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Fri, Jun 22 6:36pm · @bethbourg · Running out of options?

Has anyone reached the end of chemo options? My husband has been on five or six combinations. His oncologist is looking into oral medications that might be appropriate if this most recent (Wednesday) change does not show any results. The copays are really prohibitive, but how do you put a [...]

Posted by @lisac61, Fri, Jun 22 2:57am

Check to see if the drug manufacturer has a savings card. My sister was on Lonsurf and she paid a minimal amount for it. […]

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Sun, Jul 15 7:02am · @ranij · Symptoms after Colonic Carcinoma surgery radiation n chemo tsbs

I had radiation fir 1 1/2 mths and sugerory for the removal of the colonic carcinoma T3N2 plus appendix and ovaries in Jan 2018. Also i hv completed 5 courses of chemotherapy (Xeloda tsbs 1150mg) and on my 6th course for 2 wks. Why am I passing 7/8 small stools [...]

Posted by @ranij, Fri, Jun 8 11:22am

Thank you so much and God bless you. […]

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Wed, May 23 3:28pm · @luisa · Colon Cancer Prevention Brings Father and Son Together

Colon Cancer Prevention Brings Father and Son Together – Pat Quinn and his son, Lukas, have a lot in common. They’re both die-hard sports fans, devoted to the New York Giants and Syracuse Orange. They’re both kind, loving people known for giving great hugs. And when genetic testing [...]

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Thu, May 17 8:43am · @willnotgiveup · Trying to Give Hope to Stage 4 Colon Cancer Patients

Hi all, I have posted many times over the last number of years, so thought I would give an update. I was diagnosed with Stage 4 colon cancer in 2009 with metastisis to both lungs and liver. 170 chemos later and 8 surgeries including my last surgery in August [...]

Posted by @willnotgiveup, Thu, May 17 8:36am

@bethbourg, yes I somewhat I understand – I was on that treatment and had the constant rashes, etc. but I never had to deal with a colostomy. Everyone has their individual path and yes, making constant adjustments. It is a constant battle. The researchers have added new treatments since I […]

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Wed, May 9 7:08pm · @angellinda · Had Chemo & Radiation for my low Rectal Cancer. I don't want surgery.

I survived Triple Negative Breast Cancer, Disabling Chemo, Radiation & surgeries. I'm a BRCA1 + Positive gene carrier. I lost quality of life, my job, income, savings & means in 2010. ALL of 2018 I've Fought Low Rectal Cancer. (Stage IIA). I did all I could to avoid losing my [...]

Posted by @Jan, Wed, May 9 12:07pm

I feel for you! I had colon cancer but was lucky my surgery was successful, and I had chemo which wasn't fun as you all know, I am not living with the fear of it returning, but I am alive and that is worth everything…
I wish you all the […]

Liked by angellinda

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Wed, May 2 10:01am · @luisa · From Dana-Farber: What’s New in Colorectal Cancer Treatment & Research

From Dana-Farber: What’s New in Colorectal Cancer Treatment & Research? – Article and Video – Over 100,000 people are diagnosed with colon cancer, and 40,000 with rectal cancer, every year in the United States, according to the American Cancer Society. These cancers, which usually arise in the form of [...]

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Fri, May 4 10:27am · @sagar02 · What to do after Colon Cancer Treatment

Can any one give some valuable suggestions after post colon cancer.Thx. [...]

Posted by @billswiger, Fri, May 4 8:21am

For me, colon cancer treatment was removal and bowel resection at Brigham and Women's.

Followup is get an opinion from a good Cancer Center.

For me, Dana Farber recommended adjunct therapy to kill possible stray cells. Therapy was 12 rounds of folfinox. For my circumstances, my oncologist said […]

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Sat, Apr 21 10:28am · @luisa · From Dana-Farber: Nuts and Colon Cancer: What’s the Link?

Nuts and Colon Cancer: What’s the Link? – Research shows that consuming nuts reduces the risk of colon cancer recurrence and death, but scientists are still examining why — because at this time, there is no definite explanation for this correlation. The most recent study found a significant [...]

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Sat, May 12 7:04am · @alisakg · Observations of my Stage IV colon cancer life.

