Welcome to the CancerConnect Online Support Group for Colorectal Cancer Patients and Caregivers. Your story matters! Click Join Now to register for the community and join the conversation.

Aug 12, 2016 · @trixie · I am new to this forum. I was diagnosed with stage 111A [...]

I am new to this forum. I was diagnosed with stage 111A colon cancer in January of this year. I had a resection done in January where they found tumors in my fat lining which made it stage 111A. I was started on oxaliplatin and xeloda February 18th. I had [...]

Posted by trixie, Fri, Aug 12, 2016 4:33pm

Thank you so much! Good advice!!

[...]
Posted by trixie, Fri, Aug 12, 2016 4:34pm

Thanks so much and you too!!

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 26, 2016 · @Elliem · Carol, I was diagnosed in 2013 with colorectal [...]

Carol, I was diagnosed in 2013 with colorectal cancer and they saw some very tiny spots on my lungs. They didn't know if they were mets or lung cancer. I had to have a colostomy last year. I can't seem to get a straight answer on why I can't have [...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 24, 2016 · @wazhyfee · My husband was diagnosed with stage 4 colorectal cancer last month. Completed [...]

My husband was diagnosed with stage 4 colorectal cancer last month. Completed 2/12 chemo treatments of Avastin and 5-Fu. He has a fentanyl patch and had a dosage increase to 3 Oxy every 4 hours but still cant get his pain level down below a 4. Has anyone else had [...]

Posted by wazhyfee, Thu, Mar 24, 2016 7:31pm

@carolcowan, I appreciate your input. H is alright with a pain level of 4, which is constant but tolerable for him. The hospital used level #'s 1-10 with 10 being the highest so that's what we understand. Then they asked if it's constant, dull or sharp.
Your explanation of pain

[...]
Posted by wazhyfee, Thu, Mar 24, 2016 7:33pm

I pray you are able to find some relief soon. It's hard to function when you're in so much pain much less sleep.

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 23, 2016 · @luisa · "Can We Treat Colorectal Cancer with Immunotherapy?" New Dana-Farber Blog Post This [...]

"Can We Treat Colorectal Cancer with Immunotherapy?" New Dana-Farber Blog Post This blog post originally appeared on the blog of the American Association for Cancer Research (AACR). The story begins, "March is Colorectal Cancer Awareness Month. About 134,490 people are estimated to be diagnosed with ... colorectal cancer [...]

Posted by faith, Tue, Mar 22, 2016 8:28am

Keytruda (pembrolizumab) was approved for advanced stage colorectal cancer as a "Breakthrough Therapy Designation” in Nov 2015. (It had been approved for other cancers before that.) What they are testing for is something called microsatellite instability - a feature of the cancer cells. Here are two explanations - one from

[...]
Posted by gwendolynthomson, Wed, Mar 23, 2016 8:47pm

Thank you for this post, Faith.

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 28, 2016 · @kimber · Brain mets?

Brain mets? Hello husband with colon cancer now getting bad headaches once a week, waiting for brain MRI, anyone with similar story? Thanks, Kimber [...]

Posted by megm, Mon, Mar 28, 2016 7:58am

Hi @kimber, I have been thinking about you and your husband. Has he had the brain MRI yet?

[...]
Posted by kimber, Mon, Mar 28, 2016 8:27am

Hey megm, he did have it Friday and the guy who does the test said it looked normal to him but the radiologist is supposed to read it today. He also had a bunch of blood work we should get results on today too. I assume if it was life

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 19, 2016 · @lou3863 · I was treated for breast cancer at 101 Colombian now I have [...]

I was treated for breast cancer at 101 Colombian now I have colon cancer and my insurance will only allow me to go to 51 performance drive Weymouth anyone getting treated there? [...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 17, 2016 · @luisa · "What Can I Eat If I Have Colorectal Cancer?" New Dana-Farber Blog [...]

"What Can I Eat If I Have Colorectal Cancer?" New Dana-Farber Blog Post "Colorectal cancer and its treatments can often impact the way the body digests foods, fluids, and absorbs nutrients. For patients and survivors, incorporating healthy, plant-based foods and lean protein into your diet can help your body [...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 13, 2016 · @tconz777 · Liver Mets- Chemo Pump

Hi everyone my husband who is 41 years old was diagnosed with stage III colon cancer that metastasised to his liver. Next week he's going for a right lobectomy and they're implanted a chemotherapy pump that will pump the chemo directly to his liver. Has anyone had either a lobectomy

[...]

Posted by Jan, Fri, Mar 11, 2016 4:13pm

In my prayers for a speedy recovery and a very healthy many more years!!

[...]

