rHRbu9keWrwgbJujyTQ/ [...]

Posted by maclaurie, Fri, Jan 25 12:58pm

I drank mild ginger tea and took Zofran for nausea. This seems to help. I took Colace for the constipation which also made a difference. Lauriemacc

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Posted by anusuya, Fri, Jan 25 1:14pm

We used Smooth Move tea to balance the constipation that cropped up after days of zofran. He was on 3/day for a long time.

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Dec 20, 2018 · @HesterBIDMCModerator · Chemobrain

Did your brain change after cancer? It is an odd relief that chemobrain is now recognized as an authentic problem for some people during and after cancer treatment. Researchers have demonstrated that there are measurable changes in the brain post-chemo.Until recently, the medical establishment seemed to be avoiding owning [...]

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Dec 6, 2018 · @HesterBIDMCModerator · Who are your helpers?

We all know we need friends. We especially need them as we go through cancer. Please read my thoughts about building your cancer village and share your story and ideas with us https://www.bidmc.org/about-bidmc/blogs/blog-landing/living-with-cancer/2018/12/building-your-cancer-villag [...]

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Sun, Mar 24 5:03pm · @pmizzle7 · Recurrent Colong Cancer - I Need Someone To Talk To

Hello everyone, I'm a Stage II Colon Cancer survivor, had surgery followed by oral chemo in 2017 & thought everything was OK. Unbeknownst to myself and my Oncologist, some of it spread to my liver.. I'm now back on chemo, but intravenous this time. The tumors were shrinking but due [...]

Posted by pmizzle7, Sun, Mar 24 4:54pm

Nice to meet you George and thank you so much for your kind & encouraging words! They changed me from FOLFOX over to FOLFLIR & my CEA # has come down 12 points since the change. Congrats on your 5 years NED and I will definitely keep in touch!

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Posted by pmizzle7, Sun, Mar 24 5:03pm

Thank you Rusty63! Keep hope alive, we are gonna be OK!

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1 hour ago · @treebyriver · Immunotherapy Easier Than Chemo?

Hi I am coming up on my fourth immunotherapy at MDA in Houston. I am finding that I am having to unlearn some of my expectations with experiences with chemo since immunotherapy is different and at this point easier.

I have had small skin rashes, another level of fatigue, and other

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Posted by treebyriver, 1 day ago

I am on cycle 9 of the AZD 9150 and the medistat ( Imfinzi/ durvamalab). There was small growth and also small reduction the last time I had a scan. I'm getting over a respiratory illness presently. I'm still stable, glory to G-d.

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Liked by daisy62

Posted by tedpro, 1 hour ago

Wonderful. I am a novice to cancer having stage 4 throat cancer with 5 tumors with one extending below the vocal cord an into lung, I had chemo and server radiation with the last treatments June 1918. I am in recovery with no or little sign of cancer.
I [...]

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Nov 28, 2018 · @HesterBIDMCModerator · When a friend has cancer

When a friend has cancer, the usual rules and responsibilities of a close relationship change. This is not a 50/50 or even a 70/30 connection. Instead, for the duration of your friend’s treatment, you need to carry at least 90% of the friendship. This means that your needs come a [...]

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Dec 8, 2018 · @charles · Tissue Agnostic Genomic Based Treatment--Share Your Thoughts

I wanted to share a recent blog about the FDA approval of a 2nd "tissue agnostic" cancer drug. All patients should understand this emerging shift in how cancer can be treated. Its happening quickly, will create confusion, take awhile to be incorporated into how doctors evaluate and manage a cancer, [...]

Posted by pvaritimidis, Dec 7, 2018

Maclaurie I agree with you 100%!! Thank you Charles.l
Paula

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Posted by mrtaylor, Dec 8, 2018

There are many clinical trails testing againsts specific mutations. I saw this one for alk, https://clinicaltrials.gov/ct2/show/NCT03310541

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Liked by esther2k5

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Nov 9, 2018 · @rosao · Non stop

My son was diagnosed with colo/rectal cancer 5/17. Since them he has done chemo. N radiation, a complete colectomy, a 2nd round of chemo then in match of this year he had a tumor in the lower left lobe. June of this year je had a lobectomy of the lower [...]

Posted by georgebeker, Nov 9, 2018

Angry I understand. Although I should know better, I keep looking for "fair" in all this - it's apparently not to be. My hope is that your met is in a place where they can get to it easily. My two re-sections (on in each lung) were done at UVA [...]

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Liked by Jan

Posted by HesterBIDMCModerator, Nov 9, 2018

Angry is a completely appropriate response!

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Nov 2, 2018 · @foltzjane · genetic coding with bile duct cancer

I started out with cancer in the bile duct and went through whipple radiation and chemo. I am now on second round of chemo (gemzar oxipalatin) do to a reoccurrence. What really has me stymied is that my cancer has a Jax2 genetic root. Jax2 is the genetic root of [...]

Posted by mike23, Nov 1, 2018

For like 6 months i started getting pain each day it got worse and so I went to emergency room and they said I have Leukocytosis and go see ur doctor asap we think you have some sort of blood cancer then everything hit me like a ton of bricks

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Posted by foltzjane, Nov 2, 2018

Maybe the immunology drug called Jacifi (spelling probably wrong) may be meant for you. They usually do a genetic screening on the cancer to determine if there is a genetic source. Might be worth asking your doctor. Best of luck to you and never give up the fight. New breakthroughs [...]

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