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Jan 4, 2017 · @celeste51 · Connect with others

I thought I was on the Colon Cancer page and obviously am not. I would like to communicate with other colon cancer sufferers.

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Posted by carolcowan, Tue, Jan 3, 2017 5:19pm

GaryK,
YAY for you! Read up on dietary changes to avoid colon cancer and practice as many changes as you can. It will increase your chance of not getting it again.
Carol

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Posted by charles, Wed, Jan 4, 2017 5:11am

@GaryK Congrats-great news for the new year! I am curious; with stage 2 cancer did your doctor discuss chemotherapy with you?
Best
C

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Aug 16, 2016 · @tina1973 · Electrolyte imbalances

Hi there everybody, my Finace went through stage 3 colon cancer and had his colon and large intestine removed, he has a colostomy bag right now because he had reconstructive surgery with the small intestines, he has had many doubts with death lately and I've seen a lot of spiritual

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Posted by megm, Tue, Aug 16, 2016 8:20am

Hi @tina1973, thought this article on electrolyte imbalance might be helpful (http://news.cancerconnect.com/electrolyte-imbalance/) as well as this article: http://news.cancerconnect.com/liver-damage-hepatotoxicity/

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Posted by tina1973, Tue, Aug 16, 2016 10:42am

Hi @ megm, Thank you for information, it's been a tough road to go down.

Thank you!
Tina

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Aug 17, 2016 · @kingsway · Daughter will have radiation and chemo soon, any tips?

Hi All My daughter 36 yrs old has had 16cm of her colon removed and has a temporary bag she is due for radium and chemo soon what advice does the group have for her.

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Posted by kingsway, Wed, Aug 17, 2016 9:56am

Hi Kimber she is stage 3 with 9 lymph nodes out of 15 harvested testing positive and is due to start radium next week and Chemo soon as well

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Posted by kimber, Wed, Aug 17, 2016 11:07pm

Good luck Paul. She's the same age as me. I can't imagine. Does she have kids? I hope she makes a quick and full rexovery. Kimber

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Aug 20, 2016 · @kimber · Going for a second opinion-- questions to ask

Hi everyone. My husband is going to mayo next week so I am trying to think of questions to ask the "experts" regarding his stage 4 colon cancer. Of particular concern is that his normal oncologist basically said all he can do is chemo or trial if mayo has one.

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Posted by kimber, Fri, Aug 19, 2016 11:36pm

Hi mickmad. My husband is 49. Mayo is not a proponent for the hipec. Husband actually had it once already and it may have helped but the mayo doctors and the medical oncologist think it caused significant scar tissue. If I'm completely honest, mayo was a waste of time. They

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Posted by metzcm, Sat, Aug 20, 2016 8:27pm

My husband is 56 and diagnosed with appendix cancer in Jan 2016 just had hipec in Pittsburgh June 14 with ileostomy and reversal done 3 weeks ago now want to do chemo to be proactive in case anything microscopic was missed

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Dec 10, 2016 · @conniealex · Recovering from surgery

My boyfriend was diagnosed with colon cancer stage 3. He had an operation last july 19, 2016, and he told me that his recovery is only 5 at this point in time, its aug. 7 now. He is only 42 years old, it was an open surgery. Please advise me

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Posted by grammym, Fri, Aug 12, 2016 8:59am

Hopefully each day he should get a little better, but internal healing cantake months and a lot depends on his own health. If he is generallyhealthy and has a healthy lifestyle, he should make improvements , but itis really early in his recovery time now. Time and patience will help.Good

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Posted by gkolbenschlag, Sat, Dec 10, 2016 8:59pm

Conniealex, I am the same age as your boyfriend. I was just diagnosed with Stage 2a. I am still waiting to see if I need additional treatment after my surgery. Did your boyfriend need any? If so what kind of treatment?
Good thought to you and him.

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Aug 15, 2016 · @achuthan · Recovering after surgery and chemotherapy

My wife has colon cancer ,and get surgery after take six months chemotherapy. Now it's passing more than 6month. But still she feelings illness all body. Can you suggest any treatment for this

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Posted by megm, Mon, Aug 1, 2016 11:11am

Hi @achuthan, what do her doctors suggest?

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Posted by marijo, Mon, Aug 15, 2016 1:35pm

I haven't looked at this chat room for while so didn't see your message. Your wife is lucky to have someone like you trying to help her. As the other answer said, you need to talk to the doctor. When I had cancer, my husband went with me and between

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Aug 8, 2016 · @katie5963 · Has anyone used marijuana for colon cancer? If so does it help, [...]

Has anyone used marijuana for colon cancer? If so does it help, and how do you take it? [...]

Posted by Jan, Sun, Aug 7, 2016 2:34pm

The worst for me was water it tasted awful had to put juice in my water!!!

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Posted by dawnchild, Mon, Aug 8, 2016 4:02pm

Crystal Lite and water go well together. Ice cold water is good. Food tasting the same like cardboard is a new problem. I had chemo today and so I am tired. got a new drug for nausea. I hope my insurance approves it. Life in the chemo world.

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Jul 25, 2016 · @johanz · I am 64 yrs old, I had Sigmoid Colectomy on 14 July. [...]

I am 64 yrs old, I had Sigmoid Colectomy on 14 July. Open surgery, no stoma. My recovery was exceptional and I was released from hospital on Wednesday. I had regular bowels until Thursday morning. Thereafter nothing. I already took 2 sachets of Movicol, no effect. When must I get [...]

Posted by johanz, Sun, Jul 24, 2016 11:14pm

Hi @kline. Fortunately it was not necessarry to contact the doctor. All returned ro normal after 3 days.

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Posted by kline, Mon, Jul 25, 2016 8:58am

So glad to hear that.

