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Wed, Apr 4 11:55am · @cindyreeves · Nutrition Post Surgery

I am 6 months post stage 3 sigmoid colon cancer. I am still having a difficult time with nutrition. I cannot eat fresh fruits or vegetables due to diarrhea after eating them. I also cannot eat whole grain foods yet. I am often eating white rice, chicken and white bread. [...]

Posted by charles, Wed, Apr 4, 2018 9:21am

You really should be able to eat most foods without diarrhea at this point. Have your brought this to the attention of your doctor? I have found that protein milkshakes are a great and tasty way to push nutrition but i am not sure how these might impact the diarrhea.

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Posted by cat7847, Wed, Apr 4, 2018 11:55am

I had a bowel obstruction and had surgery where they removed a fifth of my intestine. I had terrible diarrhea when I came home from the hospital. I had to take 4 imodiums a day spaced out every 4 hours. I am now down to one per day but have

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Tue, May 8 10:29am · @n2xs · Chemo after surgery even if already had radiation-chemo prior?

Question should do 6 mos of chemo and Iv after colorectal surgery removed tumor and 12 lymph now cancer free but onc wants to do chemo for stray cancer cells? Should I or do I really need this again since it was done pre-surgery? [...]

Posted by jazjjmado4, Tue, May 8, 2018 10:12am

I asked them to cut the dosage a bit and they did and it helped I would hate to think I went through all the trouble and didn't get it all I think they put the dosage by your weight I am assuming it doesn't hurt to ask Ronna

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Posted by 411769p, Tue, May 8, 2018 10:29am

I requested a dosage reduction and it was reduced by 10%. Unfortunately, it did not help.

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Fri, Mar 16 11:36am · @luisa · Facebook Live: What’s New in Colorectal Cancer Treatment and Research?

Facebook Live: What’s New in Colorectal Cancer Treatment and Research? Thursday, March 29, 12:30 p.m. ET Join us on Facebook Live for a Q&A discussion with Nadine J. McCleary, MD, MPH, of the Gastrointestinal Cancer Treatment Center at Dana-Farber. Dr. McCleary will take questions live while discussing the latest [...]

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Tue, Mar 6 6:12am · @julikay1981 · Colon cancer stage 2

Hi all! I was diagnosed with 2 no lymph and no metastasis. I had 3polys removed by hand assist laparoscopy on Jan 16,2018. Tests on polyps showed 2 benign and one cancer. Further tests revealed MMR positive. Therefore they recommend chemo by pill. I am 54 and did not have [...]

Posted by carolcowan, Sat, Mar 3, 2018 6:57pm

Julikay,
I'm Carol, one of the moderators here. I think you should get a second opinion. If chemo was only effective in 5% of cases most patients would refuse it. Also, ask about clinical trials.
Carol

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Liked by Terry

Posted by julikay1981, Tue, Mar 6, 2018 6:12am

Ok, thanks!

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Tue, May 15 1:21pm · @smccormack · Stage IV metastasis to distal lymph nodes.

Looking for stories from others with similar diagnosis and treatments used. I just started folfox. Started journey with stage 3B resection and clean up chemo, no mutations found. Reoccurance diagnosed in Feb. [...]

Posted by kzinzer, Tue, May 15, 2018 11:50am

somehow my edit did not translate....so just to clarify:
nearbtye ileac arteries= near the ileac arteries
after they airgeon removed= after the surgeon removed

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Posted by kzinzer, Tue, May 15, 2018 1:21pm

Hi Jan- no symptoms other than recent occurring night sweats. And my age of 50 could account for night sweats. I felt great - isn't that the kicker with many of these cancers? Silent until significant progression. I had scans done after my 9th Folfox and then 3 mos later.

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Fri, Feb 23 7:13am · @maltman · Colon Cancer tumor marker testing

My doc says testing for tumor markers is key but how do you do this if your colon cancer was already removed somewhere else? [...]

Posted by charles, Fri, Feb 23, 2018 7:13am

It may not always be possible but here are a couple suggestions. The pathology department that analyzed the initial biopsy or tumor specimen often has tissue saved and this can be requested. A newer technique called a "liquid biopsy" is also being developed where doctors look for the markers in

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Mon, Feb 12 5:39pm · @pickthis · Bye bye Stage 3 Colon Cancer! Never to be seen again!

Hi Group. Again, I can’t thank you all enough for all of your replies and help. Jan and Carol you have been invaluable especially when panic set in. Which unfortunately happened a couple of times. I took my dad to his ct scan which finally happened January 18th. His oncologist [...]

Posted by Jan, Mon, Feb 12, 2018 11:54am

That is excellent news!!! yayayay
Keep up positive thoughts!!!

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Posted by carolcowan, Mon, Feb 12, 2018 5:39pm

Jan,
You really supported Debbie. I'm proud of people like you because you took the time to help someone who was really struggling with the unknown things that were happening. I'm proud of Debbie to go from her heart wrenching start here and was confronted by cancer and her love

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Sat, Feb 3 9:23pm · @carolcowan · SAD NEWS

I don't know how many people here remember Kimber. She was a member of the colon cancer group because her husband, a firefighter/paramedic, had colon cancer. Kimber was diagnosed with a rare kind of cancer called chordoma in her spine and had surgery. She stopped participating here except for a [...]

Posted by curecancernow, Sat, Feb 3, 2018 8:09pm

God Bless Kim and her husband, and children. Kick Kancer. x Sandra

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Posted by Jan, Sat, Feb 3, 2018 9:23pm

Aw I am so sorry to hear this very sad news. I was thinking of her last week. Kimber helped me when I was diagnosed! God bless her and her family! Xo

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Mon, Jan 22 11:09am · @lakeland3261 · Stage 4 colon cancer liver transplant

Does anyone know if a liver transplant can be done on a person with stage 4 colon cancer spread to her liver, but where the section of the colon that had the cancer has been sectioned off? Here in USA they won't do it citing the anti-suppressants for the new [...]

