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3 hours ago · @katie5963 · Cetuximab

This maybe the next treatment for my husband’s stage 4 colon cancer. Anyone using it...have any comments...advise? [...]

Posted by bethbourg, 3 hours ago

My husband did well. Very similar side effects as Erbitux but I would say skin rashes not as bad.

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1 day ago · @Jan · Recurrence: Rx with Oxialplatin and 5FU?

Well after 3 years my colon cancer is back in my lung, my doctor assured me there is a small trace of disease but still recurrence so I am scared stiff and so nervous about the side effects of these 2 drugs... I was on xeloda the first time and [...]

Posted by charles, 1 day ago

Side effects are similar to Xeloda - many in the group here have shared their experience: http://cancerconnect.com/discussion/started-oxiplatin-and-xelox-for-stage-2b-yesterday/?utm_campaign=hub_email&utm_source=email&utm_medium=digest_view_more_link Did your doctor perform genomic test on your cancer to see if newer precision cancer medicines might work?
C

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2 days ago · @pworley · Oxiplatin & Xelox for CRC-Concerned About Side Effects-Neuropathy

Hands are tingly and iv injection is sore but praying this will be tolerable for me. Trying to do 3 months based on the new IDEA study. Oncotype was a 6 but t4nomo- 9mm tumor that was removed. [...]

Posted by jazjjmado4, 2 days ago

the best advice I can give you is tell the Dr and nurses your side effect hands and feet tingling ect I just thought it was normal didn't say anything and the nephropathy for me still 10 yrs almost later is very bad I have fentenayle patch 100 mg change

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Posted by pworley, 2 days ago

I started but have had side effects so dr is going to reduce the dosage of xelox and extend treatment longer.
Please communicate your side effects as nurse and doctor will adjust for you. It was hard to know what was normal but be aware of any severe side effects

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Wed, Oct 3 10:42am · @luisa · From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer?

From Dana-Farber: What Are the Signs & Symptoms of Colon Cancer? -- Colon cancer is the fourth most common cancer diagnosed in men and women in the United States. Colon and rectal cancers are often collectively referred to as colorectal cancer. Most colorectal cancers start as a growth on the [...]

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1 day ago · @pworley · Chemo or not?

Just had t-4nomo tumor removed. No lymph node invasaion. Got a 6 on the recurrence score on oncotype test. Doctor wants to do chemo but I am getting another opinion to help decide? Anyone else had this situation? Any thoughts? [...]

Posted by Jan, 3 days ago

Thank you for answering me
Did you loose your hair? I am so nervous my daughter is getting married and I just want to be able to help plan her wedding. This all just sucks. But I will fight! Bless You!

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Posted by cindyreeves, 1 day ago

I had Xeloda and Oxiloplatin for treatment along with radiation and I did not lose any hair. Have a good time at the wedding!

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Sat, Aug 25 9:53am · @HesterBIDMCModerator · Question about Be Well Programs

I have been asked to give a lecture at a training session for Be Well instructors. I know that many of you have taken this course at the Y, and I am hoping you will give me your suggestions. What do you wish the instructor had known? Were there topics [...]

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Sat, Aug 25 9:51am · @411769p · Stage IV colon cancer

I've been Xeloda, Irinotecan and Avastin for a year and I've become resistant to all of them. My oncologist is recommending Lonsurf. Anyone out there with any experiences with this drug. [...]

Posted by bethbourg, Sat, Aug 25, 2018 9:51am

I’m following your thread as my husband on the same path. Lonsurf is next on the list....

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Thu, Aug 23 9:22pm · @lolymo2569 · After chemo

I have finished chemo in march for colon cancer. Since then I have been fatigued and exhausted, weak and not much of an appetite. Is it normal for the fatigue to last thing long after chemo ends? Does anybody know? Thank you in advance for any help that anyone [...]

Posted by charles, Thu, Aug 23, 2018 8:14am

Certainly can; there are however other common causes of fatigue post treatment. The most common of which are anemia and insomnia. Make sure you are not anemic and if you are having trouble sleeping talk to your doctor. its an easy fix!
C

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Posted by skadad, Thu, Aug 23, 2018 9:22pm

Might want to get your B12 levels checked too. Had the same issue for several months and discovered that was the cause.