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Aug 23, 2016 · @nancys · Anyone else with Duodenal cancer?

I finished treatment in January for 3b duodenal cancer anyone out there?

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Posted by megm, Wed, Jul 27, 2016 8:13am

Hi @nancys, I am one of the moderators here and will message the group to see if there are others who can share their experience with you. How are you doing?

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Posted by nancys, Tue, Aug 23, 2016 7:09pm

better have had two good scans and a small bowel endoscopy all chemo symptoms gone

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Jul 28, 2016 · @mnielson · 2 years ago I was diagnosed with stage 3 colon cancer. Had [...]

2 years ago I was diagnosed with stage 3 colon cancer. Had A colon resection. After 2 years of good results they have discovered a lymph noid that has tested malignant. Was wondering if anyone has had anything similar and how you dealt with it. I'm just so scared and [...]

Posted by kimber, Tue, Jul 19, 2016 11:35am

@mnielsen was this a local lymph node? Any other involvement? It is hard to swallow. I think if it's a single local node, you are in better shape. Staying active sharing your story should help. People have all sorts of ideas sand stories here. My husband has stage 4 colon

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Posted by bryanmeb, Thu, Jul 28, 2016 8:54am

please don't give up I had stage 4 cancer in the liver 2 places in 2008// now don't see any oncologist since 2013// only primary care doc. They gave me horrible diagnosis in 2008 had 4 surgeries and chemo and am now healthy I hope you get through this without

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Jul 26, 2016 · @mnielson · Dealing with a recurrence

I have just found out after 2 years of good results that I have a reactance of my colon cancer. First time around it was stage 3. Not 100% sure it is colon cancer again but the are assuming so. Just so scared and don't even know how to deal

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Posted by Jan, Thu, Jul 21, 2016 8:13am

@mnielson How did they find the new cancer?
I will keep you in my prayers!! I just finished my chemo for Stage 3 A and now have my colonoscopy and CT scan in September and am scared to death!
Stay Positive!!

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Posted by marijo, Tue, Jul 26, 2016 11:28pm

Thank you for sharing. I have just had my last intense follow up and am now supposedly cancer free. Through out my follow-up there have been issues so I hope I am cancer free. I want to get the tests but then live on the edge until I get the

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Jul 28, 2016 · @tbarnett11 · New to this cancer thing and scared. I am 46 years old [...]

New to this cancer thing and scared. I am 46 years old and 2 weeks ago I was told there was a mass in my colon. I have always been healthy, active and full of life but the past 3 years I have just seem to have one strange ailment [...]

Posted by kline, Thu, Jul 28, 2016 9:31am

I think being terrified of chemo is normal. I was! But I have found (as many others have) we all react differently to the various chemo they give us. As a nurse you know that different people respond differently to the surgeries, medication, etc, (that you helped administer to your

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Posted by kimber, Thu, Jul 28, 2016 9:52am

@bryanmeb Have you been in remission since 2013?! Wow. Did you have colon cancer too? Kimber

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Jul 11, 2016 · @johanz · After a colonoscopy on 29 June colon cancer which mestetasized to the [...]

After a colonoscopy on 29 June colon cancer which mestetasized to the liver has been diagnosed. Referred to a surgeon by my GP, who has scheculed a Sigmoid Colectomy for Thursday 14 July. Was I not suppised to be referred to an oncologist first or is this the right procedure [...]

Posted by carolcowan, Mon, Jul 11, 2016 1:13pm

johanz,
I'm Carol, one of the moderators here. I think it's great that the surgery is so soon, they'll see what's going on, get it out of there, and then you'll find out how to deal with the liver mets and keep it away.

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Posted by johanz, Mon, Jul 11, 2016 8:44pm

@carolcowan Thank you for your reply. I now agree with you. I phoned around yesterday and got satsfactory answers from specialists. Now that I know the correct procedures are followed I am ready.

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Jul 9, 2016 · @lisa_michele · Hi All I find everyones stories so inspiring and brave and now [...]

Hi All I find everyones stories so inspiring and brave and now I feel I need to share my sisters story in the hope of hearing advice and peoples experiences – I hope you continue to read on ☺ My amazing 43 year old sister was diagnosed with [...]

Posted by jstauf, Fri, Jul 8, 2016 1:17am

I agree - we are partners with "our cancer patients" and sometimes there is an opportunity for input; but ultimately, the journey is theirs. We are definitely along for the journey, and suffer along with them, but they are the ultimate decision makers about when enough is enough. We may

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Posted by carolcowan, Sat, Jul 9, 2016 9:54am

Jan,
Your attitude is exactly what it should be. It's not a given with caregivers, and while others are following and supporting you, some who read these comments and replies are seeing a great example of what a caregiver in your situation should do.
Carol

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Jul 6, 2016 · @lexilou · I just finished 12 treatments of Folfox for stage 3C colon cancer. [...]

I just finished 12 treatments of Folfox for stage 3C colon cancer. I have been offered a spot in a research study for Regrorafenib. It is a double blind study so I may receive the drug or a placebo. I am looking for any information to include side affects. I [...]

Posted by megm, Wed, Jul 6, 2016 12:20pm

HI @lexilou, good for you for getting as much information as possible so that you can make an informed decision. Have you asked your doctors about the risks and benefits of participating in the trial compared with the best available therapy? Stivarga (regorafinib) has been approved in metastatic colorectal cancer

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Posted by lexilou, Wed, Jul 6, 2016 8:39pm

Thanks megm. I have spoken with the Research Coordinator and we have reviewed the side affects. The potential side affects we discussed are the same as listed in the information you referred me to. I did find out that in this study I will receive the actual medication (not a

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