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Jun 13, 2016 · @kimber · My husband had urinary stent put in as the ureter wasn't staying [...]

My husband had urinary stent put in as the ureter wasn't staying open. His cea is now 6. I believe normal is under 4. The month before he was at 3 so it's increased significantly. He has to get ct scan. If they don't see anything on ct would you [...]

Posted by carolcowan, Mon, Jun 13, 2016 6:23am

Kimber,
If it sounds like I'm trivializing your husband's test result, I'm not. In your shoes, it's yet another setback and it would worry me, too. You understand what's happening with your husband better than I do. You deal with his problems proactively. I preach about that here and you've

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Posted by kimber, Mon, Jun 13, 2016 9:40pm

@carolcowan that was one of the nicest things anyone has ever said to me. Thank you, kimber

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Jul 21, 2016 · @browning6 · Looking for survival stories. Husband Stage 4 with Metastatic to lung, liver [...]

Looking for survival stories. Husband Stage 4 with Metastatic to lung, liver and nodes. [...]

Posted by carolcowan, Tue, Jul 19, 2016 1:04pm

Kathy,
The fatigue isn't from aging most likely, it's more of a metabolic thing. That said, I've heard it can take 6 months or more for some people to get it to a level where they can function the way they used to. No doubt, chemo disrupts a lot of

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Posted by kline, Thu, Jul 21, 2016 10:05am

Carol,

My first trip to Alaska was with an older friend (She's 5 years older than me) when we both retired. She had been wanting to go back to Alaska for a long time, so as we were planning our retirement I told her if she wanted to go, I would

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Jun 7, 2016 · @Elliem · Dear Carol, I am headed toward my last [...]

Dear Carol, I am headed toward my last hope(Lonsurf). I have a good quality of life. If this doesn't work, does a person just go home and wait til the end? I am very active and positive. I have colorectal cancer with lung mets, 2 1/2 years out from diagnosis. [...]

Posted by katie5963, Mon, Jun 6, 2016 9:02am

Saw this article today and thought I would share...might be worth looking into..

http://www.houstonchronicle.com/news/medical/article/Immunotherapy-still-the-hot-topic-at-cancer-7964829.php

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Posted by carolcowan, Tue, Jun 7, 2016 12:05am

Dear Ellie,
I'm sorry it took a while for me to respond. I've had some things in my family that were distracting. I went back to your first post and read forward because your question is serious. Who has said Lonsurf is your last option? I know you live in

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Jun 2, 2016 · @snowman · My wife had colon cancer in 2007 that was surgically removed. In [...]

My wife had colon cancer in 2007 that was surgically removed. In June 2015 she discovered that it had returned but in her lungs. She is being treated at Cape Cod Healthcare by an oncologist we are very pleased with. My question is is there any immunotherapy now available and [...]

Posted by mkms, Fri, Jun 3, 2016 5:38am

Dana Farber is phenomenal. They will set you up w/ an appointment w/in a few days. My husband travels from Miami every 2 weeks for immunotherapy. He is in a clinical trial and his mets from RCC shrunk 6 weeks after beginning his treatment. Appointments (labs, EKG, NP & MD,

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May 26, 2016 · @wazhyfee · My husband was diagnosed with stage 4 colorectal cancer back in February. [...]

My husband was diagnosed with stage 4 colorectal cancer back in February. He has completed 5 of 12 rounds of aggressive chemotherapy. He has Hand and Foot syndrome from the 5-FU and has extreme back pains from the Neulasta shots. We have tried Claritin starting 2 days before the shot [...]

Posted by faith, Thu, May 26, 2016 9:49am

Is he being cared for at a cancer center? Have him ask the oncologist for a referral to the cancer pain management doctor. Oncologists treat cancer and though they may have a few standard meds they order for pain control, if your hubby isn't responding to those drugs, a cancer

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Posted by wazhyfee, Thu, May 26, 2016 10:13am

His doctor prescribed Neurontin. This has helped tremendously. Also increased his Fentanyl to 75mcg in the hopes that he can scale back using so much of the oxycodone.

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May 5, 2016 · @luisa · "What Is Lynch Syndrome?" New blog discussion from Dana-Farber The article begins, [...]

"What Is Lynch Syndrome?" New blog discussion from Dana-Farber The article begins, "Lynch syndrome, also known as hereditary nonpolyposis colorectal cancer (HNPCC), is the most common hereditary form of colorectal cancer. In the United States, about 140,000 new cases of colorectal cancer are diagnosed each year and approximately [...]

