Welcome to the CancerConnect Online Support Group for Colorectal Cancer Patients and Caregivers. Your story matters! Click Join Now to register for the community and join the conversation.

Mar 13, 2017 · @charles · Colorectal Cancer Clinical Trial Resource

Great new resource for CRC clinical trials

No more searching – Advanced cancer treatments can be found in clinical trials. Cure Forward can make finding them easier.

 

[...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 22, 2017 · @fjs06378 · LONG TERM SIDE EFFECTS AND TREATMENT?

I am a 23 yr survivor who was first diagnosed at age 43 with Stage 3.5. I had surgery, radiation, and chemo, but it still recurred in the lung 3 years later, so 1/3 of the lung was removed and I did another year of a different chemo combination. Nonetheless, [...]

Posted by 14forest, Wed, Mar 22, 2017 5:46am

I have been taking gabapentin 300mg since january after a major surgery and have no adverse side effects yet

[...]
Posted by kline, Wed, Mar 22, 2017 12:52pm

I've been taking gabapentin for about 7 years (ever since I went blind in my left eye and had nerve pain). Without the gabapentin I seriously thought my eye pain could not be worse if I clawed it out. With the gabapentin I occasionally need to take a Tylenol if

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 13, 2017 · @gray28562 · Starting Folfox

I am stage 3 with 2 lymph nodes affected , found two tiny spots on the liver , been to Lineberger Cancer center in Chapel Hill and they did Ostomy and looked at liver physically said there was nothing there (shew) I am bit nervous starting Folfox Monday . Any [...]

Posted by rshaffer, Mon, Mar 13, 2017 8:35am

Well, it's Monday morning and you should be getting your treatment. Wanted to let you know I'll be keeping you in my prayers today.

[...]
Posted by gray28562, Mon, Mar 13, 2017 10:36am

I am sitting in chemo room as we speak . Thanks so much for the prayers and God bless

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 11, 2017 · @terry1 · 5 year anniversary in April

Hi everyone..my name is Terry and I was diagnosed with colon cancer in March 2012 in my sigmoid colon..I had laparoscopic surgery on April 10 2012 so as u can see it will be 5 years..30 lymph nodes were tested and clear of cancer..with clear margins..I was advised to see [...]

Posted by charles, Sat, Mar 11, 2017 6:22am

Congrats on celebrating this important anniversary! How was your cancer detected?
Best
C

[...]
Posted by terry1, Sat, Mar 11, 2017 7:24am

Thank you Charles..my cancer was detected with a routine colonoscopy and my doctor discovered a tumor..I had no symptoms except for pencil stools which at the time I had no idea would mean something as serious as cancer..
Did u also have colon cancer??

Terry

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 6, 2017 · @cancerconnect · Tips on How to Get The Most From Your Doctor

Diagnosed with Colon Cancer: 10 Tips on How to Get The Most From Your Doctor, read here: http://news.cancerconnect.com/diagnosed-colon-cancer-10-tips-get-doctor/ Share your tips! [...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 10, 2017 · @Elliem · MATCH trial, Next step: Biopsy was yesterday

Hi everyone.. I had my biopsy yesterday. I was there for 5 hours. They wanted to make sure my lung didn't collapse after the biopsy. A little sore, but not bad. Had it done in a small hospital. They are sending my tumor material off to MDAnderson! There they will

[...]

Posted by megm, Tue, Feb 28, 2017 8:37am

Hi @elliem, thank you for the update! Thinking about you! I live in a small Idaho town too!!

[...]
Posted by terry1, Fri, Mar 10, 2017 9:59pm

Good luck Ellie..waiting is the hardest part..

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 12, 2017 · @peregrine · Experience with Vectibix

Hello, I just joined CancerConnect. My mother was diagnosed January 2016 with stage 3c colon cancer. The tumor was in her lower ascending colon, where the cecum is located. Tumors here tend to be diagnosed at a later stage, as they can go undetected for a long time. She had

[...]

Posted by sjb122294, Sun, Mar 12, 2017 11:00am

I took vectibix last year. I tolerated it well. It does come with a rash that can be annoying. But they will give antibiotics to alleviate the rash.

[...]
Posted by peregrine, Sun, Mar 12, 2017 12:40pm

my mother had her first Vectibix treatment last week with no side effects. They took her off the doxycycline as it may have caused her WBC to drop, and will try a topical cream if she gets the rash. Keeping fingers crossed she gets some progression-free time. She's certainly got

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 25, 2017 · @Elliem · Precision Medicine: MATCH Trial

I'm going in for a biopsy on my lung mets after 3 1/2 years of stage 4 colorectal cancer. The biopsy is on the 27th of Feb. please keep me in your prayers. Then they send the sample off to a major cancer hospital (I hope they fly it first

[...]

Posted by peregrine, Fri, Feb 24, 2017 9:21pm

sending positive thoughts your way, Elliem. Is your oncology team looking for wild-type KRAS, NRAS, and BRAF genes in your primary tumor to see if you are a candidate for immunotherapy therapy? Or is MATCH something else? Again, wishing you the best. My mother has metastatic colon cancer, too. I

[...]
Posted by Elliem, Sat, Feb 25, 2017 8:01am

Thank you. MATCH stands fore molecular analysis for therapy choices. Apparently, 5,000 people will send in biopsies to be studied.
Prayers and blessings to you all.

