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Nov 9, 2018 · @rosao · Non stop

My son was diagnosed with colo/rectal cancer 5/17. Since them he has done chemo. N radiation, a complete colectomy, a 2nd round of chemo then in match of this year he had a tumor in the lower left lobe. June of this year je had a lobectomy of the lower [...]

Posted by georgebeker, Nov 9, 2018

Angry I understand. Although I should know better, I keep looking for "fair" in all this - it's apparently not to be. My hope is that your met is in a place where they can get to it easily. My two re-sections (on in each lung) were done at UVA

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Liked by Jan

Posted by HesterBIDMCModerator, Nov 9, 2018

Angry is a completely appropriate response!

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Liked by Jan

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Nov 2, 2018 · @foltzjane · genetic coding with bile duct cancer

I started out with cancer in the bile duct and went through whipple radiation and chemo. I am now on second round of chemo (gemzar oxipalatin) do to a reoccurrence. What really has me stymied is that my cancer has a Jax2 genetic root. Jax2 is the genetic root of [...]

Posted by mike23, Nov 1, 2018

For like 6 months i started getting pain each day it got worse and so I went to emergency room and they said I have Leukocytosis and go see ur doctor asap we think you have some sort of blood cancer then everything hit me like a ton of bricks

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Posted by foltzjane, Nov 2, 2018

Maybe the immunology drug called Jacifi (spelling probably wrong) may be meant for you. They usually do a genetic screening on the cancer to determine if there is a genetic source. Might be worth asking your doctor. Best of luck to you and never give up the fight. New breakthroughs

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Oct 29, 2018 · @HesterBIDMCModerator · Bell Ringing and other Public "Celebrations"

Some cancer centers encourage people to mark the end of their chemo treatment by ringing a bell. Personally, I hate this tradition–both because I am superstitious about some things and, primarily, because I think it is insensitive and unfair to people who will never finish cancer treatment. Please read my [...]

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Wed, Jan 23 8:01am · @katie5963 · Cetuximab

This maybe the next treatment for my husband’s stage 4 colon cancer. Anyone using it...have any comments...advise? [...]

Posted by moltenfe, Tue, Jan 22 9:17pm

How old was he when his disease presented?

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Posted by charles, Wed, Jan 23 8:01am

Has he started treatment? Is this his first EFGR inhibitor medication? How is it going?
C

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Dec 6, 2018 · @Jan · Recurrence: Rx with Oxialplatin and 5FU?

Well after 3 years my colon cancer is back in my lung, my doctor assured me there is a small trace of disease but still recurrence so I am scared stiff and so nervous about the side effects of these 2 drugs... I was on xeloda the first time and [...]

Posted by pmizzle7, Dec 5, 2018

I had colon cancer too, had surgery and oral chemo and thought that I was OK. Little did we know. but some of it spread to my liver & now I'm back on chemo, but not oral but intravenous 5FU. So far, I've tolerated it pretty well, but the oxy

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Posted by charles, Dec 6, 2018

It would be great if the genomic testing identified some potential treatable targets; there are several newer precision cancer medicines with fewer side effects now available: https://mavendoctors.io/cancerconnect/colon-cancer/precision-cancer-medicines-for-colon-cancer-k9pfxLhWk0WaJ-JtYC4QfQ/

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Mon, Jan 14 8:25am · @pworley · Oxiplatin & Xelox for CRC-Concerned About Side Effects-Neuropathy

Hands are tingly and iv injection is sore but praying this will be tolerable for me. Trying to do 3 months based on the new IDEA study. Oncotype was a 6 but t4nomo- 9mm tumor that was removed. [...]

Posted by Jan, Oct 31, 2018

@charles great article!

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Posted by charles, Mon, Jan 14 8:25am

I just read a research report that there is now a "shortened" treatment regimen for oxaliplatin that reduces the risk of neuropathy. It can be used in low risk stage 2 and 3 colon cancer. Has anyone's doctor offered them this?

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Oct 3, 2018 · @luisa · From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer?

From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer? -- Colon cancer is the fourth most common cancer diagnosed in men and women in the United States. Colon and rectal cancers are often collectively referred to as colorectal cancer. Most colorectal cancers start as a growth on the [...]

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Oct 19, 2018 · @pworley · Chemo or not?

