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Feb 25, 2016 · @raymond1 · Experience with Lonsurf

Hello, My husband was diagnosed a 1 1/2 ago with stage 4 CRC with mets only to the left lung, shoulder, 6th rib, and left hip bone. Treatment went very well for about 1 year (folifori,folfox,avastin, 5fu) 2 ago weeks his oncologist told him the cancer is progressing even with

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Posted by jvanderbrook, Feb 25, 2016

@Dave Hi - tried Lonsurf for three months, and unfortunately, it was zero help. My cancer mutation must be rather stubborn, just continued to grow. Just so you don't have to dig back, I'm stage 4 CRC with mets in both lungs, two new tumors in brain, and now two [...]

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Posted by Steventan, Feb 25, 2016

Dave,
Doctor say still have 3 months. Than still not a bad news.

I just attended a testimony And talk last night from cancer association .(
Me too a cancer patient, with multiple myelona,and stage 3a lung
cancer.live in Singapore. )

One cancer patient was declared only left [...]

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Liked by Sue

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Feb 10, 2016 · @luisa · Signs and symptoms of Colorectal Cancer

"Signs and symptoms of Colorectal Cancer" View This New Dana-Farber Slide Show

Colorectal cancer is the fourth most common cancer in the U.S. What are some of the common signs and symptoms? And how often -- and how -- should you be screened?

View the answers to these and many other questions

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Feb 8, 2016 · @mdk1959 · Chemoradiation Burn Rectal Cancer

I was diagnosed in November 2015 with rectal cancer. The tumor was staged thru ultrasound as Stage 3, MRI indicated Stage 2. The tumor is very close to the anal verge. I am scheduled to have my last chemoradiation treatment tomorrow and then three BOOST sessions. Currently I am [...]

Posted by mdk1959, Feb 8, 2016

Just an update. Saw my Rad Onc today and she has given me a week of rest while my body tries to recover. I will see her next Monday. Thanks for your story Cindy, it does give me hope 🙂

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Posted by cindylouburnett, Feb 8, 2016

You are so welcome!!! Anything that I might be able to help you out with I surely will try. Rest up that will help a lot. God is with you. Take care!! Cindy

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Feb 2, 2016 · @sailing · My husband (age 63) has Stage 4 colon cancer; early 2014 a [...]

My husband (age 63) has Stage 4 colon cancer; early 2014 a tumor was removed from his colon & he had the ostomy bag for 6 mts; some preventive chemo treatments & bag was reversed. In June, 2015 it had mets to 3 small areas of his lungs - radiation [...]

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Feb 3, 2016 · @fmmarcus · Stivarga

Stirivga

I would like information concerning stivarga. If anyone can share their experience with this drug

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Posted by megm, Feb 3, 2016

Hi @fmmarcus, thought this ongoing conversation might be helpful: http://cancerconnect.com/discussion/hey-anyone-have-any-experience-with-regorafenib-aka-stivarga-my-husband-will/

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Posted by fmmarcus, Feb 3, 2016

Thank you for sharing this. I would like to share that Tas102 has been approved. It's name is lonsurf

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Jan 19, 2016 · @imherhusband · Hello everyone, It's been a while since I posted. In April 2015 [...]

Hello everyone, It's been a while since I posted. In April 2015 my wife was diagnosed with stage 4 colon cancer. When she started treatment June 2015 her Cancer maker was 29 today Jan. 2016 it is 2.2 and she's on her 2nd round of chemo. Her legs and arms [...]

Posted by megm, Jan 18, 2016

Hi @imherhusband, thank you for the update, great news that her markers are down! What chemo is she having? Some chemotherapy drugs can have the side effect of neuropathy which can cause numbness/tingling in extremities. Do her doctors say that what she is experiencing is a side effect of her [...]

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Posted by imherhusband, Jan 19, 2016

@megm Since I was last here the Dr. said the soreness is from the treatment. She is given Avastin, 5FU, and Oxaliplation.

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Mar 13, 2016 · @jeanie456 · Experience with Xeloda

Hi Friends~ I am a "happy to be here and thankful" breast cancer survivor who is doing her best to help my best friend that just had surgery for colon cancer (stupid cancer!!). She had a very successful surgery and was just informed that she will be having chemo, Xeloda,

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Posted by jeanie456, Mar 13, 2016

Hi Jan~
Think positive that the doctors will find the right drug to beat the cancer. I will keep you in my prayers.
jeanie

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Posted by Jan, Mar 13, 2016

Thank you!!

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Mar 20, 2016 · @Elliem · I am stage 4 colorectal cancer with lung [...]

I am stage 4 colorectal cancer with lung mets. I've been receiving chemo for over two years. This is going to sound strange, but I don't feel like I am "fighting "cancer. With God's mercy and grace, I am living my best life with cancer. I am on maintenance chemo. [...]

Posted by gwendolynthomson, Mar 19, 2016

Elliem, thank you for sharing. I am just now seeing your post for the first time.