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 31, 2017 · @Elliem · Lung mets growing: frustrated and scared

My last Ct scan showed that my lung mets were growing. It did not even mention my colorectal tumor. When I asked my oncologist about that, he said "maybe it's gone." Something is wrong with this statement. I've been seeing this oncologist for 3 1/2 years. I feel like I'm

[...]

Posted by timhall6627, Fri, Feb 17, 2017 1:52pm

Prays for your recovery. Amen

[...]
Posted by conlyfamily, Fri, Mar 31, 2017 10:48am

Contact Cancer Treatment Center of America. My husband was dx in April 2015, had resection of colon tumor in April 2015. Then he did 6 mos folfox chemotherapy from May-Oct 2015. Had spots in lung entire time, started to grow in 2016. Had lobectomy of right lung in Sept 2016

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 10, 2017 · @junderhill · New DX - Help Please

My wife (32 yrs old) was just diagnosed with stage 4 colon cancer last week (1 invasive adenocarcinoma in sigmoid colon, left side, 2.5 cm, T4bN0M1a G2) Docs either didn't want to confirm how many mets or aren't quite sure but they confirmed she has 10+ mets in her liver, [...]

Posted by bethbourg, Fri, Feb 10, 2017 10:05am

Hello Jeremy. My husband was diagnosed with stage 4 colon cancer with mets to the liver 11 months ago. You are right, each case is unique. He started with 5FU chemo and was changed to Erbitux after about three months due to his side effects. We have been through ups

[...]
Posted by terry1, Fri, Mar 10, 2017 10:11pm

Hi Jeremy..I am new here.. I am on another colon cancer support group called colon talk..there are people on there with all stages of colon cancer and lots of them have mets to the liver..they talk about a procedure called HIPEC performed at Sloan Kettering Hospital by a doctor named

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 16, 2017 · @Elliem · Tumor biopsy to look for treatments specific to genetics of my tumor

Hi everyone. My Lonsurf pills have stopped working. I have colorectal cancer with lung mets. My oncologist suggested a MATCH trial. They take a tumor biopsy and send it off to see if there are any treatments available to treat the genetic abnormalities in my tumor. It is scary to

[...]

Posted by Elliem, Fri, Feb 10, 2017 1:16pm

They take a blood sample and send it off. Then they try various medications to see if something reacts against the cancer cells circulating in your blood. It takes two weeks for results. They didn't find anything that would help me. The tumor biopsy is much more in depth on

[...]
Posted by megm, Thu, Feb 16, 2017 1:54pm

Hi @Elliem, have you had your biopsy yet? been thinking about you!

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 1, 2017 · @luisa · Exercise Shows Benefits for Metastatic Colorectal Cancer Patients

"Exercise Shows Benefits for Metastatic Colorectal Cancer Patients" New Dana-Farber Blog Post

This new post begins,

"Patients with metastatic colorectal cancer may be able to lower the risk of the disease worsening, and improve their chances of survival, if they engage in moderate daily exercise, according to new research by Dana-Farber investigators.

[...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Jan 16, 2017 · @Elliem · Experience with Lonsurf

I went through an episode of my Lonsurf making me really sick. Couldn't keep anything down, not even water. When you get dehydrated and don't know it, you begin to despair and lose hope. Luckily I called my infusion center and they had me come in for IV fluids containing

[...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Jan 17, 2017 · @veryconfused6 · Confused- what's next

Hello everyone. I was wondering if anyone could offer me some advice. I was taken into hospital after a ct scan picked up a perforated colon. I had been unwell for around 6weeks prior to this. I was operated on 3 days later. They removed a large tumour and 28

[...]

Posted by dorothyg555, Tue, Jan 17, 2017 11:49am

Hello Veryconfused6 Your story is similar to mine. I strongly suggest you do the chemo. You don't play around with colon cancer, unfortunately I had to learn the hard way.

[...]
Posted by Jan, Tue, Jan 17, 2017 11:58am

@veryconfused6 why did you refuse the resection? just curious I had one and so far so good!
I also was given the choice of chemo at stage IIIA although my oncologist recommended it. I did have chemo and am glad I did would be even more nervous than I already

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Jan 10, 2017 · @stage4 · Considering supplements

Does anyone have any information about using supplements such as Tumeric Extract and Ginger Extract while receiving oral tablet chemotherapy treatments? Though these supplements are supposed to be beneficial, we've also read that they can prevent the chemo drug from working properly. Any feedback on this? Treatment is for stage

[...]

Posted by carolcowan, Mon, Jan 9, 2017 10:28am

stage4,
Here's one that talks about the combination's use in a study with mice. I'm certainly not saying you should try it especially since your doctor said not to. I am addressing the issue of taking a supplement that might interfere with chemotherapy's efficacy. With a supplement that can increase

[...]

Liked by stage4

Posted by charles, Tue, Jan 10, 2017 6:05pm

Over 40% of people undergoing cancer treatment use supplements or alternative therapies and the majority dont tell their doctor. Most doctors dont have a problem with patients taking supplements but they do like to be informed in order to make sure the supplements dont impact the therapy they are giving.

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Please login with your account or, if you aren't a member, join now.

 

Login


Join Now