Welcome to the CancerConnect Online Support Group for Colorectal Cancer Patients and Caregivers. Your story matters! Click Join Now to register for the community and join the conversation.

Mar 11, 2017 · @terry1 · 5 year anniversary in April

Hi everyone..my name is Terry and I was diagnosed with colon cancer in March 2012 in my sigmoid colon..I had laparoscopic surgery on April 10 2012 so as u can see it will be 5 years..30 lymph nodes were tested and clear of cancer..with clear margins..I was advised to see [...]

Please login or register to post a reply.

Mar 6, 2017 · @cancerconnect · Tips on How to Get The Most From Your Doctor

Diagnosed with Colon Cancer: 10 Tips on How to Get The Most From Your Doctor, read here: http://news.cancerconnect.com/diagnosed-colon-cancer-10-tips-get-doctor/ Share your tips! [...]

Please login or register to post a reply.

Mar 10, 2017 · @Elliem · MATCH trial, Next step: Biopsy was yesterday

Hi everyone.. I had my biopsy yesterday. I was there for 5 hours. They wanted to make sure my lung didn't collapse after the biopsy. A little sore, but not bad. Had it done in a small hospital. They are sending my tumor material off to MDAnderson! There they will

[...]

Please login or register to post a reply.

Mar 12, 2017 · @peregrine · Experience with Vectibix

Hello, I just joined CancerConnect. My mother was diagnosed January 2016 with stage 3c colon cancer. The tumor was in her lower ascending colon, where the cecum is located. Tumors here tend to be diagnosed at a later stage, as they can go undetected for a long time. She had

[...]

Please login or register to post a reply.

Feb 25, 2017 · @Elliem · Precision Medicine: MATCH Trial

I'm going in for a biopsy on my lung mets after 3 1/2 years of stage 4 colorectal cancer. The biopsy is on the 27th of Feb. please keep me in your prayers. Then they send the sample off to a major cancer hospital (I hope they fly it first

[...]

Please login or register to post a reply.

Mar 31, 2017 · @Elliem · Lung mets growing: frustrated and scared

My last Ct scan showed that my lung mets were growing. It did not even mention my colorectal tumor. When I asked my oncologist about that, he said "maybe it's gone." Something is wrong with this statement. I've been seeing this oncologist for 3 1/2 years. I feel like I'm

[...]

Posted by @Elliem, Feb 14, 2017

Every time I ask, my oncologist says Pembro(keytruda) is not approved by the FDA for colorectal cancer with lung mets. He did say we could apply for a”compassionate use” waiver, but he doesn’t think I will get it. I think I’m at the end of the road as far as […]

Please login or register to post a reply.

Mar 10, 2017 · @junderhill · New DX - Help Please

My wife (32 yrs old) was just diagnosed with stage 4 colon cancer last week (1 invasive adenocarcinoma in sigmoid colon, left side, 2.5 cm, T4bN0M1a G2) Docs either didn't want to confirm how many mets or aren't quite sure but they confirmed she has 10+ mets in her liver, [...]

Please login or register to post a reply.

Feb 16, 2017 · @Elliem · Tumor biopsy to look for treatments specific to genetics of my tumor

Hi everyone. My Lonsurf pills have stopped working. I have colorectal cancer with lung mets. My oncologist suggested a MATCH trial. They take a tumor biopsy and send it off to see if there are any treatments available to treat the genetic abnormalities in my tumor. It is scary to

[...]

Posted by @linnythepoo, Feb 9, 2017

I recommend getting the genetic analysis on your tumor. I had it done and they identified a rare mutation. I am in a clinical trial now that matches the drug to the mutation. Standard chemo wasn’t helping me. So far the scan results from the clinical trial have been good. […]

Please login or register to post a reply.

Feb 1, 2017 · @luisa · Exercise Shows Benefits for Metastatic Colorectal Cancer Patients

"Exercise Shows Benefits for Metastatic Colorectal Cancer Patients" New Dana-Farber Blog Post

This new post begins,

"Patients with metastatic colorectal cancer may be able to lower the risk of the disease worsening, and improve their chances of survival, if they engage in moderate daily exercise, according to new research by Dana-Farber investigators.

[...]

Please login or register to post a reply.

Jan 16, 2017 · @Elliem · Experience with Lonsurf

I went through an episode of my Lonsurf making me really sick. Couldn't keep anything down, not even water. When you get dehydrated and don't know it, you begin to despair and lose hope. Luckily I called my infusion center and they had me come in for IV fluids containing

[...]

Please login or register to post a reply.

Jan 17, 2017 · @veryconfused6 · Confused- what's next

Hello everyone. I was wondering if anyone could offer me some advice. I was taken into hospital after a ct scan picked up a perforated colon. I had been unwell for around 6weeks prior to this. I was operated on 3 days later. They removed a large tumour and 28

[...]

Please login or register to post a reply.

Jan 10, 2017 · @stage4 · Considering supplements

Does anyone have any information about using supplements such as Tumeric Extract and Ginger Extract while receiving oral tablet chemotherapy treatments? Though these supplements are supposed to be beneficial, we've also read that they can prevent the chemo drug from working properly. Any feedback on this? Treatment is for stage

[...]

Please login or register to post a reply.

Jan 7, 2017 · @fmmarcus · Share experience with Stivarga

I will be going on strivarga soon. I have questions. When is the best time to take it. Some take it at night before bed, others in the morning with a low fat meal. Also I would like to know what side effects experienced by people on strivarga. Thanks

[...]

Please login or register to post a reply.

Jan 6, 2017 · @Jan · My story: there is hope!

Happy New Year! I was on xeloda for 6 months 8 rounds for stage 3A colon cancer..... it knock me down but was bearable, my biggest side effect at first was nausea diarrhea(doc gave me pills for both and it helped) and exhaustion, then after about 5 rounds neuropathy in

[...]

Posted by @stevew, Jan 4, 2017

You may find this article helpful for neuropathy. Also Make sure your vitamin b and d levels are not low

https://integrativeoncology-essentials.com/2013/06/complementary-therapies-for-chemo-neuropathy/ […]

Please login or register to post a reply.

Feb 16, 2017 · @doralovelife54 · Experience with Xeloda & ileostomy blockage

First time here. Husband with colorectal cancer, ileostomy blockage has him hospitalized. He's finishing up his 2nd cycle of xeloda. He had to have nasal gastric suction--cramping was absolutely painful where he needed morphine every 2 hours; has anyone else undergone anything like this and does it happen often with

[...]

Posted by @carolcowan, Jan 3, 2017

doralivelife54,
I’m Carol, another moderator here. Yes, xeloda and oxaliplatin can cause ileitis or small bowel obstruction. It doesn’t happen often, in about 1 to 2% of the patients who take those two medications for colorectal cancer. They may change the drug(s), but may just have you increase fluid intake. […]

Please login or register to post a reply.

Please login with your account or, if you aren't a member, join now.

 

Login


Join Now