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Mon, Oct 1 5:26pm · @marunemom2082 · Skin rash and itching

Is there something that I can use [...]

Posted by bethbourg, Wed, Aug 22, 2018 8:13am

If you think it is a chemo reaction let your oncologist or nurse know. My husband ended up with several prescriptions from dermatology due to chemo side effects on skin.

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Posted by charles, Mon, Oct 1, 2018 5:26pm

Did you find anything to relieve the itching? Curious, were you taking and EFGR inhibitor medicine for you cancer?

C

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Sun, Jul 22 8:24am · @lisacan · Intra Abdominal abscess

Hi, I am new here, my husband was diagnosed with stage IV colon cancer that metastasized to his peritoneum and ometum. He had the colon resection on 2/1/18. Went through 6 rounds of chemo. then on 6/3/18 he was near death when I took him to ER, he was having [...]

Posted by carolcowan, Sun, Jul 22, 2018 8:24am

lisacan,
I'm Carol, a moderator here. I'm also a retired oncology and hospice RN. Welcome to the group. The nurse who told you she "would be after blood" and that she'd never seen that did you no favors. My role as a nurse is to help you deal with what's

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Mon, Aug 27 1:18pm · @kzinzer · Free or Reduced Hair/Nails/Skin Services for OH Patients & Caregivers

"Healing Hands Power of Touch" in Columbus OH offers patients free wigs and a free handmade turban.... And haircuts (free for patients-survivors/$5 caregiver), manicures ($5/$10), pedicures ($10/$15), facials ($5/$15) and more. Services are provided with students and supervisors. There are a few locations. I visited "The Spa School" @ 5050 [...]

Posted by marunemom2082, Sun, Aug 26, 2018 8:03am

My husband has boils in his arm pit has anyone had this and what did u do

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Posted by carolcowan, Mon, Aug 27, 2018 1:18pm

That must be very painful. You definitely need to get a doctor's help with that.
Carol

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Mon, Jul 16 7:55am · @taylor1365 · CEA level

I was diagnosed with stage III colon last year, had an elevated CEA level that normalized after surgery. My last CEA level was 1.4 at the end of chemo and for my first 3month check yesterday its 9.8. Has anyone ever had a false CEA? I have scans in a [...]

Posted by georgebeker, Mon, Jul 16, 2018 6:49am

My wishes go your way. Based on my experience, CEA has not been a good predictor and level changes have brought much worry. A question, please - what was the CEA level before the chemo/surgery?

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Posted by taylor1365, Mon, Jul 16, 2018 7:55am

Thank you. 8.4 but then 0 postsurgery leveling out to 1.4-1.7 for the past year. The 9.8 was a big jump. I panicked and know that it just means look close and they are.

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Thu, Jul 12 3:32am · @ranij · Pain on the left side upper thigh

Pursuant to my posting of 7th June 2018 above, I would like your advice as I have now completed my six courses of Xeloda tablets on 25th June 2018, and the oncology Dr has asked me to see him only on 5th November, 2018 prior to which I have to [...]

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Mon, Jul 23 9:24am · @HesterBIDMCModerator · Insensitive Comments

We all get them: the comments about our cancers that leave us furious, in tears, or speechless. Here are my thoughts and some suggestions re how to manage them. Please read the blog and then come back here to share your experiences: How to Reply to the Ominous, the Invasive [...]

Posted by 10speedack, Mon, Jul 23, 2018 7:24am

Good Morning. I don't know how I got to this page when I opened the site up, but I read your posts and thought about it. With me, the best way to handle all the comments is with honesty. I just tell folks what I know and what i am

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Posted by HesterBIDMCModerator, Mon, Jul 23, 2018 9:24am

You clearly have a mature and very useful perspective. Thank you for sharing and, especially, for your humor.

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Sat, Jul 14 10:33am · @HesterBIDMCModerator · All I learned from my patients

Hester Hill Schnipper, LICSW, OSW-C, and author of our Living with Cancer blog, writes about her last day as a social worker at BIDMC. Read her thoughts and see what she's up to next (including continuing to write the blog!). http://bit.ly/2KUMNbk BIDMC.ORG Transitions and Remarks | BIDMC Translations on [...]

Posted by kzinzer, Sat, Jul 14, 2018 10:33am

Thanks for sharing- that was lovely.

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