I have stage 4 colon cancer which is no longer in the colon (surgery removed it in 2007) but has metastasized to a lung, my spine (biggest tumor there) and lymph nodes. I [...]

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Posted by raymond1, Mar 20, 2016

Hello sburns, My husband has stage 4 colon cancer and was diagnosed July 2014 he is on his second round of Lonsurf 55mg twice a day and so far he has done very well. I am not sure when they will do a PET scan to see if it has [...]

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Mar 21, 2016 · @kimber · Any advice?

Any advice? Hello friends: the husband had routine ct today and was rushed to the ER after the radiologist found 2 pulmonary embolisms. He is on avastin and I thought that was a blood thinner so I don't know how they treat this. Yesterday he had a urinary stent replaced and [...]

Posted by carolcowan, Dec 19, 2015

Kimber,
I don't have television reception where I live because I'm surrounded by mountains, so I never saw the lawsuit ads. Any anticoagulant (blood thinner) is dangerous. Read the side effects of aspirin, it's one, too. The brother-in-law I mention here because he had liver cancer developed atrial fibrillation and [...]

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Posted by gwendolynthomson, Mar 21, 2016

Kimber,
I have stage 4 colon cancer (am unemployed) and I get SSDI for it. Am not a gov employee, but I can't believe there isn't a way he'd be approved for SSDI w/ his diagnosis. Good luck.

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Jul 28, 2016 · @lisac61 · I haven't posted for awhile so to update - my sister has [...]

I haven't posted for awhile so to update - my sister has Stage IVB metastatic colon cancer - metastases to her ovaries and liver. She had a colon resection and a total hysterectomy on January 29th. The spot on her liver was found 6 weeks later when she had her [...]

Posted by bryanmeb, Jul 28, 2016

Hi I had cancer stage 4 and had 2 spots in my liver either side. I was diagnosed and treated 2008 and now see my internist once a year. was totally done with cancer in 2013
you never know about things but had the whole 9 yards, colostomy, chemo and 3 [...]

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Posted by bryanmeb, Jul 28, 2016

judy I was diagnosed with stage 4 colon caancer.2008 AM a nurse practitioner in the hospital that i got treated so had that advantage. Had 4 surgeries that year and chemo with folfox and avastin. No more oncologists and have neuropathy in feet due to oxlyplatin that year
is my [...]

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Nov 16, 2015 · @john767 · colon cancer

colon cancer Nov.6 12 was 3yrs i was told that i am cancer free now they are running test to see if the cancer has returned i just do not understand [...]

Posted by megm, Nov 16, 2015

Hi @john767, keep us posted!

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Nov 14, 2015 · @kimber · CT results

CT results Hello, question. My husband who has stage 4 colon cancer just got the results of latest CT which showed some areas were shrinking, some stayed the same and a couple of small new areas appeared. This is mostly in the retro peritoneum. I know that that area is bad [...]

Posted by kimber, Nov 14, 2015

Ok thank you. And good advice

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Posted by carolcowan, Nov 14, 2015

kimber,
Like you, I seriously doubt if he's been referred to a psychologist or a counselor because he's late for appointments. I give him a bonus for creativity, though. You said you wish he'd tell you the real deal, that's most likely why he's been told to see someone. He's [...]

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Dec 14, 2015 · @chbb7465d · My husband was diagnosed with stage 3 colon cancer in 2011. In [...]

My husband was diagnosed with stage 3 colon cancer in 2011. In 2012 PET scan showed he had it in the right lung. He has had a colectomy and thoracotomy with 2 rounds of uncompleted chemotherapy.He said NO more Dr.'s, surgeries or treatment. With that said long story short he [...]

Posted by onedayonelife, Dec 14, 2015

Sorry, Every other Week

From: CancerConnect [mailto:rgl-a5d3febb-70-75214-22721@email.cancerconnect.com]
Sent: Monday, December 14, 2015 11:11 AM
To: Layson, Catherine
Subject: Jan replied to your post "My husband had FU5, the oxyplatin was tough, [...]" [CancerConnect]

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Posted by chattycathy47, Dec 14, 2015

I think EOW means evry other week.

CATHY HARLAN

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Dec 17, 2015 · @fmmarcus · Lonsurf

Lonsurf I Will be starting on the drug lonsurf This was tas102 during trials. Is there anyone who can share their experience with this drug [...]

Posted by fmmarcus, Dec 16, 2015

Thank u for the update. I am a week ahead of u. I also have bathroom issues. My white blood count went down and now I take lonsurf 4 days instead of five with 2 days off another 4 days over a 28 day cycle My last blood count was [...]

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Posted by jvanderbrook, Dec 17, 2015

Thanks. The fatigue issue has become a non-issue by day 16. At least I have 2 good weeks ahead of me.

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Oct 23, 2015 · @fmmarcus · Stir barge

Stir barge Dr wants me on stirvarga. I told her I would take a lower dose. Can anyone share their experience on this drug. Anyone on lonsurf. Tas 102. It was recently approved [...]

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