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May 2, 2017 · @Elliem · Hi, my name is Ellie. I have begun a new chapter in [...]

Hi, my name is Ellie. I have begun a new chapter in my cancer journey. I would like to hear from others who have stopped chemo and are still going strong. After 3 1/2 years of treatment for stage 4 colorectal cancer with lung mets, I have chosen quality over [...]

Posted by Jan, Fri, Apr 28, 2017 5:28pm

Best of luck keep positive!!! ❤️❤️

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Posted by jayman, Tue, May 2, 2017 9:47am

Ellie, I am not on chemo.  I am in remission.  I have not reached the point where my tumors have come back.  It has been about two years since my surgery, and ongoing CT scans show no return of detectable cancer.  I have no illusions, however, that I am cured.  It

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Apr 20, 2017 · @jillw · My partner was diagnosed with stage3 colon cancer march 7 through emergency [...]

My partner was diagnosed with stage3 colon cancer march 7 through emergency perforated bowel surgery. He will start the FOLFOX chemo treatment next week after his upcoming PET scan this week. I don't like his oncologist because he is only interested in getting him into chemo. He has not talked [...]

Posted by jayman, Thu, Apr 20, 2017 8:13am

Jill, You and your partner are in this together.  Your partner, I hope, agrees.  It would be best to straighten out the relationship with the oncologist.  Clearly in one voice get the answers to your concerns.  What are the doctor’s main concerns?  If the relationship with the doctor improves, great.  If

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Posted by bandofsisters1, Thu, Apr 20, 2017 10:16am

Protein is important so muscle mass is not lost. However, I have found while on chemo that I am having trouble eating fresh fruits and vegetables. Twice now I have gotten sick from eating a salad. As I understand it, the immunity cancer patients has is low and may not

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Mar 31, 2017 · @conlyfamily · Cancer Treatment Centers of America

My husband was dx in April 2015, had resection of colon tumor in April 2015. Then he did 6 mos folfox chemotherapy from May-Oct 2015. Had spots in lung entire time, started to grow in 2016. Had lobectomy of right lung in Sept 2016 and received terminal diagnosis in Jan [...]

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Mar 30, 2017 · @hoardsmith · Colonoscopy screenings save lives.

I feel so lucky. Six months ago when I was age 57, my doctor thought I should get a colonoscopy just because I had never had one. I am glad I did. The screening revealed a huge polyp growing in my gut just waiting to become cancerous. Had I not [...]

Posted by carolcowan, Thu, Mar 30, 2017 8:16pm

Maybe someone will go ahead and get their colonoscopy after reading your post. Thanks!
Carol (a moderator here)

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Mar 31, 2017 · @Elliem · I Saw my oncologist today. I've been off chemo for 5 or [...]

I Saw my oncologist today. I've been off chemo for 5 or 6 weeks. He said I have finished all the standard chemo. I have also taken xeloda, Stivarga and Lonsurf pills. He said if my cancer cells contain enough of a certain protein, he can ask for Pembro on [...]

Posted by katie5963, Thu, Mar 30, 2017 1:50pm

@elliem Keep the faith. While he does protein check, time to look for a trial. This is from the NCI website, https://www.cancer.gov/about-cancer/treatment/clinical-trials

Looking for a Clinical Trial?
With our new basic search form, you can find a trial or contact the NCI for help via phone, email, or online

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Posted by Elliem, Fri, Mar 31, 2017 7:14am

Thank you so much. God has more power than any oncologist on this earth!
Prayers and blessings,
Ellie

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Oct 5, 2017 · @rn59pollyo · I am new to this group. My spouse newly diagnosed with Stage [...]

I am new to this group. My spouse newly diagnosed with Stage 3 colon cancer with mets 20 lymph nodes. Anyone out there with similar diagnosis? [...]

Posted by cghow, Thu, Oct 5, 2017 9:07am

What type of chemo were you on?

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Posted by bethbourg, Thu, Oct 5, 2017 10:28am

A positive outlook shines through in your post! Good wishes. Aveeno sent my husband a skin care kit when he was on Erbitux. I forget how I stumbled upon the link. I would imagine a little computer research would find it.

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Mar 28, 2017 · @Elliem · Is immunotherapy good for all types of cancer or do you have [...]

Is immunotherapy good for all types of cancer or do you have to have a specific type before they will try it? Are Stivarga and Lonsurf immunotherapies or are they chemo? My oncologist has kept me alive for 3 1/2years, (colorectal with lung mets)but he seems to be out of [...]