Liked by maryl, tconz777

Posted by bvtart, Sun, Mar 13, 2016 6:26pm
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 22, 2016 · @r1940c · Starting Chemo

I am 75 was diagnoised with colon cancer 2 years ago 2 years later was diagnosied with stage 3 colon I will start treatment having a port put in how promising is this to cure

[...]

Posted by gwendolynthomson, Mon, Mar 21, 2016 9:04pm

Thank you very much Carol.

​Gwendolyn

[...]
Posted by r1940c, Tue, Mar 22, 2016 3:29am

I fast 48 hours with water and vegetables before my chemo also have coffee

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Mar 22, 2017 · @tconz777 · Liver metastases

Hi everyone, my husband was diagnosed with stage III colon cancer in August. They did a resection and he received 5 rounds of folfox. At the end of January they found 3 spots on his liver and he's scheduled for surgery in March. They're removing the tumors and installed a

[...]

Posted by tconz777, Mon, Mar 13, 2017 3:39pm

Thank you for sharing! That's great news that the pump worked so well. I'm going to share your news with my husband. God bless and good luck with your upcoming procedures.

[...]
Posted by jasulinski, Tue, Mar 14, 2017 8:02am

thank you...I' will keep your family in my thoughts and prayers also

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 25, 2016 · @raymond1 · Experience with Lonsurf

Hello, My husband was diagnosed a 1 1/2 ago with stage 4 CRC with mets only to the left lung, shoulder, 6th rib, and left hip bone. Treatment went very well for about 1 year (folifori,folfox,avastin, 5fu) 2 ago weeks his oncologist told him the cancer is progressing even with

[...]

Posted by jvanderbrook, Thu, Feb 25, 2016 9:03am

@Dave Hi - tried Lonsurf for three months, and unfortunately, it was zero help. My cancer mutation must be rather stubborn, just continued to grow. Just so you don't have to dig back, I'm stage 4 CRC with mets in both lungs, two new tumors in brain, and now two

[...]

Liked by Sue

Posted by Steventan, Thu, Feb 25, 2016 12:07pm

Dave,
Doctor say still have 3 months. Than still not a bad news.

I just attended a testimony And talk last night from cancer association .(
Me too a cancer patient, with multiple myelona,and stage 3a lung
cancer.live in Singapore. )

One cancer patient was declared only left

[...]

Liked by Sue

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 10, 2016 · @luisa · Signs and symptoms of Colorectal Cancer

"Signs and symptoms of Colorectal Cancer" View This New Dana-Farber Slide Show

Colorectal cancer is the fourth most common cancer in the U.S. What are some of the common signs and symptoms? And how often -- and how -- should you be screened?

View the answers to these and many other questions

[...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 8, 2016 · @mdk1959 · Chemoradiation Burn Rectal Cancer

I was diagnosed in November 2015 with rectal cancer. The tumor was staged thru ultrasound as Stage 3, MRI indicated Stage 2. The tumor is very close to the anal verge. I am scheduled to have my last chemoradiation treatment tomorrow and then three BOOST sessions. Currently I am [...]

Posted by mdk1959, Mon, Feb 8, 2016 3:25pm

Just an update. Saw my Rad Onc today and she has given me a week of rest while my body tries to recover. I will see her next Monday. Thanks for your story Cindy, it does give me hope 🙂

[...]
Posted by cindylouburnett, Mon, Feb 8, 2016 5:05pm

You are so welcome!!! Anything that I might be able to help you out with I surely will try. Rest up that will help a lot. God is with you. Take care!! Cindy

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 2, 2016 · @sailing · My husband (age 63) has Stage 4 colon cancer; early 2014 a [...]

My husband (age 63) has Stage 4 colon cancer; early 2014 a tumor was removed from his colon & he had the ostomy bag for 6 mts; some preventive chemo treatments & bag was reversed. In June, 2015 it had mets to 3 small areas of his lungs - radiation [...]

@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Feb 3, 2016 · @fmmarcus · Stivarga

Stirivga

I would like information concerning stivarga. If anyone can share their experience with this drug

[...]

Posted by megm, Wed, Feb 3, 2016 8:50am

Hi @fmmarcus, thought this ongoing conversation might be helpful: http://cancerconnect.com/discussion/hey-anyone-have-any-experience-with-regorafenib-aka-stivarga-my-husband-will/

[...]
Posted by fmmarcus, Wed, Feb 3, 2016 4:37pm

Thank you for sharing this. I would like to share that Tas102 has been approved. It's name is lonsurf

[...]
@ Mention Someone Photo/Files

You can upload JPG, JPEG, JPE, PNG, GIF, PDF files at or less than 5 MB.

Please login with your account or, if you aren't a member, join now.

 

Login


Join Now