Posted by charles, Mon, Jan 22, 2018 10:05am

This is a difficult decision- make sure you ask and get good answers to all your questions so you feel confident in whatever decision you make.
Yes it is true that liver transplant cases are done oversees and a liver is actually transplanted. The question is how are they defining

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Posted by lakeland3261, Mon, Jan 22, 2018 11:09am

From the data I have read, about 67% of those who have the transplant live at least 5 years as compared to only about 9% of those who don't, live only months. Now that doesn't mean it's curing cancer, but being 78 years old and being told you only have

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Sun, Jan 21 8:17am · @charles · Advances in Treatment of Colon Cancer

2017 saw many advances in the treatment of colon cancer. Use of precision cancer medicines is increasing due to genomic testing; Here is link to latest targets and medications; http://news.cancerconnect.com/types-of-cancer/colon-cancer/precision-cancer-medicine/ Keep up to date with daily cancer news on treatment advances as well; http://news.cancerconnect.com/category/colon-cancer/ Wishing you the best in 2018 [...]

Posted by drummerboy, Sun, Jan 21, 2018 8:17am

Cancer is tough on us no matter what the type, even after we are successful in beating it, we are changed. I say "Cancer Leaves a Mark", these are some thoughts on how cancer marks us forever. Take a look at this. >>http://bit.ly/2m2ngla

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Tue, Jan 23 5:17am · @mbr66 · Started Xeloda today

Hello everyone, I have started my first round of Xeloda this morning, after almost 3 months post surgery. I feel perfectly fine aside from a light headache. I was wondering if you guys have any suggestions or advice for me based on your own experiences with the medication. Thank you [...]

Posted by Jan, Tue, Jan 16, 2018 4:28pm

Stay positive I know it’s hard!! I had trouble staying positive but it does help!!!
Reach out anytime!
Janet

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Posted by mbr66, Tue, Jan 23, 2018 5:17am

Thank you so much! It was very informative, personal and honest! Really appreciate it 🙂

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Fri, Jan 12 4:36pm · @bethbourg · Lonsurf

Has anyone been on Lonsurf? My husband is due to start soon after all of the insurance paperwork is done and we pay the overwhelming copay. Did you have good results? Any side effects? I just don’t understand how drugs are priced. It seems cruel to make people feel so [...]

Posted by carolcowan, Fri, Jan 12, 2018 4:29pm

I had to take a drug called Sovaldi for chronic hepatitis C a few years ago. One tablet a day for 3 months. Each pill was $1,000. I was fortunate that our prescription plan paid all but about $43.00/mo. Gilead, the manufacturer, gave coupons to patients that paid part of

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Posted by bethbourg, Fri, Jan 12, 2018 4:36pm

WOW that was awful! In terms of assistance I did more of a search as you recommended. Seems most companies follow the rule of: in order to qualify you must make less than 400% of the poverty level which for a family of two comes out to be a little

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Dec 12, 2017 · @jas_mine · Possible Colon Cancer

Hi I'm 19 years old. I found out that I have polyps in my colon to the point they will not be able to remove them so I will have to get my whole colon removed. I will have to wear a colostomy bag or a j pouch. I just [...]

Posted by carolcowan, Tue, Dec 12, 2017 1:02am

jsales99,
Jasmine has an inherited gene mutation that has nothing to do with "regular" colon cancer. There are too many polyps to remove and that's why removing the entire colon provides the best chance of extending survival.
Carol

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Posted by carolcowan, Tue, Dec 12, 2017 1:15am

Jasmine,
My best advice for you about the idea of praying for healing is to tell your mother that her prayers and those of her friends will be appreciated while you get the treatment the doctor says you need. If you do pray, you can tell her it's a great

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Tue, Feb 6 6:29am · @barajasd72 · Colon Cancer mastastised to the liver

Hi, my name is David. My Sister was diagnosed with colon cancer last year. She finished chemo in April 2017. When she was re-checked in August 2017 (CT SCAN) radiology doctor located abnormalities to her liver. PET SCAN was done and went to follow up with the doctor and he [...]

Posted by carolcowan, Tue, Feb 6, 2018 3:29am

@01171965,
Liver metastasis is cancer from another part of the body. It's NOT liver cancer. You're correct about liver metastasis indicating the patient has stage 4 cancer. Colon cancer that metastasizes to the liver is colon cancer in the liver.
Carol

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Posted by charles, Tue, Feb 6, 2018 6:29am

Here is a link to a simple summary outlining ALL treatment options for stage 4 colon cancer that has spread to the liver. http://news.cancerconnect.com/types-of-cancer/colon-cancer/stage-iv-colon-cancer/ Because the cancer has spread from the colon to the liver it is likely to also be in places between the colon and the liver therefore

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Fri, Jan 5 10:44am · @pickthis · Possible Sepsis

Hello group. Was hoping someone could help me. My father was supposed to start his lay cycle of Xeloda but instead caught an infection of sorts or so his family physician said. He started on a week of antibiotics then went back in and they hit him with another dose [...]

Posted by pickthis, Fri, Jan 5, 2018 8:49am

Hi Carol. Sorry it took me so long to respond and I’m sorry for not keeping up with posting on here but it has been a very hard month. He was so up and down - feeling half decent one day then completely awful the next with this respiratory thing

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Posted by carolcowan, Fri, Jan 5, 2018 10:44am

Debbie,
His immune system should recover because he's not taking chemo. What you can do to help keep his immune system functioning better includes making sure he's getting a good amount of sleep. Rather than taking vitamins, it's best to get your nutrition in your diet. Foods that may provide

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