Just had t-4nomo tumor removed. No lymph node invasaion. Got a 6 on the recurrence score on oncotype test. Doctor wants to do chemo but I am getting another opinion to help decide? Anyone else had this situation? Any thoughts? [...]

Posted by Jan, Oct 18, 2018

Thank you for answering me
Did you loose your hair? I am so nervous my daughter is getting married and I just want to be able to help plan her wedding. This all just sucks. But I will fight! Bless You!

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Posted by cindyreeves, Oct 19, 2018

I had Xeloda and Oxiloplatin for treatment along with radiation and I did not lose any hair. Have a good time at the wedding!

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Aug 25, 2018 · @HesterBIDMCModerator · Question about Be Well Programs

I have been asked to give a lecture at a training session for Be Well instructors. I know that many of you have taken this course at the Y, and I am hoping you will give me your suggestions. What do you wish the instructor had known? Were there topics [...]

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Aug 25, 2018 · @411769p · Stage IV colon cancer

I've been Xeloda, Irinotecan and Avastin for a year and I've become resistant to all of them. My oncologist is recommending Lonsurf. Anyone out there with any experiences with this drug. [...]

Posted by bethbourg, Aug 25, 2018

I’m following your thread as my husband on the same path. Lonsurf is next on the list....

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Aug 23, 2018 · @lolymo2569 · After chemo

I have finished chemo in march for colon cancer. Since then I have been fatigued and exhausted, weak and not much of an appetite. Is it normal for the fatigue to last thing long after chemo ends? Does anybody know? Thank you in advance for any help that anyone [...]

Posted by charles, Aug 23, 2018

Certainly can; there are however other common causes of fatigue post treatment. The most common of which are anemia and insomnia. Make sure you are not anemic and if you are having trouble sleeping talk to your doctor. its an easy fix!
C

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Posted by skadad, Aug 23, 2018

Might want to get your B12 levels checked too. Had the same issue for several months and discovered that was the cause.

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Oct 1, 2018 · @marunemom2082 · Skin rash and itching

Is there something that I can use [...]

Posted by bethbourg, Aug 22, 2018

If you think it is a chemo reaction let your oncologist or nurse know. My husband ended up with several prescriptions from dermatology due to chemo side effects on skin.

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Posted by charles, Oct 1, 2018

Did you find anything to relieve the itching? Curious, were you taking and EFGR inhibitor medicine for you cancer?

C

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Jul 22, 2018 · @lisacan · Intra Abdominal abscess

Hi, I am new here, my husband was diagnosed with stage IV colon cancer that metastasized to his peritoneum and ometum. He had the colon resection on 2/1/18. Went through 6 rounds of chemo. then on 6/3/18 he was near death when I took him to ER, he was having [...]

Posted by carolcowan, Jul 22, 2018

lisacan,
I'm Carol, a moderator here. I'm also a retired oncology and hospice RN. Welcome to the group. The nurse who told you she "would be after blood" and that she'd never seen that did you no favors. My role as a nurse is to help you deal with what's

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Aug 27, 2018 · @kzinzer · Free or Reduced Hair/Nails/Skin Services for OH Patients & Caregivers

"Healing Hands Power of Touch" in Columbus OH offers patients free wigs and a free handmade turban.... And haircuts (free for patients-survivors/$5 caregiver), manicures ($5/$10), pedicures ($10/$15), facials ($5/$15) and more. Services are provided with students and supervisors. There are a few locations. I visited "The Spa School" @ 5050 [...]

Posted by marunemom2082, Aug 26, 2018

My husband has boils in his arm pit has anyone had this and what did u do

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Posted by carolcowan, Aug 27, 2018

That must be very painful. You definitely need to get a doctor's help with that.
Carol

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Jul 16, 2018 · @taylor1365 · CEA level

I was diagnosed with stage III colon last year, had an elevated CEA level that normalized after surgery. My last CEA level was 1.4 at the end of chemo and for my first 3month check yesterday its 9.8. Has anyone ever had a false CEA? I have scans in a [...]

Posted by georgebeker, Jul 16, 2018

My wishes go your way. Based on my experience, CEA has not been a good predictor and level changes have brought much worry. A question, please - what was the CEA level before the chemo/surgery?

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Posted by taylor1365, Jul 16, 2018

Thank you. 8.4 but then 0 postsurgery leveling out to 1.4-1.7 for the past year. The 9.8 was a big jump. I panicked and know that it just means look close and they are.

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