Posted by Elliem, Mon, Mar 27, 2017 5:52pm

I am amazed that you said this. I asked the very question at my husband's meeting today with his ablation doctor. He looked up my records and showed me that my lung tumor is too close to my aortic valve(I think he said "valve"). I have 4 cancer mets in

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Posted by fmmarcus, Tue, Mar 28, 2017 11:09am

I suggest you ask your dr to contact the drug company that administers keytuda to see if they will offer you keytruda since you were on it before

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Mar 22, 2017 · @Elliem · I got the news yesterday that there wasn't anything found for me [...]

I got the news yesterday that there wasn't anything found for me during the MATCH trial analysis. I cried for awhile and felt sorry for myself. But I am still here, I feel good and today is a new day full of life and hope. Who knows what wonderful cures [...]

Posted by katie5963, Wed, Mar 22, 2017 5:10pm

Ellie,
No matter how tough your day may be, you always find the light. I admire your inner strength! Like you, I always believe there is hope...each day a new beginning...and I hope you keep sharing with us...and that we will keep sharing anything we discover. Maybe even share some

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Posted by Jan, Wed, Mar 22, 2017 6:13pm

@Elliem praying for you!!! Love your positive attitude!!!

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Mar 20, 2017 · @slmenc1966 · Was it worth it?

Does anyone else feel like they fought so hard to beat cancer and did but it completely ruined their lives with all the long term side effects and additional problems caused by the treatments and surgeries????? Whats the point when life is harder now? [...]

Posted by slmenc1966, Mon, Mar 20, 2017 4:00pm

My last treatment was 11/2011 so quite a good while.

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Posted by slmenc1966, Mon, Mar 20, 2017 4:04pm

I live in fear not only of cancer returning but everything else that has gone wrong since with my health because of the treatment..I'm always waiting for the other shoe to drop!!

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Mar 13, 2017 · @cancerconnect · Know Your Treatment Options: Colorectal Cancer Liver Metastases

Good read: http://news.cancerconnect.com/know-treatment-options-colorectal-cancer-liver-metastases/ [...]

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Mar 13, 2017 · @charles · Colorectal Cancer Clinical Trial Resource

Great new resource for CRC clinical trials

No more searching – Advanced cancer treatments can be found in clinical trials. Cure Forward can make finding them easier.

 

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Mar 22, 2017 · @fjs06378 · LONG TERM SIDE EFFECTS AND TREATMENT?

I am a 23 yr survivor who was first diagnosed at age 43 with Stage 3.5. I had surgery, radiation, and chemo, but it still recurred in the lung 3 years later, so 1/3 of the lung was removed and I did another year of a different chemo combination. Nonetheless, [...]

Posted by 14forest, Wed, Mar 22, 2017 5:46am

I have been taking gabapentin 300mg since january after a major surgery and have no adverse side effects yet

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Posted by kline, Wed, Mar 22, 2017 12:52pm

I've been taking gabapentin for about 7 years (ever since I went blind in my left eye and had nerve pain). Without the gabapentin I seriously thought my eye pain could not be worse if I clawed it out. With the gabapentin I occasionally need to take a Tylenol if

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Mar 13, 2017 · @gray28562 · Starting Folfox

I am stage 3 with 2 lymph nodes affected , found two tiny spots on the liver , been to Lineberger Cancer center in Chapel Hill and they did Ostomy and looked at liver physically said there was nothing there (shew) I am bit nervous starting Folfox Monday . Any [...]

Posted by rshaffer, Mon, Mar 13, 2017 8:35am

Well, it's Monday morning and you should be getting your treatment. Wanted to let you know I'll be keeping you in my prayers today.

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Posted by gray28562, Mon, Mar 13, 2017 10:36am

I am sitting in chemo room as we speak . Thanks so much for the prayers and God bless

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Mar 11, 2017 · @terry1 · 5 year anniversary in April

Hi everyone..my name is Terry and I was diagnosed with colon cancer in March 2012 in my sigmoid colon..I had laparoscopic surgery on April 10 2012 so as u can see it will be 5 years..30 lymph nodes were tested and clear of cancer..with clear margins..I was advised to see [...]

Posted by charles, Sat, Mar 11, 2017 6:22am

Congrats on celebrating this important anniversary! How was your cancer detected?
Best
C

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Posted by terry1, Sat, Mar 11, 2017 7:24am

Thank you Charles..my cancer was detected with a routine colonoscopy and my doctor discovered a tumor..I had no symptoms except for pencil stools which at the time I had no idea would mean something as serious as cancer..
Did u also have colon cancer??

Terry

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Mar 6, 2017 · @cancerconnect · Tips on How to Get The Most From Your Doctor

Diagnosed with Colon Cancer: 10 Tips on How to Get The Most From Your Doctor, read here: http://news.cancerconnect.com/diagnosed-colon-cancer-10-tips-get-doctor/ Share your tips! [...]

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