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Jun 1, 2016 · @Elliem · Stage IV CRC with Lung Mets

I have stage 4 colorectal cancer with lung mets. I'm 2 1/2 years out from diagnosis. When I first asked about surgery my onc consulted a general surgeon(we live in a rural community) my onc comes to our local hospital to give treatment. They said my cancer was down too

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Posted by wazhyfee, Mon, May 9, 2016 12:07am

My husband has stage 4 colon cancer with mets to his liver. He started chemo in March. So far he's completed 5 of 12 rounds. Every 2 weeks he spends half the day getting boosters and chemo then goes home with 5-fu in a fanny pack for 2 days.
Many

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Posted by rclkus, Wed, Jun 1, 2016 9:16pm

Why he consulted a general surgeon. It was thoracic surgeon who should be consulted? May be you are living in small town, but in any case, they should not put you in “maintenance treatment”.
My elder brother was 70 in October 2010 when he was diagnosed to have stage IV

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Apr 14, 2016 · @tetris · Stage IV colon cancer with mets to uterus. Knowledge on this would [...]

Stage IV colon cancer with mets to uterus. Knowledge on this would be appreciated [...]

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Apr 14, 2016 · @luisa · Join Us at "LYNKED IN" Dana-Farber's Educational Conference for Patients with Lynch [...]

Join Us at "LYNKED IN" Dana-Farber's Educational Conference for Patients with Lynch Syndrome June 11, 2016, Dana-Farber's Boston Campus "LYNKED IN" is a one-day, educational conference for individuals with Lynch syndrome, their families, and caregivers, hosted by Dana-Farber’s Center for Cancer Genetics and Prevention. Patients treated at Dana-Farber and [...]

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Apr 20, 2016 · @kimber · Temperature regulation

Temperature regulation Hello everyone: My husband is having trouble regulating his temperature. It seems mostly he is cold and even in a hot shower he still feels cold. To recap, he has stage 4 colon cancer with mets to peritoneum ureter and lymph nodes. It is very odd, so I figured maybe [...]

Posted by kimber, Wed, Apr 20, 2016 10:52am

Thank you megm. Right now he is not on chemo. Could that b a lasting effect maybe?

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Posted by carolcowan, Wed, Apr 20, 2016 11:47am

Kimber, I meant to respond to this but got sidetracked. My brother-in-law (liver cancer) was cold all the time, too. It was especially bothersome when he finished eating dinner. He took a very warm bath every evening right after eating. He wore heavyweight sweatpants, a shirt, and a hoodie or

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Apr 5, 2016 · @tconz777 · Vectibix- stage IV Colon Cancer

Vectibix- stage IV Colon Cancer Hi everyone my husband has stage IV colon cancer that spread to his liver. He recently had liver surgery and they were able to remove all of the liver tumors. Now they suggested starting him in Vectibix and Folfox. Has anyone been on this drug? [...]

Posted by megm, Tue, Apr 5, 2016 9:24am

Hi @tconz777, I am one of the moderators here and have messaged the other members of the colon cancer group to see if they can share their experience. Thanks for your post!

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Posted by tconz777, Tue, Apr 5, 2016 7:11pm

Thank you @megm

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Apr 5, 2016 · @6272Msf · Crohn's and Stage IV Colon cancer

my husband had CC dtage 4 diagnosed Jan'16 & going through chemo but at 50 % because it was so dibilitating. problem is he had Crohns too.

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Posted by megm, Tue, Apr 5, 2016 10:12am

Hi @6272Msf, thanks for your post and sorry that you and your husband are having to deal with this. How are you doing through all of this?

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Apr 4, 2016 · @ritagale50 · My husband has had colon cancer since 2012 and several chemo and [...]

My husband has had colon cancer since 2012 and several chemo and radiation treatments now on the chemo pill Lonsurf. Is anyone familiar with this drug? [...]

Posted by Jan, Mon, Apr 4, 2016 8:53am

God Bless you I will add you to my prayers that the drug works, Cancer is so scary
I am afraid every time I get a pain that it has spread... one day at a time and enjoy
each day to the fullest, I will be happy when I am

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Posted by carolcowan, Mon, Apr 4, 2016 9:14am

I just read that there are over 100 new anti-cancer drugs in the pipeline for approval by the FDA. They seem to be realizing that they need to shorten the wait. Each time a new drug is approved, other drugs with similar mechanisms of action (like immunotherapy or targeted therapy,

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Apr 20, 2016 · @ritagale50 · My husband has been battling colon cancer since 2012 with it reoccurring [...]

My husband has been battling colon cancer since 2012 with it reoccurring for the 3rd time. Has recently had 2 allergic reactions to IV chemo drugs and now starting on a pill Lonsurf. Does anyone know about this drug? [...]

Posted by megm, Wed, Apr 20, 2016 11:33am

Hi @ritagale50, thought this ongoing conversation might help: http://cancerconnect.com/discussion/hello-my-husband-was-diagnosed-a-1-12-ago-with-stage-4/

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Apr 12, 2016 · @buckeye100 · Will I feel more confident if I wear an ostomy belt? Do [...]

Will I feel more confident if I wear an ostomy belt? Do they really prevent leaks? Any disadvantages? [...]

Posted by coupejete, Mon, Apr 11, 2016 3:08pm

It's really just an individual prefetrence. Support is always good.

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Posted by charles, Tue, Apr 12, 2016 4:13am

Agree; but i think it provides some sense of security and confidence
C

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