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Jun 20, 2015 · @willnotgiveup · Hi all, I don't know if you all know about this, but [...]

Hi all, I don't know if you all know about this, but Dana-Farber has a thing called "Giving Pages" It allows you to setup a fundraising page that tells your story and raise funds for DF. I created one specifically for all donations to go to fund research for [...]

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Jun 21, 2015 · @marialaura71 · Hello! My name is Maria Laura , I'm from Argentina and muy [...]

Hello! My name is Maria Laura , I'm from Argentina and muy husband, Eduardo,take colon cancer. Sorry to my english, its not the better. Eduardo's CEA is increasing and we dont Known whats else do ,he takes QT , twice in the month along a year ( FOLFOX 5+ Vectivix). [...]

Posted by madauntdolly, Fri, Jun 19, 2015 11:19am

Hello there, my name is Nica and my Husband has had colon cancer for the last four years, he had an Ileostomy in 2011 and then had a resection, no bag anymore, he was depressed like your Husband, but he has now got the scare of an asbestos lung as

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Posted by swiss, Sun, Jun 21, 2015 4:22pm

I have found the best thing for deoretssion is exercise in any form, along
with relaxion techniques and breathing.
A start might be with what is called a white noise machine.
With this machine there are several settings varying from the sound of wind
to seashore sounds of waves and

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Aug 6, 2015 · @nsm56 · how do I switch from RPCI

how do I switch from RPCI [...]

Posted by jaymarye, Mon, Jun 22, 2015 10:49am

Are you looking for a new cancer center? If so, you can contact any cancer center on your own or have your primary care physician refer you.

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Posted by rdb72, Thu, Aug 6, 2015 10:46pm

Stage 4 Mets in Liver. Chemo (been through all known to be beneficial according to Caris based on pathology) and no longer responsive. Now going to try radioactive isotopes. Anyone tried this?

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Jun 8, 2015 · @kimber · Immunotherapy and colon cancer

Immunotherapy and colon cancer Anyone know anyone or know of any research regarding stage 4 colon cancer and immunotherapy? Husband is NED for now (scan tomorrow) but I want to be ahead of the game if it comes back,as doctors have said it will at some point. I have read such [...]

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Jul 7, 2015 · @magnif76 · Stage II Colon Cancer

I had a stage II colon cancer resection followed by 6 months of 5FU/LV Chemotherapy. 28 nymphnodes we examined and found w/o cancer cells, all organs are unremarkable. Completed the treatment with flying colors. I am feeling fine, great weight, and a vegan. It is now 13 months since I

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Posted by marijo, Mon, Jul 6, 2015 7:08pm

Would you mind telling me your CEA numbers. Mine have gone from 2.5 to 2.7 to 3.0 My oncologist is reluctant to do a PET...he doesn't seem to be concerned with the numbers, but I am. So I would be interested in your CEA numbers. Thank you.

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Posted by magnif76, Tue, Jul 7, 2015 6:48pm

My Cea went from 2.2 to 2.17

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Jun 8, 2015 · @mmackay · I was diagnosed this March with small colon cancer stage 4. The [...]

I was diagnosed this March with small colon cancer stage 4. The way they discovered it was exploratory abdominal surgery when other measures failed. ( the doctors thought it was scar tissue adhesions from previous abdominal,surgeries , c- sections. ) The cancer had spread and a blockage between the large [...]

Posted by megm, Mon, Jun 8, 2015 12:49pm

Hi @mmackay, thanks for your post and sorry that you are having to deal with this. I am one of the moderators here and will message the other members of the group to see if there is someone else who can share their experience with you.

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Jun 22, 2015 · @patricia54 · After a routine colonoscpy it was discovered I had a tumor in [...]

After a routine colonoscpy it was discovered I had a tumor in the cecum. I had a resection, tumor removed and about 18 inches of colon and 7/25 lymph nodes had cancer! 7weeks after surgery I had a PET scan which revealed I had stage IV, with mets to the [...]

Posted by nbasar, Mon, Jun 22, 2015 2:37am

Hi Meredith,
Excellent explanation. Many, many thanks, also for the suggestion.
Is it possible to give a name or two who are specialists on colon oncology in Dana-Farber in case I manage an appointment there when I will definitely inform you.

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Posted by willnotgiveup, Mon, Jun 22, 2015 10:16am

nbasar,

I am glad you found it helpful! My doctor is Dr. Peter Enzinger - here is a link at Dana-Farber Boston:

http://www.dana-farber.org/Adult-Care/Treatment-and-Support/Treatment-Centers-and-Clinical-Services/Gastrointestinal-Cancer-Treatment-Center.aspx.

This is the appointment number: 877-332-4294.

Another Doctor I have volunteered with working on some brochures/videos about colon cancer treatment is Dr. Deborah

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Jan 20, 2016 · @cancerconnect · Rectal Cancer: Ileostomy

Share your experience

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Posted by ebee1955, Fri, Jan 15, 2016 8:23am

Dear @heleninireland, I have been thinking of you and praying that you are doing well while you are in the midst of your chemo-radiation phase of the journey. I experienced fatigue towards the end of my six weeks but I am asking the Lord to keep you strong and positive.

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Posted by heleninireland, Wed, Jan 20, 2016 12:33pm

@ebee1955 Many thanks for your post and my condolences on your Father's passing. My own journey is progressing well. I'm in week 5 of 6, 8 more treatment days to go. I've had few side effects and they've been mild and manageable - low fibre diet keeps my digestion running

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May 18, 2015 · @nancymaddox315 · I was diagnosed with stage IV 2 years ago. I did 42 [...]

