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Wed, May 2 10:01am · @luisa · From Dana-Farber: What’s New in Colorectal Cancer Treatment & Research

From Dana-Farber: What’s New in Colorectal Cancer Treatment & Research? – Article and Video – Over 100,000 people are diagnosed with colon cancer, and 40,000 with rectal cancer, every year in the United States, according to the American Cancer Society. These cancers, which usually arise in the form of [...]

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Fri, May 4 10:27am · @sagar02 · What to do after Colon Cancer Treatment

Can any one give some valuable suggestions after post colon cancer.Thx. [...]

Posted by billswiger, Fri, May 4, 2018 8:21am

For me, colon cancer treatment was removal and bowel resection at Brigham and Women's.

Followup is get an opinion from a good Cancer Center.

For me, Dana Farber recommended adjunct therapy to kill possible stray cells. Therapy was 12 rounds of folfinox. For my circumstances, my oncologist said

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Posted by carolcowan, Fri, May 4, 2018 10:27am

Great post, Bill.
Carol

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Sat, Apr 21 10:28am · @luisa · From Dana-Farber: Nuts and Colon Cancer: What’s the Link?

Nuts and Colon Cancer: What’s the Link? – Research shows that consuming nuts reduces the risk of colon cancer recurrence and death, but scientists are still examining why — because at this time, there is no definite explanation for this correlation. The most recent study found a significant [...]

Posted by carolcowan, Sat, Apr 21, 2018 10:28am

Luisa,
I'm Carol, a moderator at CancerConnect. Thanks for posting this. I'm so busy doing my "moderating" I don't always have time to read the journal articles, studies, etc about cancer as I used to. Charles keeps me up on some things when he posts things for people.
I guess

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Sat, May 12 7:04am · @alisakg · Observations of my Stage IV colon cancer life.

I’ve been stage IV since the end of 2014 and stage III since 2013. I haven’t been working since I was diagnosed with stage IV. I rest most of the time and feel good because of it to the point where I think I can do more. I am constantly [...]

Posted by adjuster, Tue, May 8, 2018 12:54pm

Dear Carol,
My sincere apology to you and all. It was not my intent to hurt anyone I want to help like you do, but in a different direction! I do want to make clear that I am not advocating for any products nor have any intent for financial gain. I

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Posted by bheisler, Sat, May 12, 2018 7:04am

I have been stage 4 since oct 2013- day to day-

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Sat, Apr 14 5:49am · @cab1964 · Recurrence of colon cancer

Just got news that after 5 years my son’s colon cancer had spread to lung and lymph nodes. Doctor said can treat but not cure. Devastated! He is 48!years old. He is on pill. Don’t know the name yet. [...]

Posted by carolcowan, Fri, Apr 13, 2018 11:39pm

Cassie,
Most people who get Xeloda do well with it. Many continued or returned to work. One was a truck driver whose daughter was scared that he'd have horrible side effects. Fatigue is a common problem with Xeloda and most chemo. Part of the reason is cancer = fatigue with

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Posted by cab1964, Sat, Apr 14, 2018 5:49am

Thank you again carol. All that information was really helpful. I feel like I have better understanding of the treatment he is having. He is a tough guy and will fight his way through this treatment. He is working from home.

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Sat, Apr 14 7:14am · @magsmum · Colectomy or not?

Some 18 years ago I underwent a right hemi followed by 10 months of chemo for Stage 2+ colon cancer. My reward for undergoing the surgery, chemo and 18 years' worth of colonoscopies, etc.: my latest scope revealed an 8cm tumor and countless polyps, of which 50 were biopsied and [...]

Posted by carolcowan, Thu, Apr 5, 2018 6:12pm

Anne,
Home nursing visits are covered by health insurance companies with no charge to patients here in the US.
In case you do decide to get the colostomy, in Canada some ostomy supply manufacturers do have patient assistance programs to defray the cost of supplies or even provide supplies for

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Posted by magsmum, Sat, Apr 14, 2018 7:14am

Well, the squeaky wheel DOES get the grease! My gastro, after a few nudges, has gotten me set up with an excellent c-r surgeon, with whom I will meet on Tuesday. The CT scan of my liver was unsatisfactory so will have an ultrasound on Thursday. Three lymph nodes look

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Wed, Apr 4 11:55am · @cindyreeves · Nutrition Post Surgery

I am 6 months post stage 3 sigmoid colon cancer. I am still having a difficult time with nutrition. I cannot eat fresh fruits or vegetables due to diarrhea after eating them. I also cannot eat whole grain foods yet. I am often eating white rice, chicken and white bread. [...]

Posted by charles, Wed, Apr 4, 2018 9:21am

You really should be able to eat most foods without diarrhea at this point. Have your brought this to the attention of your doctor? I have found that protein milkshakes are a great and tasty way to push nutrition but i am not sure how these might impact the diarrhea.

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Posted by cat7847, Wed, Apr 4, 2018 11:55am

I had a bowel obstruction and had surgery where they removed a fifth of my intestine. I had terrible diarrhea when I came home from the hospital. I had to take 4 imodiums a day spaced out every 4 hours. I am now down to one per day but have

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Tue, May 8 10:29am · @n2xs · Chemo after surgery even if already had radiation-chemo prior?

Question should do 6 mos of chemo and Iv after colorectal surgery removed tumor and 12 lymph now cancer free but onc wants to do chemo for stray cancer cells? Should I or do I really need this again since it was done pre-surgery? [...]