I’ve been stage IV since the end of 2014 and stage III since 2013. I haven’t been working since I was diagnosed with stage IV. I rest most of the time and feel good because of it to the point where I think I can do more. I am constantly [...]

Posted by @adjuster, Tue, May 8 12:54pm

Dear Carol,
My sincere apology to you and all. It was not my intent to hurt anyone I want to help like you do, but in a different direction! I do want to make clear that I am not advocating for any products nor have any intent for financial gain. I […]

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Sat, Apr 14 5:49am · @cab1964 · Recurrence of colon cancer

Just got news that after 5 years my son’s colon cancer had spread to lung and lymph nodes. Doctor said can treat but not cure. Devastated! He is 48!years old. He is on pill. Don’t know the name yet. [...]

Posted by @carolcowan, Fri, Apr 13 11:39pm

Cassie,
Most people who get Xeloda do well with it. Many continued or returned to work. One was a truck driver whose daughter was scared that he'd have horrible side effects. Fatigue is a common problem with Xeloda and most chemo. Part of the reason is cancer = fatigue with […]

Liked by Alisakg

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Sat, Apr 14 7:14am · @magsmum · Colectomy or not?

Some 18 years ago I underwent a right hemi followed by 10 months of chemo for Stage 2+ colon cancer. My reward for undergoing the surgery, chemo and 18 years' worth of colonoscopies, etc.: my latest scope revealed an 8cm tumor and countless polyps, of which 50 were biopsied and [...]

Posted by @carolcowan, Thu, Apr 5 6:12pm

Anne,
Home nursing visits are covered by health insurance companies with no charge to patients here in the US.
In case you do decide to get the colostomy, in Canada some ostomy supply manufacturers do have patient assistance programs to defray the cost of supplies or even provide supplies for […]

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Wed, Apr 4 11:55am · @cindyreeves · Nutrition Post Surgery

I am 6 months post stage 3 sigmoid colon cancer. I am still having a difficult time with nutrition. I cannot eat fresh fruits or vegetables due to diarrhea after eating them. I also cannot eat whole grain foods yet. I am often eating white rice, chicken and white bread. [...]

Posted by @charles, Wed, Apr 4 9:21am

You really should be able to eat most foods without diarrhea at this point. Have your brought this to the attention of your doctor? I have found that protein milkshakes are a great and tasty way to push nutrition but i am not sure how these might impact the diarrhea. […]

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Tue, May 8 10:29am · @n2xs · Chemo after surgery even if already had radiation-chemo prior?

Question should do 6 mos of chemo and Iv after colorectal surgery removed tumor and 12 lymph now cancer free but onc wants to do chemo for stray cancer cells? Should I or do I really need this again since it was done pre-surgery? [...]

Posted by @jazjjmado4, Tue, May 8 10:12am

I asked them to cut the dosage a bit and they did and it helped I would hate to think I went through all the trouble and didn't get it all I think they put the dosage by your weight I am assuming it doesn't hurt to ask Ronna […]

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Fri, Mar 16 11:36am · @luisa · Facebook Live: What’s New in Colorectal Cancer Treatment and Research?

Facebook Live: What’s New in Colorectal Cancer Treatment and Research? Thursday, March 29, 12:30 p.m. ET Join us on Facebook Live for a Q&A discussion with Nadine J. McCleary, MD, MPH, of the Gastrointestinal Cancer Treatment Center at Dana-Farber. Dr. McCleary will take questions live while discussing the latest [...]

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Tue, Mar 6 6:12am · @julikay1981 · Colon cancer stage 2

Hi all! I was diagnosed with 2 no lymph and no metastasis. I had 3polys removed by hand assist laparoscopy on Jan 16,2018. Tests on polyps showed 2 benign and one cancer. Further tests revealed MMR positive. Therefore they recommend chemo by pill. I am 54 and did not have [...]

Posted by @carolcowan, Sat, Mar 3 6:57pm

Julikay,
I'm Carol, one of the moderators here. I think you should get a second opinion. If chemo was only effective in 5% of cases most patients would refuse it. Also, ask about clinical trials.
Carol […]

Liked by Terry

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