I was diagnosed with stage IV 2 years ago. I did 42 rounds of chemo. Second round cancer grew. I am now on TAS102. Won't cure cancer, but it should keep it from growing. It is a pill. No more pump. I have done one round and minimal side effects. [...]

Posted by megm, Mon, May 18, 2015 10:07am

Thanks for sharing your experience @nancymaddox315! Glad that you are tolerating this so well.

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Posted by fmmarcus, Mon, May 18, 2015 8:28pm

Where are you being treated. I thought tas 102 was not approved yet as a treatment option. Just in clinical trials.

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May 25, 2015 · @jc4me · My son has just finished 8 treatments for colon cancer. Getting oxiliplatin [...]

My son has just finished 8 treatments for colon cancer. Getting oxiliplatin and 5fu. when platelettes are under 75 oxi omitted. From research we did oxi was going to cause more physical issues. However he's finding more issues with 5fu then oxi. Gets nauseous and hand and feet burn and [...]

Posted by madbeader, Mon, May 25, 2015 10:04am

JC, I had breast cancer last year, and I had paclitaxel infusions. I realize the two drugs are very different, but it sounds to me as if your son is experiencing CIPN - chemotherapy induced peripheral neuropathy. The burning and numbness sort of give it away. How old is your

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Posted by jc4me, Mon, May 25, 2015 12:04pm

Hi Madeline

thanks for the response.  my son is an adult and unless he gave permission the doctors would not speak to me. ( which as a mother i think is most irritating and ridiculous but it is what it is) thankfully  he gas given permission  and I did speak to

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Apr 30, 2015 · @kimber · Help! So my husband who has stage 4 colon cancer was declared [...]

Help! So my husband who has stage 4 colon cancer was declared ned about 2 months ago. This past Saturday I rushed him to the Er with severe abdominal pain. He has an intestinal obstruction due to adhesions from when they removed tumor about a year ago and hipec. He [...]

Posted by kimber, Thu, Apr 30, 2015 9:08am

Unfortunately this is a small community hospital and I think they only have one surgical group. He actually says he feels a bit better today but last time when he felt better he had broth and became in unbearable pain so I am not sure if that'll happen again

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Posted by carolcowan, Thu, Apr 30, 2015 12:48pm

Kimber,
WOW! I have more questions than answers. Why won't the surgeon operate? An untreated intestinal obstruction is not compatible with life unless they do a colostomy. Have they talked about placing a metal stent through the obstructed area? Has he passed gas or moved his bowels at all? If

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Aug 5, 2015 · @rdoucet · Rectal Cancer: NED, Dealing with Colostomy and Colonoscopy

My name is Rebecca. Last week I was told I am rectal cancer free. I have had the radiation, surgery, and chemotherapy. I have a permanent colostomy. MY question is I am schedules for a colonoscopy 5 May 2015. When I start doing the prep. I don't want to use

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Posted by salmon2014, Fri, May 1, 2015 3:03pm

Yes I have also
And I have the love and support of my husband & daughter

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Posted by lorri, Wed, Aug 5, 2015 3:20pm

What sort of gas pills do you use and do they interfere with your medication

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Apr 9, 2015 · @olivia007 · What were some of your symptoms of colon cancer, before you got [...]

What were some of your symptoms of colon cancer, before you got tested? [...]

Posted by mazellaw, Thu, Apr 9, 2015 11:45am

Hello Everyone, I am considering the Dr. Edward Lin's ADAPTP protocol of Xeloda and Celebrex. Is anyone currently on the ADAPT protocol?? If so, what have your results been and what is the dosage of Xeloda and Celebrex taken? Any insights/info. would be deeply appreciated. Thanks.

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Apr 28, 2015 · @sandeejane · Partner diagnosed with colon cancer with mets to liver and now hip [...]

Partner diagnosed with colon cancer with mets to liver and now hip bone. He has had a foot of his colon removed along with the colon tumour. A hepatic chemo pump installed at the same time the tumour was removed. We have been together for 4 years and over 50% [...]

Posted by charles, Fri, Apr 3, 2015 5:46am

Hopefully that will control the disease and the chemo will provide some benefit
C

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Posted by rdoucet, Tue, Apr 28, 2015 3:00pm

SJW, I will stay special prayers for you and your partner. Just know you are not alone. God is with US all the time. We have to ask for his help. Through your faith u will gain strength to go on with your journey. I have had my ups and

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Mar 31, 2015 · @jc4me · A little confusing. Son diagnosed with stage 2 colon cancer but doc [...]

A little confusing. Son diagnosed with stage 2 colon cancer but doc said categorize as a 3 because tumor was sized as a T4. Had surgery and 5th round of chemo. Does any know if and when pet scan should be ordered. I heard 6 treatments in but no scan [...]

Posted by charles, Tue, Mar 31, 2015 5:37am

I said it is common to outline a follow up plan after chemo is completed. A follow up plan to look for recurrence typically consists of blood work including tumor markers, a scan of some sort (CT is usually sufficient) and regular MD evaluations.

Charles H Weaver MD CEO
Omni Health Media
Leaders

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Posted by jc4me, Tue, Mar 31, 2015 5:39am

Thanks again

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