Posted by jazjjmado4, Tue, May 8, 2018 10:12am

I asked them to cut the dosage a bit and they did and it helped I would hate to think I went through all the trouble and didn't get it all I think they put the dosage by your weight I am assuming it doesn't hurt to ask Ronna

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Posted by 411769p, Tue, May 8, 2018 10:29am

I requested a dosage reduction and it was reduced by 10%. Unfortunately, it did not help.

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Fri, Mar 16 11:36am · @luisa · Facebook Live: What’s New in Colorectal Cancer Treatment and Research?

Facebook Live: What’s New in Colorectal Cancer Treatment and Research? Thursday, March 29, 12:30 p.m. ET Join us on Facebook Live for a Q&A discussion with Nadine J. McCleary, MD, MPH, of the Gastrointestinal Cancer Treatment Center at Dana-Farber. Dr. McCleary will take questions live while discussing the latest [...]

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Tue, Mar 6 6:12am · @julikay1981 · Colon cancer stage 2

Hi all! I was diagnosed with 2 no lymph and no metastasis. I had 3polys removed by hand assist laparoscopy on Jan 16,2018. Tests on polyps showed 2 benign and one cancer. Further tests revealed MMR positive. Therefore they recommend chemo by pill. I am 54 and did not have [...]

Posted by carolcowan, Sat, Mar 3, 2018 6:57pm

Julikay,
I'm Carol, one of the moderators here. I think you should get a second opinion. If chemo was only effective in 5% of cases most patients would refuse it. Also, ask about clinical trials.
Carol

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Posted by julikay1981, Tue, Mar 6, 2018 6:12am

Ok, thanks!

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Tue, May 15 1:21pm · @smccormack · Stage IV metastasis to distal lymph nodes.

Looking for stories from others with similar diagnosis and treatments used. I just started folfox. Started journey with stage 3B resection and clean up chemo, no mutations found. Reoccurance diagnosed in Feb. [...]

Posted by kzinzer, Tue, May 15, 2018 11:50am

somehow my edit did not translate....so just to clarify:
nearbtye ileac arteries= near the ileac arteries
after they airgeon removed= after the surgeon removed

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Posted by kzinzer, Tue, May 15, 2018 1:21pm

Hi Jan- no symptoms other than recent occurring night sweats. And my age of 50 could account for night sweats. I felt great - isn't that the kicker with many of these cancers? Silent until significant progression. I had scans done after my 9th Folfox and then 3 mos later.

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Fri, Feb 23 7:13am · @maltman · Colon Cancer tumor marker testing

My doc says testing for tumor markers is key but how do you do this if your colon cancer was already removed somewhere else? [...]

Posted by charles, Fri, Feb 23, 2018 7:13am

It may not always be possible but here are a couple suggestions. The pathology department that analyzed the initial biopsy or tumor specimen often has tissue saved and this can be requested. A newer technique called a "liquid biopsy" is also being developed where doctors look for the markers in

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Mon, Feb 12 5:39pm · @pickthis · Bye bye Stage 3 Colon Cancer! Never to be seen again!

Hi Group. Again, I can’t thank you all enough for all of your replies and help. Jan and Carol you have been invaluable especially when panic set in. Which unfortunately happened a couple of times. I took my dad to his ct scan which finally happened January 18th. His oncologist [...]

Posted by Jan, Mon, Feb 12, 2018 11:54am

That is excellent news!!! yayayay
Keep up positive thoughts!!!

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Posted by carolcowan, Mon, Feb 12, 2018 5:39pm

Jan,
You really supported Debbie. I'm proud of people like you because you took the time to help someone who was really struggling with the unknown things that were happening. I'm proud of Debbie to go from her heart wrenching start here and was confronted by cancer and her love

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Sat, Feb 3 9:23pm · @carolcowan · SAD NEWS

I don't know how many people here remember Kimber. She was a member of the colon cancer group because her husband, a firefighter/paramedic, had colon cancer. Kimber was diagnosed with a rare kind of cancer called chordoma in her spine and had surgery. She stopped participating here except for a [...]

Posted by curecancernow, Sat, Feb 3, 2018 8:09pm

God Bless Kim and her husband, and children. Kick Kancer. x Sandra

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Posted by Jan, Sat, Feb 3, 2018 9:23pm

Aw I am so sorry to hear this very sad news. I was thinking of her last week. Kimber helped me when I was diagnosed! God bless her and her family! Xo

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Mon, Jan 22 11:09am · @lakeland3261 · Stage 4 colon cancer liver transplant

Does anyone know if a liver transplant can be done on a person with stage 4 colon cancer spread to her liver, but where the section of the colon that had the cancer has been sectioned off? Here in USA they won't do it citing the anti-suppressants for the new [...]

Posted by charles, Mon, Jan 22, 2018 10:05am

This is a difficult decision- make sure you ask and get good answers to all your questions so you feel confident in whatever decision you make.
Yes it is true that liver transplant cases are done oversees and a liver is actually transplanted. The question is how are they defining

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Posted by lakeland3261, Mon, Jan 22, 2018 11:09am

From the data I have read, about 67% of those who have the transplant live at least 5 years as compared to only about 9% of those who don't, live only months. Now that doesn't mean it's curing cancer, but being 78 years old and being told you only have

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